The (dis)appearance of the dying patient in generalist hospital and care home nurses' talk about the patient

Schou, Kirsten Costain; Alvsvåg, Herdis; Blåka, Gunnhild; Gjengedal, Eva

doi:10.1111/j.1466-769x.2008.00374.x

Cited by 5 publications

(6 citation statements)

References 22 publications

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“…Elderly people were repeatedly said not to receive a ‘just’ allocation of resources [172], [184], [189], [192]. Also, ethical dilemmas caused by the use of ‘high technology’ were frequently highlighted [188], [190], [192], [193].…”

Section: Resultsmentioning

confidence: 99%

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

et al. 2012

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Aim Culture is becoming increasingly important in relation to end of life (EoL) care in a context of globalization, migration and European integration. We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries. Methods We scoped the literature for Germany, Norway, Belgium, the Netherlands, Spain, Italy and Portugal, carrying out electronic searches in 16 international and country-specific databases and handsearches in 17 journals, bibliographies of relevant papers and webpages. We analysed the literature which was unearthed, in its entirety and by type (reviews, original studies, opinion pieces) and conducted quantitative analyses for each country and across countries. Qualitative techniques generated themes and sub-themes. Results A total of 868 papers were reviewed. The following themes facilitated cross-country comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. The frequencies of themes varied considerably between countries. Sub-themes reflected issues characteristic for specific countries (e.g. culture-specific disclosure in the southern European countries). The work from the seven European countries concentrates on cultural traditions and identities, and there was almost no evidence on ethnic minorities. Conclusion This scoping review is the first comparative exploration of the cultural differences in the understanding of EoL care in these countries. The diverse body of evidence that was identified on socio-cultural issues in EoL care, reflects clearly distinguishable national cultures of EoL care, with differences in meaning, priorities, and expertise in each country. The diverse ways that EoL care is understood and practised forms a necessary part of what constitutes best evidence for the improvement of EoL care in the future.

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Section: Resultsmentioning

confidence: 99%

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

et al. 2012

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“…Gustafson (1972) describes how, long before biological or psychological death, society (staff, visitors, peers) forces the resident into a premature social death by terminating all efforts to maintain the resident's social life. Life in a nursing home thus carries the imminent threat of loss, whether it is a loss of autonomy, independence, familiarity, individuality, identity, social context, dignity or health (Cook 2010; Harnett and Jönson 2010; Lee, Simpson and Froggat 2013; Riedl, Mantovan and Them 2013; Schou et al 2008; Scourfield 2007; Winterton and Warburton 2012). Nursing homes are places which symbolise the ‘ultimate loss’ of personhood (Ryvicker 2006: 1).…”

Section: Introductionmentioning

confidence: 99%

A fun, active and sociable life on display – nursing home presentations on Instagram

Carlstedt

2018

Ageing and Society

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Swedish nursing homes' use of Instagram has increased vastly in the past few years. Instagram is understood as a means to manage the image they wish to mediate to the public. This article examines what is displayed in the nursing homes' Instagram accounts, and what kind of reality is thereby constructed. The data consist of  Instagram images from four nursing homes' Instagram accounts. It is found that nursing home life is primarily depicted on Instagram as active, sociable and fun, with informal, friendly relations between staff and residents, and residents able to continue to live as before, if not better, and to interact with surrounding society. Frailty, boredom, loneliness and death were absent from the data, as were mundane care activities. The article concludes that the presentations in the Instagram accounts challenge the traditional idea of nursing homes as total institutions, and the decline and loss associated with living in such institutions; however, there is a risk that these idyllic presentations conceal the inherent problems of nursing home life.

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“…Frequent topics in the Norwegian literature were healthcare spending and accounting. Elderly people were repeatedly said not to receive a 'just' allocation of resources [172,184,189,192]. Also, ethical dilemmas caused by the use of 'high technology' were frequently highlighted [188,190,192,193].…”

Section: Norwaymentioning

confidence: 99%

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

Gysels¹,

Evans²,

Meñaca³

et al. 2020

The Ethical Challenges of Emerging Medical Technologies

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Aim: Culture is becoming increasingly important in relation to end of life (EoL) care in a context of globalization, migration and European integration. We explore and compare socio-cultural issues that shape EoL care in seven European countries and critically appraise the existing research evidence on cultural issues in EoL care generated in the different countries. Methods: We scoped the literature for Germany, Norway, Belgium, the Netherlands, Spain, Italy and Portugal, carrying out electronic searches in 16 international and country-specific databases and handsearches in 17 journals, bibliographies of relevant papers and webpages. We analysed the literature which was unearthed, in its entirety and by type (reviews, original studies, opinion pieces) and conducted quantitative analyses for each country and across countries. Qualitative techniques generated themes and sub-themes. Results: A total of 868 papers were reviewed. The following themes facilitated crosscountry comparison: setting, caregivers, communication, medical EoL decisions, minority ethnic groups, and knowledge, attitudes and values of death and care. The frequencies of themes varied considerably between countries. Sub-themes reflected issues characteristic for specific countries (e.g. culture-specific disclosure in the southern European countries). The work from the seven European countries concentrates on cultural traditions and identities, and there was almost no evidence on ethnic minorities. Conclusion: This scoping review is the first comparative exploration of the cultural differences in the understanding of EoL care in these countries. The diverse body of evidence that was identified on socio-cultural issues in EoL care, reflects clearly distinguishable national cultures of EoL care, with differences in meaning, priorities, and expertise in each country. The diverse ways that EoL care is understood and practised forms a necessary part of what constitutes best evidence for the improvement of EoL care in the future.

show abstract

The (dis)appearance of the dying patient in generalist hospital and care home nurses' talk about the patient

Cited by 5 publications

References 22 publications

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

A fun, active and sociable life on display – nursing home presentations on Instagram

Culture and End of Life Care: A Scoping Exercise in Seven European Countries

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