The dilemma of “to-be or not-to-be”: needs and expectations of the Taiwanese cadaveric organ donor families during the pre-donation transition

Shih, Frank Y.; Lai, Ming-Kuen; Lin, Min-Heuy; Lin, Hung-Ru; Tsao, C.-I.; Duh, Bau-Ruei; Chu, Shu‐Hsun

doi:10.1016/s0277-9536(00)00378-6

Cited by 36 publications

(39 citation statements)

References 16 publications

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“…In particular, some families felt that the eyes should not be removed as they are the “window to the soul” or their relative may not be able to see God after death. Many also placed special meaning on the heart, which they believed was the “centre of the person” or the “seat of love.” Some did not want to consent to donation as they were concerned about their relative's appearance and wanted the body to remain “as pretty as possible” .…”

Section: Respecting the Donormentioning

confidence: 99%

Family Perspectives on Deceased Organ Donation: Thematic Synthesis of Qualitative Studies

Ralph

Chapman

Gillis

et al. 2014

American Journal of Transplantation

109

160

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A major barrier to meeting the needs for organ transplantation is family refusal to give consent. This study aimed to describe the perspectives of donor families on deceased donation. We conducted a systematic review and thematic synthesis of qualitative studies. Electronic databases were searched to September 2012. From 34 studies involving 1035 participants, we identified seven themes: comprehension of sudden death (accepting finality of life, ambiguity of brain death); finding meaning in donation (altruism, letting the donor live on, fulfilling a moral obligation, easing grief); fear and suspicion (financial motivations, unwanted responsibility for death, medical mistrust); decisional conflict (pressured decision making, family consensus, internal dissonance, religious beliefs); vulnerability (valuing sensitivity and rapport, overwhelmed and disempowered); respecting the donor (honoring the donor's wishes, preserving body integrity) and needing closure (acknowledgment, regret over refusal, unresolved decisional uncertainty, feeling dismissed). Bereaved families report uncertainty about death and the donation process, emotional and cognitive burden and decisional dissonance, but can derive emotional benefit from the “lifesaving” act of donation. Strategies are needed to help families understand death in the context of donation, address anxieties about organ procurement, foster trust in the donation process, resolve insecurities in decision making and gain a sense of closure.

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Section: Respecting the Donormentioning

confidence: 99%

Family Perspectives on Deceased Organ Donation: Thematic Synthesis of Qualitative Studies

Ralph

Chapman

Gillis

et al. 2014

American Journal of Transplantation

109

160

View full text Add to dashboard Cite

show abstract

“…11 In other settings such as Taiwan, Mexico, and elsewhere, popular religious beliefs ranging from Catholicism to Buddhism provoke unease about whether removing organs from the body will compromise the afterlife in some way-making resurrection or peaceful passage into a next life impossible, for instance. 12,13 On the living donor side cultural beliefs and values are critical as well. In Mexico, the fact that organs most typically come from living related donors is often seen as a reflection of the central role of the family in Mexican culture, taken as a 'natural' extension of familial love and responsibility in that setting.…”

Section: Treatment Beliefsmentioning

confidence: 99%

Anthropological issues in renal care

Crowley‐Matoka

2013

Kidney International Supplements

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This article provides a brief overview of the critical role that culture can play in renal care, drawing on examples from the social scientific literature to discuss cultural beliefs in three key domains at issue in renal care: beliefs about the kidney itself, about kidney disease, and about kidney treatments. Examining cultural variation within these three key domains across settings ranging from Mexico, USA, China, Egypt, Japan, Turkey, and others provides a means for thinking more deeply and strategically about the role of culture in caring for nephrology patients. The article concludes by offering specific practice strategies designed to strengthen the understanding and communication between clinicians and patients around cultural issues in renal care.

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“…39 He concluded that "In the circumstances of necessity and when the donor had expressed consent, while in life, donation represents an act of charity." 39 In a study on organ donation in Taiwan, 40 it was found that religious beliefs regarding preservation of the ideal image of the deceased were the most important factors contributing to the decision to donate, especially in regards to tissues such as skin and bones. The chances for the deceased to have a better afterlife were considered to be compromised if the appearance of the donor was damaged.…”

Section: Composite Tissue Allotransplantationmentioning

confidence: 99%

“…The chances for the deceased to have a better afterlife were considered to be compromised if the appearance of the donor was damaged. The donation of skin and bones was felt to have a negative impact on the donor's family, 40 and thus this view could have a potentially negative impact on acceptance of hand and face transplantation.…”

Section: Composite Tissue Allotransplantationmentioning

confidence: 99%

Addressing Religious and Cultural Differences in Views on Transplantation, Including Composite Tissue Allotransplantation

Siemionow

Rampazzo

Gharb

2011

Annals of Plastic Surgery

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Composite tissue allotransplantation is a rapidly developing field in plastic and reconstructive surgery and therefore imposes an obligation upon plastic and transplant surgeons to familiarize themselves with some unique aspects of this new discipline. The visible nature of extremities, and the face, presents a special hurdle when seeking the consent of the donor's family, as well as the recipient. Religious and sociocultural backgrounds of both the donor and recipient may have an important impact on the outcome of the donation and acceptance process. The purpose of this review is to present the current positions of major religious groups on allotransplantation and the cultural responses to the religious stances. In this context, we have investigated whether there are any specific religious or cultural restrictions against the practice of composite tissue allotransplantation.

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The dilemma of “to-be or not-to-be”: needs and expectations of the Taiwanese cadaveric organ donor families during the pre-donation transition

Cited by 36 publications

References 16 publications

Family Perspectives on Deceased Organ Donation: Thematic Synthesis of Qualitative Studies

Family Perspectives on Deceased Organ Donation: Thematic Synthesis of Qualitative Studies

Anthropological issues in renal care

Addressing Religious and Cultural Differences in Views on Transplantation, Including Composite Tissue Allotransplantation

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