The Dyadic Experience of Managing Heart Failure

Kim, Juliah Shay Ryann; Risbud, Rashmi; Gray, Caroline; Banerjee, Dipanjan; Trivedi, Ranak

doi:10.1097/jcn.0000000000000605

Cited by 17 publications

(29 citation statements)

References 31 publications

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“…35 36 The love and affection of the relationship motivate families to feel responsible for the patients. 37 Similar to our finding, grandchildren were reported as playing a highly supportive role, possibly because children do not see their grandparent as an ill person, hence offering freedom in the role as a grandparent. 38 Furthermore, in our study, some patients and family members experienced strained relationships.…”

Section: Heart Failure and Cardiomyopathiessupporting

confidence: 88%

“…Our findings, in line with previous studies, indicate that interpersonal relationships within the family are an important factor in managing HF. 37 The findings in this study must be considered with some limitations. Most patients were men (n=6), had mild HF (New York Heart Association classifications I and II) and were in relatively stable condition.…”

Section: Heart Failure and Cardiomyopathiesmentioning

confidence: 85%

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Living with heart failure: perspectives of ethnic minority families

2020

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BackgroundThe family perspective on heart failure (HF) has an important role in patients’ self-care patterns, adjustment to the disease and quality of life. Little is known about families’ experiences of living with HF, particularly in ethnic minority families. This study describes the experiences of Iranian families living with HF as an ethnic minority family in Denmark.MethodsIn this descriptive qualitative study, we conducted eight face-to-face joint family interviews of Iranian patients with HF and their family members living in Denmark. We used content analysis with an inductive approach for data analysis.ResultsWe identified three categories: family daily life, process of independence and family relationships. Families were faced with physical restrictions, emotional distress and social limitations in their daily lives that threatened the patients’ independence. Different strategies were used to promote independence. One strategy was normalisation and avoiding the sick role; another strategy was accepting and adjusting themselves to challenges and limitations. The independence process itself had an impact on family relationships. Adjusting well to the new situation strengthened the relationship, while having problems in adjustment strained the relationship within the family.ConclusionsThis study highlights the process of independence as perceived by families living with HF. It is crucial to both families and healthcare professionals to maintain a balance between providing adequate support and ensuring independence when dealing with patients with HF. Understanding patients’ stories and their needs seems to be helpful in gaining this balance.

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Section: Heart Failure and Cardiomyopathiessupporting

confidence: 88%

Section: Heart Failure and Cardiomyopathiesmentioning

confidence: 85%

Living with heart failure: perspectives of ethnic minority families

2020

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“…Since this review, 25 to our knowledge, six additional studies in the cardiac context were published. [26][27][28][29][30][31] Findings highlighted difficulties living with the uncertainty of the disease and managing lifestyle changes, feelings of worry and vigilance, and caregiver burden and support. Patients and partners also reported that caring involvement brought the couple closer together or, the opposite, a feeling of loss of the partner relationship and role changes.…”

Section: Open Accessmentioning

confidence: 99%

Learning a new way of living together: a qualitative study exploring the relationship changes and intervention needs of patients with cardiovascular disease and their partners

et al. 2020

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ObjectivesCardiovascular disease (CVD) not only affects the patient, but has implications for the partner. Emerging evidence suggests that supportive couple relationships enhance CVD outcomes and reduce patient and partner distress. To date, however, little research has been done to address the couple relationship as a potentially important component of cardiac care. This article examines the impact of CVD on the couple relationship and assesses the perceived needs and desired intervention components of patients with CVD and their partners.DesignQualitative study using directed and conventional content analysis.SettingSingle-centre, tertiary cardiac care hospital that serves a population of 1.4 million in the Champlain region of Ontario, Canada.ParticipantsPatients with CVD and their partners (n=32, 16 couples) participated in focus groups. Patients were mainly male (75%), white (87.5%), aged 64.4 years (range 31–81 years), with varied cardiac diagnoses (50% coronary artery disease; 18.75% valve disease; 18.75% heart failure; 12.5% arrhythmia).ResultsFive categories were generated from the data reflecting changes within the couple relationship as a result of CVD: (1) emotional and communication disconnection; (2) overprotection of the patient; (3) role changes; (4) adjustment to lifestyle changes; and (5) positive relationship changes. Three categories were constructed regarding intervention needs and desired resources: (1) practical resources; (2) sharing with peers; and (3) relationship enhancement.ConclusionsOverall, the data suggest that there were profound changes in the couple relationship as a result of CVD, and that there is considerable need to better support the caregiving spouses and the couple as a unit. These results call for interventions designed to provide instrumental support, peer-sharing opportunities and relationship quality enhancement to help couples cope with CVD. Future studies should examine whether couples-based programming embedded into cardiac rehabilitation can be effective at improving relationship quality and reducing patient and partner stress in the aftermath of a cardiac event.

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“…Patients and family members face challenges and limitations in their daily lives. For instance, physical restrictions caused by HF may limit the physical activities of the patients and family joint activities, which affects the activities' dimension of family health in patients and their family members (Kim et al, 2020;Shamali et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

“…Discordance between patient and family members, however, leads to inadequate symptom management and higher levels of fatigue and annoyance in the dyad (Dunbar et al, 2008). Family functioning is also an important element in self-care behaviours, the adjustment process, and medication adherence in HF (Kim et al, 2020;Lee et al, 2015). Furthermore, the challenges and limitations imposed by HF may affect family health by changing family daily life, roles, responsibilities, well-being, and activities (Aldred et al, 2005), accordingly affecting family functioning.…”

Section: Introductionmentioning

confidence: 99%