The era of research collaborations: new models for working together

Djukanović, Ratko; Bruselle, Guy; Walker, Samantha; Holgate, Stephen T.; Škrgat, Sabina; Kuna, Piotr; Heaney, Liam G.; Canonica, Giorgio Walter; Vestbo, Jørgen

doi:10.1183/13993003.01848-2016

Cited by 10 publications

(8 citation statements)

References 16 publications

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“…An international effort in the implementation and data analyses of registries on SUA patients could be an added value to better understand the clinical features and to better manage difficult‐to‐treat asthmatic patients, which represent a non‐negligible socioeconomic burden for the health services. Asthma research collaboration was recently promoted and fostered by the European Respiratory Society …”

Section: Discussionmentioning

confidence: 99%

RItA: The Italian severe/uncontrolled asthma registry

Maio

Baldacci

Bresciani

et al. 2017

Allergy

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Section: Discussionmentioning

confidence: 99%

RItA: The Italian severe/uncontrolled asthma registry

Maio

Baldacci

Bresciani

et al. 2017

Allergy

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“…EMBARC was one of the first ERS CRCs to be funded (in 2013, with funding running from 2014 to 2017). The portfolio of CRCs is now highly diverse, covering disease areas from sleep apnoea, intensive care unit-related respiratory infections, childhood and adult interstitial lung diseases, severe asthma, and pulmonary function [ 20 , 21 ].…”

Section: What Is Embarc?mentioning

confidence: 99%

“…In addition to funding, they provide access to the considerable resources of the ERS, providing access to ERS members, national delegates and national societies through the Forum of International Respiratory Societies (FIRS) ( https://www.firsnet.org/news-and-actions ). They provide the ability to hold meetings and symposia at the ERS International Congress and, perhaps most importantly in the case of EMBARC, they provide an identity and mark of approval to the network, which enables the network to recruit both funders and participants through the trust that individual healthcare professionals, patients and funders have in the ERS [ 20 , 21 ].…”

Section: What Is Embarc?mentioning

confidence: 99%

The European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC): experiences from a successful ERS Clinical Research Collaboration

Chalmers

Crichton

Goeminne

et al. 2017

Breathe

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In contrast to airway diseases like chronic obstructive pulmonary disease or asthma, and rare diseases such as cystic fibrosis, there has been little research and few clinical trials in bronchiectasis. Guidelines are primarily based on expert opinion and treatment is challenging because of the heterogeneous nature of the disease.In an effort to address decades of underinvestment in bronchiectasis research, education and clinical care, the European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) was established in 2012 as a collaborative pan-European network to bring together bronchiectasis researchers. The European Respiratory Society officially funded EMBARC in 2013 as a Clinical Research Collaboration, providing support and infrastructure to allow the project to grow.EMBARC has now established an international bronchiectasis registry that is active in more than 30 countries both within and outside Europe. Beyond the registry, the network participates in designing and facilitating clinical trials, has set international research priorities, promotes education and has participated in producing the first international bronchiectasis guidelines. This manuscript article the development, structure and achievements of EMBARC from 2012 to 2017.Educational aimsTo understand the role of Clinical Research Collaborations as the major way in which the European Respiratory Society can stimulate clinical research in different disease areasTo understand some of the key features of successful disease registriesTo review key epidemiological, clinical and translational studies of bronchiectasis contributed by the European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) project in the past 5 yearsTo understand the key research priorities identified by EMBARC for the next 5 years

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“…Respiratory research consortia and clinical networks are not a new concept but have typically worked in silos with variable links to the ERS [1]. In 2013, the ERS established the Clinical Research Collaborations with the aim of: promoting the exchange of research ideas among clinicians and affiliated scientists in Europe and/or globally; building an infrastructure for prospective clinical research; securing additional funding through national and EU funding streams; and facilitating the planning, conducting, evaluation and publishing of clinical and translational studies at pan-European level and beyond.…”

Section: @Erspublicationsmentioning

confidence: 99%