The Effect of Family Support, Transfusion Compliance and Self-Efficacy on the Quality of Life of Children With Thalassemia

Abstract

Thalassemia is a chronic disease that can affect quality of life. The purpose of this study was to determine the effect of family support, transfusion compliance and self-efficacy on the quality of life of children with thalassemia. This research was correlational with a cross-sectional approach. The sample consisted of 45 people. Data were collected using questionnaires, and statistical analysis consisted of descriptive data analysis of respondents’ characteristics, univariate analysis of each variable, simple linear regression analysis and multiple linear regression analysis. The results showed that family support affected quality of life (b = 0.628, p = 0.009), transfusion compliance affected quality of life (b = 7.294, p = 0.048), and self-efficacy affected quality of life (b = 0.374, p = 0.038). Also, family support, transfusion compliance and self-efficacy simultaneously affected the quality of life of children with thalassemia at Bhayangkara Setukpa Hospital, Sukabumi City (p < 0.001).
 Keywords: family support, transfusion compliance, self-efficacy, thalassemia, quality of life

Level of knowledge and awareness among parents regarding the care of children with thalassaemia

“…Most respondents strongly agreed that patients with thalassemia need frequent blood transfusions, consistent with the fact that transfusions are a frequent and important treatment option for thalassemia management. 1 Findings indicate that the participants thoroughly understood the therapeutic approaches required for thalassemia patients. The importance of genetic counselling and premarital screening tests was well understood by participants in terms of preventive measures.…”

“…Therefore, the incidence of thalassemia shows a significant increase in this country because of marriage, especially among individuals categorised as minor carriers. 1 When both couples marry and have children, they can potentially have a child with thalassemia primary disease. 1,2 This situation will significantly impact couples and challenge the Malaysian Ministry of Health, particularly in providing exceptional care.…”

“…1 When both couples marry and have children, they can potentially have a child with thalassemia primary disease. 1,2 This situation will significantly impact couples and challenge the Malaysian Ministry of Health, particularly in providing exceptional care.…”

Comparing the effects of self- care education by lecture and smartphone application on self-efficacy of patients with thalassemia

“…These problems and uncertainty about the future decrease the quality of life of these patients [ 4 ]. Increasing their self-efficacy levels improves the patient's quality of life [ 5 ]. Self-efficacy during disease is defined as the person's beliefs about his/ her ability to achieve the desired health outcome [ 6 ].…”

impact of educational guidelines-based video-assisted on nurses' performance regarding pediatric blood transfusion-dependent β- thalassemia major

“…With a carrier incidence of 9-10.2%, beta thalassemia major is thought to be the most prevalent chronic hemolytic anemia in Egypt. The sickness places a heavy financial and psychological burden on the families of those affected and the Egyptian government (Mariam et al, 2022).…”