The educational needs of neonatal nurses regarding neonatal palliative care

Peng, Niang-Huei; Chen, Chao-Huei; Huang, Li-Chi; Liu, Hsin‐Li; Lee, Min-Chun; Sheng, Ching-Ching

doi:10.1016/j.nedt.2013.04.020

Cited by 33 publications

(43 citation statements)

References 21 publications

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“…Central to their recommendations was the key role of specialist training/education and support something that the current study highlights is often missing for junior nurses, as they felt such strategies would appear to buffer the pressure. These findings corroborate existing work which suggests that current education provision to neonatal nurses does not meet their distinctive needs and indicate that the main areas requiring more focused educational input (Peng et al, 2013). This is particularly worrying given that educated and knowledgeable neonatal nurses and quality e-o-l care have been highlighted as being inextricably linked to quality care (Moon Fai and Gordon Arthur, 2009).…”

Section: Discussionsupporting

confidence: 78%

“…Much of the literature around neonatal palliative care focused on decision-making, ethical issues, parental involvement and nurses' attitudes with only a few studies exploring the actual anxieties of nursing staff and their education needs. Zhang & Lane (2013) support the theory that nursing and midwifery curricula are currently lacking in education on e-o-l care; these findings are supported by Peng et al (2013) who state that current education provision to neonatal nurses does not meet their distinctive needs and indicate that the main areas requiring greater educational support. Numerous studies confirm inadequate educational and professional preparation for carrying out e-o-l care (Engler et al, 2004;Contros et al, 2004;Thompson and Hall, 2007;Robertson et al, 2011).…”

Section: Literature Reviewmentioning

confidence: 67%

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‘No second chance’ – Junior neonatal nurses experiences of caring for an infant at the end-of-life and their family

Nurse

Price

2017

Journal of Neonatal Nursing

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Death of an infant is acutely stressful for parents and professionals. Little is known about junior nurses' experiences providing end-of-life care in Neonatal Units (NNU).This study aimed to better understand junior nurses' experiences providing end-oflife care in NNU. Neonatal nurses (n=12) with less than 3 years experience participated in a focus group. Nominal Group Technique (NGT) was used to build consensus around the challenges faced, alongside suggested developments in improving future care provision. Primary analysis involved successive rounds of ranking and decision making whilst secondary analysis involved thematic analysis.All issues, whether environmental, professional or social appeared driven by an awareness on the part of nurses, that there was no 'second chance' which created a huge pressure to 'get if right' for the infants and families. Regarding future care 2 areas of improvement identified were 'Education and Training' and Support. This paper unpacks these findings making recommendations for practice. words

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Section: Discussionsupporting

confidence: 78%

Section: Literature Reviewmentioning

confidence: 67%

‘No second chance’ – Junior neonatal nurses experiences of caring for an infant at the end-of-life and their family

Nurse

Price

2017

Journal of Neonatal Nursing

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“…Thus, ethical dilemmas with clear repercussions in clinical practice have emerged. Among these, a greater sensitivity to adopting therapeutic limitations and palliative care is emphasized when attempts to cure patients become futile and therefore clinically and ethically unjustifiable (Peng et al, 2013 Palliative care presupposes an acceptance of death as an unavoidable phenomenon, focusing on adequate care and comfort for the NB and support for the family. All phases of the newborn's disease should be taken into account during its progression until the final moment, with the aim of helping the NB to achieve a dignified death, respecting it as a person (Torres et al, 2013).…”

Section: Theoretical Frameworkmentioning

confidence: 99%

“…neonatology health professionals and grieving families often receive no assistance or support in fatigue, frustration or sadness when babies die or are in an end-of-life situation (Peng, Chen, Huang, Liu, Lee, & Sheng, 2013). The attitude of nursing professionals towards death is proportionately related to their attitude toward end-of-life care (Yang, Liu, & Liau, 2008).…”

Section: Introductionmentioning

confidence: 99%

End of life in neonatology: experiences of health professionals in neonatal palliative care

