The effect of a resilience improvement program for adolescents with complex congenital heart disease

Abstract

It is essential for healthcare providers to apply various programs, including those targeted at accepting illness, improving autonomy and independently managing disease, to adolescents with congenital heart disease.

Illness acceptance in adolescents: A concept analysis

“…Of the articles included in the analysis, six provided rudimentary definitions of illness acceptance . Consistent among these definitions were indicators of “reevaluating,” “adapting to,” “reconciling,” or “redefining” illness in a way that allows the adolescent to overcome their perceived limitations in a positive way.…”

“…Consistent among these definitions were indicators of “reevaluating,” “adapting to,” “reconciling,” or “redefining” illness in a way that allows the adolescent to overcome their perceived limitations in a positive way. For example, Lee, Lee, & Choi described illness acceptance as the process of redefining a crisis to find solutions to the difficulties that arise from a condition. Similarly, Voth and Sirois described the concept as the process of re‐evaluating a chronic condition in a way that diminishes the negative consequences and highlights the benefits (eg, confidence, disease control, resilience) of having a positive perception of illness.…”

“…Moreover, in their integrative review, Compas et al collectively summarized the clinical utility of illness acceptance, explaining that strategies supporting illness acceptance represent efforts to help adolescents adjust to the demands of an illness. Articles also portrayed illness acceptance as a dimension or component of associated concepts that are commonly associated with adolescence, such as resilience, adjustment to illness, and identity …”

“…Additionally, overcoming limitations involve addressing an adolescent's inner worries in a way that one is able to anticipate and accommodate to daily interruptions caused by their illness . Adolescents who accommodate to such interruptions subsequently become more accepting of other events that happen unexpectedly in relation to their disease or within their daily life . This highlights the importance of having characteristics of both flexibility and adaptability that allow an adolescent to accept the given limitations of an illness.…”

Assessing resiliency in paediatric rehabilitation: A critical review of assessment tools and applications

“…Five out of the 41 studies measured resiliency as an outcome of an intervention programme. Three interventions aimed at directly improving resiliency in youth with CHD (Lee et al, ), parents of children with ASD (Pandya et al, ), and parents of children with cancer or diabetes (Yi‐Fraizer et al, ). Lee et al () developed a resiliency improvement programme for adolescents with CHD, targeting five key psychosocial protective factors (i.e., positive emotions, cognitive flexibility, meaning, social support, and coping style).…”