The Effect of a Social Support Boosting Intervention on Stress, Coping, and Social Support in Caregivers of Children With HIV/AIDS

Hansell, Phyllis Shanley; Hughes, Cynthia B.; Caliandro, Gloria; Russo, Phyllis; Budin, Wendy C.; Hartman, Bruce W.; Hernandez, Olga C.

doi:10.1097/00006199-199803000-00006

Cited by 40 publications

(17 citation statements)

References 12 publications

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“…Social support has been shown to be a mediating factor for parenting stress in some 8,38,39 , but not all studies done on parenting children with disabilities. 11,40 The fact that the caregivers in this study had to deal with the stigma and isolation often associated with HIV diagnosis, as well as extreme poverty, may have made it more difficult for them to access social support. 25,31,32 The results of the parenting stress of grandparents were not isolated from the overall group due to the fact that the number of caregivers who were not mothers was so small.…”

Section: Discussionmentioning

confidence: 99%

Parenting stress of caregivers of young children who are HIV Positive

Potterton

Stewart²,

Cooper³

2008

Afr. J. Psych

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Abstract.Objective: Paediatric HIV remains a major challenge in Sub-Saharan Africa. Paediatric HIV is a multi-generational disorder with far-reaching implications for the whole family. Parenting stress in caregivers of HIV infected children has been studied in developed countries but never in South Africa. The aim of this study was to determine the extent of parenting stress in caregivers of children infected with HIV in South Africa. Further objectives were to monitor the levels of stress over one year after caregivers started attending a paediatric HIV clinic and to ascertain what factors were predictive of a decrease in parenting stress over that time. Method: One hundred and twenty two caregiver and children dyads were recruited into this study. Caregivers completed the Parenting Stress Index/ Short form at baseline and after six and 12 months. Demographic information was collected and the children's heights, weights and CD4 counts were recorded at each visit. Results: The families that participated in this study came from very poor socio-economic backgrounds. Eighty five percent of the children were still being cared for by their biological mothers. The parenting stress levels of the caregivers in this study were extremely high at baseline. Although the parenting stress levels did come down significantly over the study period (p< 0.001) they remained high and warrant further investigation and management. A better level of education, better housing facilities and fewer adults living in the household were the three most important factors predicting a decrease in parenting stress over a one year period. Conclusion: Parenting stress of caregivers of young children infected with HIV is extremely high and warrants further investigation and long term management.

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Section: Discussionmentioning

confidence: 99%

Parenting stress of caregivers of young children who are HIV Positive

Potterton

Stewart²,

Cooper³

2008

Afr. J. Psych

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“…Cohen, , 1995aM. Cohen, , 1995bElfert et al, 1991;Fleming et al, 1994;Gagliardi, 1991;Gallo, 1990;Gallo & Knafl, 1998;Hansell et al, 1998;Hirose & Ueda, 1990;Horner, 1998;Leonard et al, 1997;Martinson et al, 1994Martinson et al, , 1997McCarthy & Gallo, 1992;Mu & Tomlinson, 1997;Nelson & Edgil, 1998;Park & Martinson, 1998;Prudhoe & Peters, 1995;Ray & Ritchie, 1993;Rhiner et al, 1994;Robinson, 1993;Scharer & Dixon, 1989;Scott, 1998;Seideman et al, 1997;Snowdon et al, 1994;Spalding & McKeever, 1998;Sparacino et al, 1997;Stewart et al, 1994;Thomas et al, 1992;Tomlinson & Mitchell, 1992;Whyte, 1992 ceptualization. The figure portraying the FMSF has been altered, and sociocultural context is now defined as family members' perceptions of factors that influence the family's definition and management of childhood chronic conditions.…”

Section: The Revised Fmsfmentioning

confidence: 99%

Further Refinement of the Family Management Style Framework

2003

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This article reports the authors' efforts to expand the family management style framework and describes the revised framework. Framework development was based on a review of results from 46 studies focusing on family response to childhood chronic conditions. The review contributed to modification of the original framework and further specification of the three major components of the framework-definition of the situation, management behaviors, and perceived consequences. The implications of the revised framework for family research and practice and current efforts to develop a standardized measure of family management style are discussed.

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“…Such stressors often include the disclosure of HIV infection, social ostracism, fears of death, and family conflict. In addition, there are often instrumental problems in obtaining adequate health care services, medication, transportation, clothing, counseling, recreation, and housing (Hansell et al, 1998). Repeated hospitalizations and isolation from peers are known to have an adverse effect on the HIV-infected child's social, cognitive, and communicative development (Task Force on Pediatric AIDS : American Psychological Association, 1989).…”

Section: Psychology Of Hivmentioning

confidence: 99%

Children and Adolescents Living with HIV and AIDS: A Review

Brown

Lourie

Pao

2000

Child Psychology Psychiatry

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Worldwide, more than one million children are infected with human immunodeficiency virus (HIV) and in the United States it has become the sixth leading cause of death among 15-24-year-olds. Despite the trend of increasing rates of infection, advances in therapies have led to survival past 5 years of age for more than 65% of infected children. This global health threat will therefore continue to have a significant impact on child and adolescent psychiatry and psychology. This paper reviews current studies and reports on the consequences of the acquired immunodeficiency syndrome (AIDS) epidemic in the psychiatric care and development of children and adolescents infected by HIV. From a search of all the English-language-based literature on pediatric AIDS, 140 studies are reviewed which address HIV infection and its psychological and social implications. Several topics of mental health significance are examined: (1) the epidemiology of HIV, (2) neurocognitive development among those infected, (3) psychological impact of infection, and (4) the family and social context of HIV. The transition of HIV from an acute, lethal disease to a subacute, chronic disease has enormous implications for the neurocognitive and psychosocial development of children and families. As children and adolescents infected with HIV continue to live longer, normal developmental milestones and educational needs will take on new significance. Many children will continue to be adversely impacted by non-HIV factors such as poverty, inadequate medical services, and a lack of social support. This review outlines recent developments that hold promise to effectively reduce the treatment burden on the infected, their families, and health care providers and to decrease the incidence of transmission to the uninfected.

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The Effect of a Social Support Boosting Intervention on Stress, Coping, and Social Support in Caregivers of Children With HIV/AIDS

Cited by 40 publications

References 12 publications

Parenting stress of caregivers of young children who are HIV Positive

Parenting stress of caregivers of young children who are HIV Positive

Further Refinement of the Family Management Style Framework

Children and Adolescents Living with HIV and AIDS: A Review

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