Carvalhais

Pereira

Pinho

et al. 2019

mill

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104 104 RESUMO Introdução: Recentemente, tem-se constatado que os profissionais que trabalham nas Unidades de Cuidados Intensivos Neonatais mostram um interesse crescente pelas decisões tomadas no final da vida e pela qualidade dos cuidados prestados aos recém-nascidos e suas famílias. Objetivos: Compreender as vivências dos profissionais de saúde relativamente aos cuidados paliativos neonatais. Métodos: Utilizou-se a metodologia de investigação qualitativa, exploratório-descritiva, de cariz fenomenológica. Resultados: Foram aplicados e analisados questionários a 15 profissionais a exercer numa UCIN do centro de Portugal. Os dados obtidos revelam carência de formação e inexistência de protocolos/guidelines, bem como necessidade de suporte psicológico a profissionais e família do RN. Conclusões: A formação contínua e específica, o apoio e acompanhamento psicológico dos profissionais e das famílias devem constituir o pilar dos cuidados paliativos neonatais.

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“…However, the way services are organized and the reality of health contexts can create barriers for the approximation between the professionals, the person being cared for and the family, not allowing this encounter to occur in an effective and sensitive way. 19 It is a challenge for professionals to approach the families who are in mourning and to support them in facing this phase. Health professionals often find themselves unable to play this role.…”

Section:  Care For the Family In The Context Of Neonatal Lossmentioning

confidence: 99%

O cuidado à família diante da perda neonatal: uma reflexão sob a ótica da Teoria da Complexidade

Ichikawa

Sampaio

Sá

et al. 2017

Rev enferm UFPE on line.

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Objective: to reflect on care for the family in the face of neonatal loss. Method: a qualitative, descriptive, theoretical and philosophical study, using Edgar Morin's Theory of Complexity as a basis for this reflection. Results: the questions examined in this essay may support the reflection of health professionals, seeking a look at a family universe as a whole, without fragmenting the reality experienced by these families, breaking with the simplifying vision and allowing a closer understanding of reality. Conclusion: this reflection contributed to the better understanding of this difficult moment in family life and, thus, to favor the development of actions with which health professionals can assist in the care of these families. Descriptors: Family; Perinatal Death; Grief; Nursing; Nonlinear Dynamics. RESUMOObjetivo: refletir sobre o cuidado à família diante da perda neonatal. Método: estudo qualitativo, descritivo, teórico e filosófico, que utilizou a Teoria da Complexidade, de Edgar Morin, como embasamento para esta reflexão. Resultados: as questões examinadas neste ensaio podem subsidiar a reflexão dos profissionais de saúde, buscando um olhar para um universo familiar como um todo, sem fragmentar a realidade vivenciada por estas famílias, rompendo com a visão simplificadora e permitindo uma compreensão mais próxima do real. Conclusão: esta reflexão contribuiu para a melhor compreensão deste momento tão difícil na vida familiar e, assim, favorecer o desenvolvimento de ações com as quais profissionais de saúde possam auxiliar no cuidado a estas famílias. Descritores: Família; Morte Perinatal; Pesar; Enfermagem; Dinâmica não linear. RESUMENObjetivo: reflexionar sobre el cuidado a la familia ante la pérdida neonatal. Método: estudio cualitativo, descriptivo, teórico y filosófico, que utilizó la Teoría de la Complejidad, de Edgar Morin, como basamento para esta reflexión. Resultados: las cuestiones examinadas en este ensayo pueden subsidiar la reflexión de los profesionales de salud, buscando una mirada al universo familiar como un todo, sin fragmentar la realidad vivida por estas familias, rompiendo con la visión simplificadora y permitiendo una comprensión más cercana a lo real. Conclusión: esta reflexión contribuyó a la mejor comprensión de este momento tan difícil en la vida familiar y así, favorecer el desarrollo de acciones con las que profesionales de salud puedan auxiliar en el cuidado a estas familias. Descriptores: Familia; Muerte Perinatal; Pesar; Enfermería; Dinámicas no Lineales.

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The educational needs of neonatal nurses regarding neonatal palliative care

Cited by 33 publications

References 21 publications

‘No second chance’ – Junior neonatal nurses experiences of caring for an infant at the end-of-life and their family

‘No second chance’ – Junior neonatal nurses experiences of caring for an infant at the end-of-life and their family

End of life in neonatology: experiences of health professionals in neonatal palliative care

O cuidado à família diante da perda neonatal: uma reflexão sob a ótica da Teoria da Complexidade

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