The Doctor-Patient Relationship

Gordon, Christopher J.; Beresin, Eugene V.

doi:10.1016/b978-0-323-04743-2.50003-2

Cited by 12 publications

(8 citation statements)

References 35 publications

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“…Nevertheless, this highlights the importance of patient-professional relationships and the impact of power dynamics. These relationships involve a careful balance between vulnerability and trust; impaired relationships result in poor outcomes and patient dissatisfaction (Gordon & Beresin, 2016). Interestingly, in Crane et al (2018), professionals felt parents entered 'knowing' their child had ASD and were reluctant to consider otherwise.…”

Section: Discussionmentioning

confidence: 99%

The untold perspective: Parents’ experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis

Bendik

Spicer-White

2021

Autism

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This research explored parents’ lived experience of the autism spectrum disorder assessment process when a diagnosis was not received. Six mothers and one stepfather were interviewed and transcripts were analysed using interpretative phenomenological analysis. The identified themes: ‘My child is different’, The emotional and psychological journey and Understanding the outcome, illustrated issues encountered by parents during the assessment process and parenting a child with autistic-like characteristics but without a valid label. As a previously understudied area, clinical implications at the professional, service and policy level are discussed. Lay abstract Autism is diagnosed by a process of child assessment and parental interview. It has been well-documented by parents of children who received a diagnosis of autism, that the process can be lengthy and cause distress for families. Nevertheless, the outcome often compensated for the difficult assessment journey as it enables families to gain access to further information, support and intervention. However, less is known about the assessment process from parents who undertake the same process but at the end are told their child does not meet the diagnostic criteria, meaning no diagnosis is given. We interviewed six parents in North Wales, whose child did not receive a diagnostic of autism following an assessment. During the interview, parents were asked about their experience of the autism assessment process. We found that parents reflected on their experience according to three themes: (1) parents tried to navigate how they could make sense of their child being different despite not receiving a diagnosis; (2) parents referred to the assessment process as a journey, which encompassed many emotional and psychological components and (3) parents discussed what it was like to hear a non-diagnosis outcome, in terms of feeling relieved, confused and raising questions for the child’s future. These findings are important for professionals working in autism assessment services to help improve the assessment process for families, particularly when the assessment does not result in a diagnosis.

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Section: Discussionmentioning

confidence: 99%

The untold perspective: Parents’ experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis

Bendik

Spicer-White

2021

Autism

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“…In pursuit of more and more comprehensive medical technologies, doctors inevitably tend to perceive a patient as an object of treatment rather than a personality, a subject of their own life, thus losing an opportunity to maintain a true therapeutic relationship. There are numerous studies which systematize various barriers and their causes in doctor-patient communication (Ong et al 1995;Ha & Anat & Longnecker 2010;Chipidza & Wallwork & Stern 2015;Gordon & Beresin 2016). The hospital culture imposes its own rules and even values on a patient (for instance, the absolute value of the fight for health).…”

Section: Who Is In Need Of Joy? the Trauma Of The Patientmentioning

confidence: 99%

Untitled

2021

FEJF

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Bringing into focus the ways of how to approach trauma instead of defining the object of research is becoming increasingly important. This also indicates that the range of approaches to trauma that informs cultural inquiry is widening, and is moving away from one singular paradigm posited as universal. Trauma scholars have demonstrated, on the one hand, the importance of particular experiences, specific cases, individual features of experiencing, remembering, and narrating trauma. On the other hand, they have pointed out the impact of cultural "scripts" shaped by broader cultural understandings and social and cultural regulations and preferences that shape the possibilities of the representation of traumatic experience. This special issue seeks to recognize and negotiate the individual and collective dimensions of trauma as well as their interwovenness, with a focus on the (post)-Soviet and Eastern European experience. It does so by addressing the generalizing theoretical models as well as the practical, material, and experimental aspects of trauma. Thus, it seeks to disentangle and clarify the links between the collective and the individual, the theoretical and the practical, and finally, the universal and the specific, the global and the local.

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“…Several studies have shown that good doctor-patient relationship positively effects health outcome [138–140]. Therefore, even if AI is successfully introduced in clinical practice human interaction may still be required in healthcare, particularly in areas with social interaction and a demand for a holistic perspective.…”

Section: The Hf Paradigm Shift To Pppmmentioning

confidence: 99%

Artificial intelligence supported patient self-care in chronic heart failure: a paradigm shift from reactive to predictive, preventive and personalised care

et al. 2019

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Heart failure (HF) is one of the most complex chronic disorders with high prevalence, mainly due to the ageing population and better treatment of underlying diseases. Prevalence will continue to rise and is estimated to reach 3% of the population in Western countries by 2025. It is the most important cause of hospitalisation in subjects aged 65 years or more, resulting in high costs and major social impact. The current “one-size-fits-all” approach in the treatment of HF does not result in best outcome for all patients. These facts are an imminent threat to good quality management of patients with HF. An unorthodox approach from a new vision on care is required. We propose a novel predictive, preventive and personalised medicine approach where patients are truly leading their management, supported by an easily accessible online application that takes advantage of artificial intelligence. This strategy paper describes the needs in HF care, the needed paradigm shift and the elements that are required to achieve this shift. Through the inspiring collaboration of clinical and high-tech partners from North-West Europe combining state of the art HF care, artificial intelligence, serious gaming and patient coaching, a virtual doctor is being created. The results are expected to advance and personalise self-care, where standard care tasks are performed by the patients themselves, in principle without involvement of healthcare professionals, the latter being able to focus on complex conditions. This new vision on care will significantly reduce costs per patient while improving outcomes to enable long-term sustainability of top-level HF care.

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The Doctor-Patient Relationship

Cited by 12 publications

References 35 publications

The untold perspective: Parents’ experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis

The untold perspective: Parents’ experiences of the autism spectrum disorder assessment process when the child did not receive a diagnosis

Untitled

Artificial intelligence supported patient self-care in chronic heart failure: a paradigm shift from reactive to predictive, preventive and personalised care

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