The economic burden of caregiving on families of children and adolescents with cancer: A population‐based assessment

Pagano, Eva; Baldi, Ileana; Mosso, Maria Luisa; Montezemolo, Luca Cordero di; Pastore, Guido; Merletti, Franco

doi:10.1002/pbc.24904

Cited by 36 publications

(42 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Characteristics at the time of diagnosis associated with highest risk for treatment‐related financial burden included baseline low‐income, single‐parent status, longer treatment protocols, and receipt of care far from home . One population‐based study identified families of younger children and those with poorer prognoses as being at risk . Caregivers who experienced employment disruptions reported higher financial burden suggesting a need for ongoing reassessment of risk…”

Section: Resultsmentioning

confidence: 99%

Assessment of Financial Burden as a Standard of Care in Pediatric Oncology

Pelletier

Bona

2015

Pediatric Blood & Cancer

104

162

View full text Add to dashboard Cite

Family financial hardship has emerged as a burden of pediatric cancer treatment with negative implications for family well‐being. As part of an extensive project to create evidence‐based standards for the psychosocial care of children with cancer, we performed a literature review of pediatric cancer‐associated financial hardship utilizing six databases, and identified 24 publications for incorporation into this review. Financial hardship during childhood cancer was found to affect a significant proportion of the population and to negatively impact family well‐being. Existing literature supports a strong recommendation for assessment of financial hardship as a component of comprehensive psychosocial care in pediatric oncology. Pediatr Blood Cancer © 2015 Wiley Periodicals, Inc.

show abstract

Section: Resultsmentioning

confidence: 99%

Assessment of Financial Burden as a Standard of Care in Pediatric Oncology

Pelletier

Bona

2015

Pediatric Blood & Cancer

104

162

View full text Add to dashboard Cite

show abstract

“…Haematological cancers anticipate an intense treatment protocol guided by chemotherapy with a long treatment duration (up to 2.5 years for acute lymphoblastic leukaemia) . Moreover, regardless of any health condition, younger children require more parental care what more strongly interferes with the parents' professional life.…”

Section: Discussionmentioning

confidence: 99%

The impact of childhood cancer on parents' socio‐economic situation—A systematic review

et al. 2019

View full text Add to dashboard Cite

Objective Taking care of children diagnosed with cancer may have considerable consequences on parents' socio‐economic situation. Our systematic review aimed to evaluate and synthesise the evidence on the impact of childhood cancer on parents' socio‐economic situation. Methods Systematic literature searches for articles published between January 2000 and January 2019 were performed in PubMed, Scopus, and PsycINFO. Findings of eligible articles were narratively synthesised and quality appraised. Results Our systematic review included 35 eligible articles. Childhood cancer had a substantial impact on parents' socio‐economic situation across all studies. This impact varied largely by geographical region. We observed a high prevalence of disruptions in parental employment such as job quitting or job loss, particularly among mothers. The associated income losses further contributed to families' perceived financial burden in addition to increased cancer‐related expenses. Adverse socio‐economic consequences were most pronounced shortly after diagnosis, however, persisted into early survivorship for certain groups of parents. We identified families of children diagnosed with haematological cancers, younger age at diagnosis, and lower parental socio‐economic position to be at particular risk for adverse socio‐economic consequences. Conclusions Following the child's cancer diagnosis, parents experience a broad range of adverse socio‐economic consequences. Further effort is needed to systematically implement an assessment of financial hardship in paediatric oncology together with appropriate support services along the cancer trajectory.

show abstract

“…Therefore, we have underestimated the total cost of outpatient prescription drugs. We did not include out‐of‐pocket or time costs, which can be substantial for families even with publicly funded health care …”

Section: Discussionmentioning

confidence: 99%