The Effectiveness of Self-Management Programs on Self-Efficacy in Patients With Sickle Cell Disease

Ahmadi, Mehrnaz; Shariati, Abdolali; Jahani, Simin; Tabesh, Hamed; Keikhaei, Bijan

doi:10.17795/jjcdc-21702

Cited by 19 publications

(29 citation statements)

References 48 publications

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“…They studied the effect of self-care programs on the self-efficacy of anemia sickle cell patients and concluded that self-care programs has a positive effect on their self-efficacy so that the self-efficacy, which was at a moderate level prior to intervention, increased after intervention (37). Moreover, Cashaw conducted a quasi-experimental study on a group to assess the effect of self-managing based on behavioral intervention.…”

Section: Discussionmentioning

confidence: 99%

“…Researches show that those individuals who trust their abilities actively participate in health programs promoting health level (16). Increased drug consumption, better relations with therapy team and promotion of health variables are among the positive outcomes of self-efficacy programs (17). In chronic diseases, training is a special part of care program by which patients actively participate in their health care programs and this, in turn, results in better interaction with clients.…”

Section: Introductionmentioning

confidence: 99%

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Effects of Home-Care Training on the Self-Efficacy of Patients with Beta Thalassemia Major

Moghadam¹,

Nourisancho²,

Shahnazi³

et al. 2016

Mater Sociomed

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Background:The self-efficacy of thalassemia patients is an important factor in creating behavioral changes in such patients. Home-care training reduces hospitalization duration as well as relevant costs and improves disease outcomes. This study was designed to assess the effect of home-care training on the self-efficacy of patients with beta thalassemia major.Methodology:This was a quasi-experimental, case-control, before and after intervention study conducted on 136 thalassemia cases from January 2014 to October 2015. Data was collected through Shere general self-efficacy questionnaire (SGSES). Home-care trainings were provided in the form of training courses with respect to the training needs of thalassemia major cases. Two (2) months after the end of training courses, SGSES questionnaire was filled again and the obtained data was analyzed by SPSS 21 as well as descriptive-inferential statistics (significance level=P≤0.05).Results:The results of this study revealed that the mean self-efficacy score of control group was 48.69±6.82 before intervention which increased to 46.69±6.81 after intervention. The mean self-efficacy score of case group was 44.58±5.23 before intervention which increased to 49.5±6.66 after intervention. The rise of self-efficacy score, after intervention, was significantly higher in the case group compared with the control group (P≤.001).Conclusion:According to results, home-care training can develop self-efficacy in thalassemia patients. In home-care training procedure patients play an active role. By providing home-care trainings, therefore, an effective step should be taken to promote the self-efficacy of the patients and to decrease associated problems.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Effects of Home-Care Training on the Self-Efficacy of Patients with Beta Thalassemia Major

Moghadam¹,

Nourisancho²,

Shahnazi³

et al. 2016

Mater Sociomed

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“…95,96 Quality of life in SCD has been reported using the SF-36. 97,98 Unfortunately, behavioral change promoted by CHW does not guarantee quiescent symptoms of SCD, even with complete adherence to care plans. 21–24 …”

Section: Evaluating the Impact Of Community Health Workers On Sickle mentioning

confidence: 99%

Community Health Workers as Support for Sickle Cell Care

Hsu

Green

Ivy

et al. 2016

American Journal of Preventive Medicine

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Community health workers are increasingly recognized as useful for improving health care and health outcomes for a variety of chronic conditions. Community health workers can provide social support, navigation of health systems and resources, and lay counseling. Social and cultural alignment of community health workers with the population they serve is an important aspect of community health worker intervention. Although community health worker interventions have been shown to improve patient-centered outcomes in underserved communities, these interventions have not been evaluated with sickle cell disease. Evidence from other disease areas suggests that community health worker intervention also would be effective for these patients. Sickle cell disease is complex, with a range of barriers to multifaceted care needs at the individual, family/friend, clinical organization, and community levels. Care delivery is complicated by disparities in health care: access, delivery, services, and cultural mismatches between providers and families. Current practices inadequately address or provide incomplete control of symptoms, especially pain, resulting in decreased quality of life and high medical expense. The authors propose that care and care outcomes for people with sickle cell disease could be improved through community health worker case management, social support, and health system navigation. This report outlines implementation strategies in current use to test community health workers for sickle cell disease management in a variety of settings. National medical and advocacy efforts to develop the community health workforce for sickle cell disease management may enhance the progress and development of “best practices” for this area of community-based care.

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“…Self-management programs are designed to help patients determine their needs and problems, and to assist them to overcome these (25). Although there is evidence indicating that self-management improves health outcomes in SC patients and patients with other chronic diseases (25)(26)(27)(28), little research has examined the implementation of such programs in reduction of pain, fatigue, depression, anxiety, and stress in patients with SCD.…”

Section: Introductionmentioning

confidence: 99%

The Effectiveness of Self Management Program on Pain, Fatigue, Depression, Anxiety, and Stress in Sickle Cell Patients: A Quasi-Experimental Study

Ahmadi

Shariati

Poormansouri

et al. 2015

Jundishapur J Chronic Dis Care

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Background:Patients with sickle cell disease, who must manage serious and unpredictable complications related to their disease, particularly chronic pain, suffer from numerous psychosocial problems such as depression, anxiety, stress, and disruption of interpersonal relationships; these problems often lead to fatigue and poor quality of life. Objectives: This study aimed to determine the effectiveness of self-management programs targeting pain, fatigue, depression, anxiety, and stress in sickle cell patients. Patients and Methods:This was a quasi-experimental study; participants were 53 patients with sickle cell disease who were referred to the Thalassemia Clinic of Ahvaz Shafa Hospital. Participants were recruited by census in 2013. Participants received a self-management program that was implemented in five sessions over 12 weeks. Levels of fatigue, depression, anxiety, and stress were assessed before and 24 weeks after the intervention; pain was assessed during the intervention and at a 24 week post-intervention follow-up using the fatigue severity scale (FSS), DASS21, and a pain record. Descriptive statistics, Fisher's exact test, Chi-square, independent t-tests, paired t-tests, repeated measures tests and correlations were used to analyze the data. Results: Scores for fatigue, anxiety, depression, and stress after the intervention were significantly decreased compared to before the intervention (P < 0.001). Repeated measures testing showed that mean scores for frequency and duration of pain decreased significantly during the 12 weeks of intervention, as well as during the 24 weeks of follow-up (P < 0.001). Conclusions:The results suggest the effectiveness of self-management programs on the reduction of pain, fatigue, anxiety, depression, and stress in sickle cell patients. Therefore, self-management programs are advisable in order to empower patients and assist their management of health-related problems.

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The Effectiveness of Self-Management Programs on Self-Efficacy in Patients With Sickle Cell Disease

Cited by 19 publications

References 48 publications

Effects of Home-Care Training on the Self-Efficacy of Patients with Beta Thalassemia Major

Effects of Home-Care Training on the Self-Efficacy of Patients with Beta Thalassemia Major

Community Health Workers as Support for Sickle Cell Care

The Effectiveness of Self Management Program on Pain, Fatigue, Depression, Anxiety, and Stress in Sickle Cell Patients: A Quasi-Experimental Study

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