The emancipation of disability studies in Portugal

Fontes, Fernando; Martins, Bruno Sena; Hespanha, Pedro

doi:10.1080/09687599.2014.880332

Cited by 13 publications

(10 citation statements)

References 14 publications

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“…Interviewees did not mention their positionality vis-à-vis those axes and—much to my regret—I did not explicitly ask about them as part of my interviews. 11 There is no doubt that structural inequalities relating to race, ethnicity, class, gender identity, and (dis)ability shape access to, and experiences of, academic careers in Portugal (Fontes et al 2014; Machado et al 1995; Maeso and Araújo 2014). Therefore, that silence says more about the invisibility of these inequalities to those—including me—who are privileged vis-à-vis them (Ahmed 2007) than it does about their actual influence on experiences of boundary-work.…”

Section: Inequality and Scientists’ Experiences Of Boundary-workmentioning

confidence: 99%

Boundary-work that Does Not Work: Social Inequalities and the Non-performativity of Scientific Boundary-work

Pereira

2018

Science, Technology, & Human Values

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Section: Inequality and Scientists’ Experiences Of Boundary-workmentioning

confidence: 99%

Boundary-work that Does Not Work: Social Inequalities and the Non-performativity of Scientific Boundary-work

Pereira

2018

Science, Technology, & Human Values

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“…A qualitative approach helps the researcher in exploring the idiosyncratic and contextual meanings underlying the research questions [47]. As mentioned above, this goes in line with a participatory paradigm of research, since this approach values personal involvement from both participants and researchers and allows for flexibility in data collection and data analysis [7,47]. Moreover, a Focus Group method is suitable to study the perceptions, beliefs, opinions, and attitudes shared by a certain group regarding a relevant topic [47].…”

Section: Methodsmentioning

confidence: 99%

“…This study is part of a larger mixed-methods research project on the sexuality of Portuguese people living with physical disabilities, that aims to understand the role of psychological factors in influencing the sexual health of these people [45,46]. Striving for deeper and wider understanding of the study's phenomenon, the mixed-methods design of this project is based on a participatory paradigm of research, which improves the researchers' responsibility towards the advocacy issues of their study's participants [7]. According to a participatory paradigm of research, power for the planning and development of the research is shared between the researcher and the participants, which led to the decision to start with a more qualitative approach.…”

Section: Aims and Scope Of The Studymentioning

confidence: 99%

“…Ultimately, these circumstances end up limiting the opportunities for people with disabilities to fulfill their sexual needs [4][5][6]. Based on a participatory paradigm of research, this study aimed to explore the perspectives of Portuguese people living with physical disabilities regarding issues affecting their sexual health, and to assess their sexual needs [7].…”

Section: Introductionmentioning

confidence: 99%

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Perspectives of Portuguese People with Physical Disabilities Regarding Their Sexual Health: A Focus Group Study

2018

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The World Health Organization has considered sexual health as a major dimension of global health and a sexual right. However, the sexual health of people with physical disabilities is still poorly addressed by health and social care professionals, and it is very stigmatized by society. This study aimed to assess the perspectives of Portuguese people living with physical disabilities regarding issues affecting their sexual health. Nine women and 17 men with different physical disabilities participated in the study. Participants were recruited from a professional rehabilitation facility located in the North of Portugal and were assigned to four groups in one-hour sessions. Three main categories emerged from the content analysis: (1) meanings and beliefs regarding sexuality; (2) experiences of sexuality; (3) necessary changes. Despite the positive social changes towards sexuality, participants expressed that their sexual rights are still unfulfilled, as they live in a context that perpetuates their dependency. They pointed out low self-esteem, prejudice and social isolation, poor architectural accessibility and scarcity of financial support as some of the barriers to their lives and their sexual health. Finally, participants identified the main needs regarding their sexual health, such as: access to specialized information; training for health professionals. This study gives voice to people with physical disabilities and sheds light into both individual and contextual factors affecting their sexual health. Of utmost importance, this study draws attention to the need for reinforcing sexuality of people with disabilities in the social agenda and brings implications for future research and practice.

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“…This study utilized a mixed research design [21], using purposive sampling techniques [22,23] to recruit a final sample of 36 Portuguese men and women with different physical disabilities. This study's methodological foundation was based on the participatory research paradigm, which emphasizes researchers' responsibility to advocate for issues that affect study participants [24] and encourages research questions that promote understanding and manifestations of social change among a particular group of people. Additionally, this study followed Simon and Gagnon's [25] sexual script theory, emphasizing how interpersonal and socio-cultural scenarios and interactions can shape a person's sexual meaning and sexual life.…”

Section: Study Design and Proceduresmentioning

confidence: 99%

Sexual Behaviors and Sexual Perceptions of Portuguese Adults with Physical Disabilities

Pereira

2020

Sex Disabil

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The primary goal of this study was to shed light on the sexual behaviors and sexual perceptions of people with physical disabilities living in Portugal. As a result, we adopted a mixed methods study, which utilized a descriptive approach to describe participants' sexual behaviors and a qualitative approach to assess their sexual perceptions. This study surveyed 36 people (mean age = 40.25 years, SD = 10.45), of whom 58.3% (n = 21) were male, almost 70% (n = 25) were single, and the vast majority self-identified as heterosexual. 58.3% (n = 21) of participants did not report partaking in any sexual interactions over the previous 6 months, and 27.8% (n = 10) of study participants claimed to have never had sex. Among those who had engaged in sexual activity during the previous six months, kissing, touching, and caressing (38.9%, n = 6), receiving erogenous zone stimulation (33.3%, n = 5) and performing oral sex (33.3%, n = 5) were the most frequently reported activities. Among sexually active participants who reported not having had sex in the previous 6 months (58.3%, n = 21), only 2 (9.5%) mentioned that they did not have sex because of personal attributes, such as not feeling attractive. The remaining 19 (90.5%) systematically reported a lack of opportunity or a lack of a partner to justify not engaging in any sexual activity. Results from the content analysis of 36 participants' responses revealed the following 9 recurring themes regarding sexual perceptions: the definitions of human sexuality, the positive and negative impact of sexuality on emotional well-being, sexual problems, obstacles to sexual expression, sexual expectations, positive coping/resilience and interactions with society. Finally, it is important to highlight this study's contributions to the demands of people with physical disabilities in Portugal to be seen as sexual citizens.

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The emancipation of disability studies in Portugal

Cited by 13 publications

References 14 publications

Boundary-work that Does Not Work: Social Inequalities and the Non-performativity of Scientific Boundary-work

Boundary-work that Does Not Work: Social Inequalities and the Non-performativity of Scientific Boundary-work

Perspectives of Portuguese People with Physical Disabilities Regarding Their Sexual Health: A Focus Group Study

Sexual Behaviors and Sexual Perceptions of Portuguese Adults with Physical Disabilities

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