The effects of the COVID-19 pandemic on the well-being of children with autism spectrum disorder: Parents’ perspectives

Amirova, Aida; CohenMiller, Anna; Sandygulova, Anara

doi:10.3389/fpsyt.2022.913902

Cited by 11 publications

(9 citation statements)

References 31 publications

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“…Different from the findings in the present study, a survey carried out by Amirova, A. et al, identified that all parents unanimously were against online learning, in addition to showing that parents were forced to deal with the various responsibilities imposed without having adequate training, generating an increase in stressors during the pandemic period 15 .…”

Section: Remote Teaching and Children/adolescents With Asdcontrasting

confidence: 99%

Impacts of the Covid-19 Pandemic on Children and Adolescents With Autism Spectrum Disorder and Their Caring Parents

Santos¹,

Jesus²,

Santos³

et al. 2023

JHS

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Introduction:The COVID-19 pandemic has generated abrupt changes in the lives of children/adolescents with ASD, impacting the entire family environment, with consequences that can be quite negative. The aim of this study was to analyze the consequences of the COVID-19 pandemic period in the lives of children/ adolescents with ASD and their caregivers. Methods: This is a descriptive study with a qualitative approach. Parents of children/ adolescents with ASD who were being treated at the location were eligible for the sample. Children and/or adolescents with ASD who reside in institutions or who did not regularly attend the institution before the pandemic were included in this research. The interviews were analyzed using Bardin's content method, with the following categories emerging: impacts of the pandemic period on children/adolescents with ASD (1), with three subcategories, namely: impacts on family routine, behavioral impacts and physical impacts; Remote teaching and children/adolescents with ASD (2); Repercussions of the pandemic period on the caregiver(3). Results: All interviewees were mothers of children/adolescents with ASD. Some interviewees mentioned that their family routine was directly impacted by the pandemic. 90% reported that their children showed behavioral worsening during the pandemic, while 40% reported that their children were also physically impacted by the period, mainly due to weight gain. In face of remote teaching, 60% of the interviewees reported the difficulty faced in carrying out the proposed activities. All mothers reinforced that they felt changes in their personal routine, in addition to the fear of not being offering the proper treatment to their children. Final considerations:The study identified that the pandemic had several impacts on the lives of children

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Section: Remote Teaching and Children/adolescents With Asdcontrasting

confidence: 99%

Impacts of the Covid-19 Pandemic on Children and Adolescents With Autism Spectrum Disorder and Their Caring Parents

Santos¹,

Jesus²,

Santos³

et al. 2023

JHS

View full text Add to dashboard Cite

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“…Parents of these children were already experiencing high parental stress before the pandemic [10,11], so the impact of the COVID-19 crisis might be less severe than in the general population because of a ceiling effect. In addition, some aspects of parenting stress, such as stress related to school avoidance or peer con icts, may be attenuated during lockdowns [12]. However, our main hypothesis is that parenting stress became even more severe among parents with a child who was already receiving treatment for a mental health problem, which further negatively impacts their child's mental health.…”

Section: Introductionmentioning

confidence: 90%

The impact of COVID-19 restrictions on parent-child conflict and mental health among children in tertiary mental health care

Robaey

Erbach

Watanabe

et al. 2023

Preprint

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This study focused on children treated for mental health problems during the pandemic. We examined how parent’s difficulties in managing COVID-19 restrictions increased children's behavioral problems (internalizing and externalizing) and parent-child conflict through parental mental health and parental stress. Family functioning, particularly problem-solving ability, was tested as a resilience factor. Data were collected using online surveys from 337 parents with a child between the ages of 4 and 18 years who was receiving active outpatient mental health treatment at a pediatric tertiary care center. Parents who reported a greater impact of COVID-19 reported more behavioral difficulties in their children. This relationship was significantly mediated by parental mental health (general stress, anxiety, and depression) and parental stress. Similar indirect pathways were observed when examining internalizing and externalizing problems in children, where the most significant pathway had parental stress as the sole mediator. Furthermore, the effect of COVID-19 impact on parent-child conflict through parental stress was significantly moderated by problem-solving skills within the family. Parental stress mediates the impact of COVID-19 on parent-child conflict. Interventions that improve family problem solving-skills may decrease the effect of parental stress on parent-child conflict.

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“…The study furthered that individuals with ASD expressed that their needs were not adequately addressed because of lockdown measures, i.e., they experienced difficulties in accessing essential healthcare services and facilities. Other studies (see Amirova et al, 2022;Pachner & Aranyi, 2021;Mutluer et al, 2020) also substantiate that the pandemic was likely to have negative effects on children with ASD because it disrupted educational services. It has also been reported that the lockdowns caused them to lose their previously acquired skills (Amorim et al, 2020).…”

Section: Introductionmentioning

confidence: 95%

Challenges and Opportunities for Children with Autism Spectrum Disorder during the Pandemic: Parents’ Views in the Limelight

Milan

Lemana²

2023

IJQR

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The Covid-19 pandemic has disrupted many facets of human existence, including the experiences of the most vulnerable members of society. This study aimed to explore the lived experiences of children with autism spectrum disorder (ASD) during the pandemic through the lens of their parents. It specifically aimed to delve into the challenges and opportunities these children encountered during these trying times. Using a phenomenological inquiry, six purposefully selected parents whose children have ASD were interviewed and observed to generate rich and detailed information about the phenomenon, which was fortified by the participants’ shared photographs by virtue of the photovoice methodology. The analysis brought out five themes from the gathered data; three focused on challenges: (1) putting up with the unavailability of special services, (2) catching up with the demands of modular education, and (3) running into emotional breakdowns. Meanwhile, two themes focused on opportunities: (4) increased time for family bonding and (5) acquisition of new life skills. The study’s findings highlight significant implications to government and educational leaders on the interventions and programs needed by children with ASD as they thrive in the midst of the pandemic.

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The effects of the COVID-19 pandemic on the well-being of children with autism spectrum disorder: Parents’ perspectives

Cited by 11 publications

References 31 publications

Impacts of the Covid-19 Pandemic on Children and Adolescents With Autism Spectrum Disorder and Their Caring Parents

Impacts of the Covid-19 Pandemic on Children and Adolescents With Autism Spectrum Disorder and Their Caring Parents

The impact of COVID-19 restrictions on parent-child conflict and mental health among children in tertiary mental health care

Challenges and Opportunities for Children with Autism Spectrum Disorder during the Pandemic: Parents’ Views in the Limelight

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