The effect of psoriasis on the sufferer

Stankler, L.

doi:10.1111/j.1365-2230.1981.tb02308.x

Cited by 44 publications

(28 citation statements)

References 5 publications

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“…Although most authors also did not find any difference in the level of stigmatization between genders (9,24,25), Ginsburg & Link (11) noticed that women experienced greater distress due to psoriasis and were more sensitive to stigmatization than their male counterparts. In addition, Perrot et al (26) reported that women experienced guilt and shame significantly more severely than men.…”

Section: Discussionmentioning

confidence: 95%

Patients with Psoriasis Feel Stigmatized

Hrehorów¹,

Salomon²,

Matusiak³

et al. 2012

Acta Derm Venerol

209

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Stigmatization is defined as having a discrediting mark that leads to social discrimination and alienation. The aim of this study was to estimate the level of stigmatization experienced by patients with psoriasis. A total of 102 individuals with psoriasis were recruited and was assessed using the 6-item Stigmatization Scale and the 33-item Feelings of Stigmatization Questionnaire. In addition, quality of life, stress and depression were evaluated. The majority of patients felt that they were stigmatized by psoriasis. The most bothersome aspect was that other people stared at their skin changes. According to the 33-item questionnaire, anticipation of rejection and feelings of guilt and shame were the major aspects of stigmatization, the level of which correlated significantly with pruritus intensity, stress prior to exacerbation, depressive symptoms and quality of life. In order to decrease the stigmatization level in patients with psoriasis, greater effort is needed to raise awareness in contemporary societies that psoriasis is not contagious, but is a disease like many other chronic conditions.

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Section: Discussionmentioning

confidence: 95%

Patients with Psoriasis Feel Stigmatized

Hrehorów¹,

Salomon²,

Matusiak³

et al. 2012

Acta Derm Venerol

209

View full text Add to dashboard Cite

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“…Previous studies have looked at selected groups in whom the disability might be expected to be worse 3 4 5 13 14. Nevertheless, even in those selected groups doctors underestimate the degree of disability caused by psoriasis 3 4.…”

Section: Discussionmentioning

confidence: 99%

“…Several researchers have shown that doctors probably underestimate the degree of psychological and social morbidity 3 4…”

Section: Introductionmentioning

confidence: 99%

Postal questionnaire study of disability in the community associated with psoriasis

O’Neill

Kelly

1996

BMJ

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Objective-To study the disability caused by psoriasis in patients recorded as having psoriasis by their general practitioner.Design-Postal questionnaire survey using the psoriasis disability index and SF-36.Setting-Five general practices in Cleveland. Subjects-Of 767 patients identified, 546 completed the questionnaire and 435 were eligible and gave informed consent.Main outcome measures-Scores on SF-36 and psoriasis disability index.Results-The psoriasis disability index score was highly negatively correlated with all eight of the SF-36 health measures (P<0.0001 for each), and the manual social classes scored higher than the non-manual social classes (P<0.0001). The manual social class group scored significantly lower scores than the controls on all the SF-36 scales, and the non-manual group scored significantly lower for physical and mental role limitation (P<0.0004 and P = 0.026), mental health (P<0.0001), energy and vitality (P<0.0004), and health perception (P<0.0001). Also, the manual group had poorer health perception on five of the SF-36 variables when compared with the non-manual group.Conclusions-Patients with psoriasis have an overall lower perception of their quality of life than healthy controls, and those in the lower social classes suffer a greater degree of disability from their disease than the higher social classes.

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“…Theories about marking and stigma were chosen, as one of the most serious side effects of living with psoriasis is the visibility of the disease (Jobling, 1976;Stankler, 1981). Our previous studies raised the question of visibility as a troublesome matter for the patient (Uttjek et al, 2004(Uttjek et al, , 2005.…”

Section: Theoretical Frame Of Referencementioning

confidence: 99%

Marked by Visibility of Psoriasis in Everyday Life

et al. 2007

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In this study, the authors aimed at a sociological approach to the individual's everyday life with psoriasis and to this end conducted qualitative interviews with 18 persons from a county in northern Sweden. The most difficult aspects of living with psoriasis were being marked by the visibility of psoriasis, especially in the younger ages, and the visibility of joint changes. Therefore, those with both rashes and joint changes felt marked and discredited in a twofold way. Commonly used coping strategies were routinization of both the treatment and the adjustment to the marking process, and acceptance, and these strategies developed with age. Most participants experienced a good quality of life but still could find nothing positive about psoriasis. The authors suggest efforts toward increased awareness among health care professionals of the marking process and future qualitative studies about experiences of psoriasis during adolescence.

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The effect of psoriasis on the sufferer

Cited by 44 publications

References 5 publications

Patients with Psoriasis Feel Stigmatized

Patients with Psoriasis Feel Stigmatized

Postal questionnaire study of disability in the community associated with psoriasis

Marked by Visibility of Psoriasis in Everyday Life

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