The development of pediatric oncology-hematology in the Russian Federation: the experience of collaboration between the National Society of Pediatric Hematologists and Oncologists and the National Medical Research Center

Abstract

The basis for constructing a vertically integrated management system in the healthcare sector in the Russian Federation is the model of functioning of national centers. One of the key components in achieving success is the interaction of the national center with a leading national society. The aim of the article is to present the experience of joint work of the National Society of Pediatric Hematologists and Oncologists (NSPHO) with the Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology in the field of development of pediatric oncology-hematology in the Russian Federation. In order to accomplish the task of building a system for organizing medical care for children in pediatric oncology-hematology, a comprehensive development program was implemented, which included collecting data on the structure of the service through questionnaires in the regions, obtaining expert opinion and the subsequent creation of a service passport using data visualization. In addition, the experience of creating professional standards and the concept of a unified approach in the field of training in the specialties “Pediatric Oncology” and “Hematology” using the technology of continuing medical education are reflected. The result of the work was the formation of a single plan for the organization of the service of pediatric oncology-hematology, developed by the NSPHO in conjunction with the Dmitry Rogachev National Medical Research Center of Pediatric Hematology, Oncology and Immunology with the support of the National Medical House and under the leadership of the Ministry of Health of Russia.

Children’s malignancies and their accounting: global and domestic trends

“…Представляя собой специальные программы сбора, хранения и анализа информации о раке в определенной популяции, они позволяют оценить выживаемость в регионах в зависимости от вида лечения и своевременности проведения диагностических мероприятий в каждом конкретном случае и в регионе в целом [5]. На современном этапе развития детской онкологической службы, когда программы ранней диагностики и скрининга включены практически во все международные и национальные стратегии по борьбе со ЗНО, четкий учет и регистрация пациентов являются основой для их реализации, так как позволяют оптимизировать маршрутизацию больных, спрогнозировать объем потребления медицинских услуг, оценить необходимый уровень подготовки персонала и организовать центры паллиативной помощи [6,7].…”