The embodied experience of episodic disability among women with multiple sclerosis

Vick, Andrea

doi:10.1080/09687599.2012.699279

Cited by 22 publications

(27 citation statements)

References 28 publications

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“…People with MS live with fluctuating and changing impairment, which is an ambiguous situation that influences relationships and public inclusion as citizens [8]. Participants in this study highlighted the experiences of stigmatization and the influence this has on their everyday life [11].…”

Section: Discussionmentioning

confidence: 98%

“…Such adaptations include being open to the changes in functional ability and to focus on resources and opportunities [6]. In addition to coping with the symptoms of MS itself [7], patients must also contend with society's reactions to the varying and fluctuating symptoms [8]. ''Othering gaze'' involves a categorization process constituting something as different from ''us'', e.g.…”

Section: Introductionmentioning

confidence: 99%

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“I refer to them as my colleagues”: the experience of mutual recognition of self, identity and empowerment in multiple sclerosis

Skår

Folkestad

Smedal

et al. 2013

Disability and Rehabilitation

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Participating in inpatient rehabilitation gave people with MS the possibility to exchange information and communicate strategies for coping with the disease-related conditions and societal demands. They established social relations recognizing each other's resources. Participants felt equipped to make decisions and to mobilize individual and collective resources. Recognition of the individual with both ability and impairment can be a key to empowerment. Implications for Rehabilitation In multiple sclerosis (MS), the clinical symptoms and the unpredictability of the disease may have consequences for how patients relate to self and to others, and hence how they perform socially. Stigmatization is commonly experienced among people with MS. The recognition experienced from peers create a sense of community. We recommend health care professionals to acknowledge the importance of peer support for self, identity and empowerment in MS.

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Section: Discussionmentioning

confidence: 98%

Section: Introductionmentioning

confidence: 99%

“I refer to them as my colleagues”: the experience of mutual recognition of self, identity and empowerment in multiple sclerosis

Skår

Folkestad

Smedal

et al. 2013

Disability and Rehabilitation

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show abstract

“…Consequently, interest has grown in qualitative studies exploring the lived experience of those with MS and their carers (Miller, 1997;Koopman and Schweitzer, 1999;Cheung and Hocking, 2004;Shevil and Finlayson, 2006;Malcomson et al, 2008;Olsson et al, 2008;Mutch, 2010;Moriya and Suzuki, 2011;Vick, 2013). Unpredictability is one of the largest challenges in MS (Malcomson et al, 2008).…”

Section: Hannah Rose Wilkinson and Roshan Das Nairmentioning

confidence: 99%

The psychological impact of the unpredictability of multiple sclerosis: a qualitative literature meta-synthesis

Rose

Nair

2013

British Journal of Neuroscience Nursing

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Rose, Hannah and das Nair, Roshan (2013) The psychological impact of the unpredictability of multiple sclerosis: a qualitative literature meta-synthesis. British Journal of Neuroscience Nursing, 9 (4). pp. A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.uk ABSTRACT Background: Multiple sclerosis (MS) is a neurological conditioncharacterised by an unpredictable nature. This characteristic is reported to be the largest challenge for individuals with the condition. Chronic illness literature highlights the psychological impact of unpredictability, but there is a paucity of research examining this concept in MS. Objectives: This systematic review aimed to explore the psychological impact of unpredictability in MS. Methods: A meta-synthesis was conducted. A total of 6 studies with 59 participants were reviewed and critically appraised. Themes relating to the psychological impact of unpredictability were extracted and synthesised. Results: A preliminary model of the unpredictability of MS was developed highlighting the different psychological impacts of diagnosis, remission and relapse. Conclusions: The psychological impact of unpredictability alters through diagnosis, remission and relapse. Further research is required to explore the experience of unpredictability in MS.

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“…Andrea Vick's (2013) From a phenomenological perspective, an in-between embodiment speaks to the permeability of moving back and forth between embodied states of health and illness.…”

Section: Merleau-ponty's Theories Of Embodiment In Conjunction With mentioning

confidence: 99%

“…Such individuals threaten classificatory systems by remaining neither properly well or sick, and existing between the statuses of able and disabled (Vick, 2013). For those with episodic disabilities, the ambiguity of living in-between augments the complexity of bodily experience and cultural constructions of what rightfully constitutes a disabled body.…”

Section: Merleau-ponty's Theories Of Embodiment In Conjunction With mentioning

confidence: 99%

Type-1 Diabetes, Gender and Technology: Exploring Lived Experiences

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The embodied experience of episodic disability among women with multiple sclerosis

Cited by 22 publications

References 28 publications

“I refer to them as my colleagues”: the experience of mutual recognition of self, identity and empowerment in multiple sclerosis

“I refer to them as my colleagues”: the experience of mutual recognition of self, identity and empowerment in multiple sclerosis

The psychological impact of the unpredictability of multiple sclerosis: a qualitative literature meta-synthesis

Type-1 Diabetes, Gender and Technology: Exploring Lived Experiences

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