The effect of wearing night splints for one year on the standing motor function of patients with Duchenne muscular dystrophy

Nishizawa, Hideo; Matsukiyo, Ayumi; Shiba, Naoko; Koinuma, Masayoshi; Nakamura, Akinori

doi:10.1589/jpts.30.576

Cited by 7 publications

(7 citation statements)

References 16 publications

(22 reference statements)

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“…to affect motor function after 1 y, 9 the travel restriction period in this study was only 3 mo. We therefore considered that minimum gross motor function could be maintained in this time frame.…”

Section: Discussionmentioning

confidence: 86%

Changes in motor function in Duchenne muscular dystrophy patients after travel restrictions due to COVID‐19

Nishizawa

Nakamura

2021

Muscle and Nerve

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Introduction/Aim This retrospective study aimed to quantify the changes in motor function in patients with Duchenne muscular dystrophy (DMD) due to the government‐imposed travel restrictions associated with the coronavirus disease 2019 (COVID‐19) pandemic. Methods Twelve DMD patients were enrolled in this investigation (mean ± SD age: 9.8 ± 3.6 y). Their physical characteristics and motor function were evaluated approximately 3 mo before, immediately before, and approximately 3 mo after the travel restrictions were decreed. Statistical comparisons were performed of the changes in motor function before and after the travel restrictions. Results The change in range of motion (ROM) of ankle dorsiflexion was significantly decreased after the travel restrictions. Changes in body mass index and other motor function parameters were not significant. Discussion An apparent decrease in the amount of physical activity due to travel restrictions in response to COVID‐19 negatively affected ankle dorsiflexion ROM but not other motor functions. A more sedentary lifestyle and lack of regular physical therapy services most likely contributed to this reduction. The use of remote rehabilitation tools with the involvement of physiotherapists may help mitigate such changes and prevent more severe physical decline.

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Section: Discussionmentioning

confidence: 86%

Changes in motor function in Duchenne muscular dystrophy patients after travel restrictions due to COVID‐19

Nishizawa

Nakamura

2021

Muscle and Nerve

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“…A daily preventive home stretching program should begin before the loss of passive range of motion. Study results of contracture management in DMD support the need of an individualized approach of optimal positioning, splinting, standing devices, serial casting, custom seating and power positioning components in mobility devices [ 21 , 22 ].…”

Section: Discussionmentioning

confidence: 99%

Establishing a telerehabilitation program for patients with Duchenne muscular dystrophy in the COVID-19 pandemic

Sobierajska-Rek

Mański

Jabłońska-Brudło

et al. 2020

Wien Klin Wochenschr

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Summary Background Duchenne muscular dystrophy is a genetic disease characterized by gradual loss of motor function, respiratory failure and cardiomyopathy. During the time of the global coronavirus pandemic, maintenance of social distancing and self-isolation might complicate regular multidisciplinary care of patients with Duchenne muscular dystrophy but on the other hand may lead to new medical care telehealth solutions. The aim of the study was to investigate patients’ situation regarding rehabilitation in the pandemic, to establish an online rehabilitation program and motor assessment and to determine the needs of telerehabilitation in this group. Methods The project involved 69 boys with Duchenne muscular dystrophy. The rehabilitation program was presented during online workshops for patients and caregivers. The same program was recorded on video and published in the internet. The online motor assessment tool consisted of six motor tests, caregivers were asked to perform the tasks and share a photograph of the patient’s posture using a designed app. Results In the nonambulant group the emphasis was placed on chest physiotherapy, stretching of upper extremities, positioning and wheelchair ergonomics. The program for the ambulant group focused on lower extremities stretching and full body exercises. Response rate for the workshops for ambulant patients was 29.7%, and only 9.0% for nonambulant patients. Videos showing exercises were displayed 132 times within a month. Conclusion With the physiotherapist guidance (online communication or video) patients with caregivers’ help can continue home based rehabilitation. Online videos/instructions/video guidelines are more acceptable by parents/caregivers of patients with Duchenne muscular dystrophy than live workshops.

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“…Besides preventing the increase of feet deformity, AFOs also improve postural control and stability. Study results of contracture management in DMD support the need for comprehensive individualized approaches consisting of optimal positioning, individualized use of splinting, orthotic interventions, standing devices, serial casting, and custom seating and power positioning components in mobility devices [ 5 , 24 , 25 ]. When hand contractures develop, resting hand splints may be considered [ 26 ].…”

Section: Healthcare Needs In the Transitional Agementioning

confidence: 99%

Transition from Childhood to Adulthood in Patients with Duchenne Muscular Dystrophy

et al. 2020

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Recently, progress has been observed in the knowledge about Duchenne Muscular Dystrophy (DMD), which is a severe and commonly diagnosed genetic myopathy in childhood, historically resulting in early death. Currently, there are a lot of methods available to improve the clinical course of DMD and extend patients’ life expectancy to more than 30 years of age. The key issue for DMD patients is the period between 16–18 years of age, which is described as a transition from pediatric- to adult-oriented healthcare. Adolescents and adults with DMD have highly complex healthcare needs associated with long-term steroid usage, orthopedic, ventilation, cardiac, and gastrointestinal problems. The current paper provides a comprehensive overview of special healthcare needs related to the transfer of a patient with DMD from child-oriented to adult-oriented care. Additionally, the need to organize effective care for adults with DMD is presented.

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The effect of wearing night splints for one year on the standing motor function of patients with Duchenne muscular dystrophy

Cited by 7 publications

References 16 publications

Changes in motor function in Duchenne muscular dystrophy patients after travel restrictions due to COVID‐19

Changes in motor function in Duchenne muscular dystrophy patients after travel restrictions due to COVID‐19

Establishing a telerehabilitation program for patients with Duchenne muscular dystrophy in the COVID-19 pandemic

Transition from Childhood to Adulthood in Patients with Duchenne Muscular Dystrophy

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