The effects of COVID-19 restrictions on physical activity and mental health of children and young adults with physical and/or intellectual disabilities

Theis, Nicola; Campbell, Natalie; Leeuw, Julie De; Owen, Marie; Schenke, Kimberley Caroline

doi:10.1016/j.dhjo.2021.101064

Cited by 165 publications

(177 citation statements)

References 31 publications

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“…One of the explanations for a decline in health, may be that is has become more difficult for patients to take care of their health during the pandemic. Around two-thirds of both adults and parents found it more difficult to take care of their or their child's health during the pandemic and only half of adults and children could maintain their physiotherapy on a regular basis, which is consistent with other studies showing that physical activity in patients with NMD or other disabilities, has been reduced during the pandemic [17,34]. Comments made by participants in the present study directly link indirect effects of the pandemic such as COVID-19 restrictions and changes in physiotherapy and treatment with poorer health, decreased physical function and poorer QOL.…”

Section: Discussion Of Resultssupporting

confidence: 88%

Impact of the COVID-19 pandemic on biopsychosocial health and quality of life among Danish children and adults with neuromuscular diseases (NMD)—Patient reported outcomes from a national survey

Handberg

Werlauff²,

Højberg³

et al. 2021

PLoS ONE

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The purpose was to investigate the impact of the COVID-19 pandemic on biopsychosocial health, daily activities, and quality of life among children and adults with neuromuscular diseases, and to assess the prevalence of COVID-19 infection and the impact of this in patients with neuromuscular diseases. The study was a national questionnaire survey. Responses were obtained from 811 adults (29%) and 67 parents of children (27%) with neuromuscular diseases. Many patients reported decreased health or physical functioning, and changes in access to physiotherapy or healthcare due to the pandemic. Participants generally perceived themselves or their child to be at high risk of severe illness from COVID-19, but only 15 patients had suffered from COVID-19 and experienced mild flu-like symptoms. 25.3% of adults and 46.6% of parents experienced anxiety. 20.4% of adults and 27.6% of parents experienced symptoms of depression. In general, the pandemic contributed to anxiety, a depressed mood as well as to fewer leisure activities, less social contact, isolation from work/school and a reduced quality of life, in particular for patients who perceived themselves to be at high risk of severe illness. The results demonstrate that the pandemic has had a negative impact on biopsychosocial health and quality of life of patients with neuromuscular diseases.

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Section: Discussion Of Resultssupporting

confidence: 88%

Impact of the COVID-19 pandemic on biopsychosocial health and quality of life among Danish children and adults with neuromuscular diseases (NMD)—Patient reported outcomes from a national survey

Handberg

Werlauff²,

Højberg³

et al. 2021

PLoS ONE

View full text Add to dashboard Cite

show abstract

“… 22 A study showed that most PwDs were affected by a lack of access to facilities and equipment after COVID-19. 23 Finally, PwDs have more chronic medical conditions, as evidenced by the data in this study (higher prevalence of chronic diseases in PwDs compared to people without disabilities). These characteristics may be associated with an increased risk of COVID-19 and worse outcomes during the COVID-19 pandemic.…”

Section: Discussionsupporting

confidence: 59%

Risk of COVID-19 and major adverse clinical outcomes among people with disabilities in South Korea

Choi

Han

Lee

et al. 2021

Disability and Health Journal

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Background Evidence regarding the risk of coronavirus disease (COVID-19) and the major adverse clinical outcomes of COVID-19 among people with disabilities (PwDs) is scarce. Objective This study investigated the association of disability status with the risk of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) test positivity and the risk of major adverse clinical outcomes among participants who tested positive for SARS-CoV-2. Methods This study included all patients (n = 8,070) who tested positive for SARS-CoV-2 and individuals without COVID-19 (n = 121,050) in South Korea from January 1 to May 30, 2020. The study variables included officially registered disability status from the government, SARS-CoV-2 test positivity, and major adverse clinical outcomes of COVID-19 (admission to the intensive care unit, invasive ventilation, or death). Results The study participants included 129,120 individuals (including 7,261 PwDs), of whom 8,070 (6.3%) tested positive for SARS-CoV-2. After adjusting for potential confounding factors, PwDs had an increased risk of SARS-CoV-2 test positivity compared with people without disabilities (odds ratio [OR]: 1.36, 95% confidence interval [CI]: 1.24–1.48). Among participants who tested positive for SARS-CoV-2, PwDs were associated with an increased risk of major adverse clinical outcomes from COVID-19 compared to those without disabilities (OR: 1.43, 95% CI: 1.11–1.86). Conclusions PwDs had an increased risk of COVID-19 and major adverse clinical outcomes of COVID-19 compared with people without disabilities. Given the higher vulnerability of PwDs to COVID-19, tailored policy and management to protect against the risk of COVID-19 are required.

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“…This review highlights the psychological and social consequences of the pandemic for people with intellectual disability who have stopped participating in their communities and have had their routines interrupted during lockdown/restrictions for a prolonged period [ 59 , 60 , 61 ] and access to education, health, vocation and mental health service disrupted [ 50 , 62 ]. In addition, many have found it difficult to understand COVID-19 and self-regulate their behaviour, creating a risk of behaviours that challenge which negatively affect the emotional well-being and quality-of-life of the person [ 63 , 64 ]. One could argue further segregation is occurring not just by the wider society or generic health services, but also in terms of service provision and this intensifies the sense of isolation.…”

Section: Discussionmentioning

confidence: 99%

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

Doody

Keenan

2021

Annals of Medicine

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Background: People with an intellectual disability are a vulnerable group during COVID-19 due to multi-morbidity, frailty, underlying conditions/health problems, social circumstances and limitations in understanding. This place them at greater risk of more severe outcomes from COVID-19. Objective: To chart the evidence of the effects of the COVID-19 pandemic on people with intellectual disability and their carers reported in the research. Methods: A scoping review method was used to review literature published across eight databases in 2020 and included manual searches of reference lists of included articles. Results: Sixteen studies were selected for inclusion. The findings highlight that professionals, people with intellectual disability and their carers were keen to comply with pandemic related public health guidance. However, implementing infection prevention and control measures in certain contexts for people with intellectual disability was challenging. Thereby a rights-based, person-centred approach to care is essential and professionals need to extend their understanding and practice of collaborative working to include people with intellectual disability and their family/carers. The findings highlight that compliance with public health guidance and infection control measures can be difficult for people with intellectual disability to implement. Conclusions: There is limited good quality robust research on COVID-19 and people with intellectual disability and/or their carers experiences.

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The effects of COVID-19 restrictions on physical activity and mental health of children and young adults with physical and/or intellectual disabilities

Cited by 165 publications

References 31 publications

Impact of the COVID-19 pandemic on biopsychosocial health and quality of life among Danish children and adults with neuromuscular diseases (NMD)—Patient reported outcomes from a national survey

Impact of the COVID-19 pandemic on biopsychosocial health and quality of life among Danish children and adults with neuromuscular diseases (NMD)—Patient reported outcomes from a national survey

Risk of COVID-19 and major adverse clinical outcomes among people with disabilities in South Korea

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

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