The development of a web‐based resource to provide information and psychosocial support to informal cancer carers in hospitals in Vietnam

Santin, Olinda; Jenkins, Chris; Nghiem, Hoa Le Phuong; Prue, Gillian; Reid, Joanne; Lohfeld, Lynne; Ho, Hien Thi

doi:10.1002/pon.5368

Cited by 17 publications

(34 citation statements)

References 17 publications

(26 reference statements)

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“…Our data demonstrate that slightly >50% of patients with DM possess adequate DM health literacy in Gansu Province, China, which is substantially lower compared with those patients with DM in the developed countries (90%) (31). The big difference between our current finding (50%) and others within the developed countries (90%) may be due to the timing of the establishment/development of internet infrastructure, which has been much early in the developed countries; whereas the development of the internet has occurred at least a decade later in Gansu, China (32). Moreover, Gansu Province has the lowest economic GDP in China, which would substantially impact business and education, and also internet infrastructure, compared with the highest GDP regions in China (e.g., Shanghai or Beijing) (33).…”

Section: Discussioncontrasting

confidence: 67%

Cross-Sectional Study on Health Literacy and Internet Accessibility Among Patients With DM in Gansu, China

Zhao

Luo

Zhang

et al. 2021

Front. Public Health

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Objective: To determine the relationship between the health literacy of patients with diabetes mellitus (DM) and the accessibility of internet surfing for information concerning DM.Methods: A multistage stratified sampling method was utilized to conduct a questionnaire survey on DM health literacy and internet accessibility among 1,563 patients with DM in Gansu Province in 2020. Logistic regression was performed to analyze the factors that influence health literacy and internet accessibility; while the chi-square test was used to compare the differences in needs.Results: Among 1,563 valid questionnaires collected with an effective rate of 95.7%, there were 65.4, 66.3, or 51.1% of patients with DM were found to have good health knowledge, attitudes, or practice levels, respectively. Occupation, income, disease course of DM, and accessibility to the internet were the main factors influencing health literacy. Age, residency, occupation, education, income, and family history of DM were the factors influencing accessibility to internet surfing for DM. The expectations from patients with DM for the capacity to obtain DM information from traditional sources or through internet sources was 1,465 (93.7%) or 1,145 (73.3%), respectively. Patients with DM had a 2-fold higher desire to obtain DM health information from internet media if the patients had access to the internet than those without (P < 0.05).Conclusions: The socioeconomic status and access to the internet were the main contributing factors for health literacy, as socioeconomic status is closely related to access to the internet.

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Section: Discussioncontrasting

confidence: 67%

Cross-Sectional Study on Health Literacy and Internet Accessibility Among Patients With DM in Gansu, China

Zhao

Luo

Zhang

et al. 2021

Front. Public Health

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“… 10 17 A codesign process was used for conceptualising and implementing an online cancer carer resource in the UK 18 and Vietnam. 19 Common carer issues were elucidated with cancer carers and cancer-specific healthcare professionals (HCPs) to inform construction of the online interventions. This study will follow this methodology.…”

Section: Introductionmentioning

confidence: 99%

Codesigning a supportive online resource for Australian cancer carers: a thematic analysis of informal carers’ and healthcare professionals’ perspectives about carers’ responsibilities and content needs

et al. 2021

Self Cite

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ObjectiveTo gather preliminary qualitative data that will assist in the codesign and development of a new informational and supportive website to assist informal cancer carers in Australia.Design and settingUtilising a previously tested codesign process, informal carers’ experiences and perspectives, including those of healthcare professionals’, were examined via focus groups and/or interviews. Data were analysed via thematic analysis.ParticipantsRural (n=9) and urban (n=11) carers’, and healthcare professionals’ (n=8) perspectives were collected. Carers participated in a focus group (n=9) or telephone interview (n=11). Healthcare professionals completed an interview (n=6) or online survey (n=2).ResultsRural and urban carers typically felt ill prepared for their multitudinal caregiving responsibilities. Supporting patient-to-healthcare professional liaisons could especially challenge. Carers’ biopsychosocial and fiscal strains were affected by patients’ hardships and available informal supports. Rural carers described greater social support than urban carers. Both rural and urban carers also described discontentment related to a carer neglecting healthcare system. Both carers and healthcare professionals endorsed the need for a user-friendly, carer-specific website encompassing practical information and resources, peer-driven advice and evidence-based illness information, tailored to the Australian context.ConclusionsCarers and healthcare professionals recognise the pressing need for an Australian, cancer carer-specific online resource. Findings will inform the next phase, where a resource will be designed, developed and tested.

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“…Informal caregivers are of particular importance to the delivery of care for Vietnamese NCDs patients. First, caregivers undertake multiple caring roles for patients, helping access health care, making treatment decisions, providing informational and emotional support, and basic care needs (ie, daily care, nutrition) [ 2 , 5 ]. Second, due to the inter-dependence of patient and caregivers’ health, supporting caregivers has the potential to impact upon patients’ health and well-being.…”

Section: Reflectionsmentioning

confidence: 99%

“…Our recent study on cancer caregivers in Vietnam showed that the development of a web-based resource was identified as an urgent need. A web-based resource was viewed as a suitable interface to provide support across regions in a sustainable way [ 5 ]. The study demonstrates that for cancer, caregivers and health care professionals are supportive of a web-based intervention whilst recognising that this mode of delivery has limitations particularly in terms of accessibility for older caregivers and those that live in very remote locations.…”

Section: Reflectionsmentioning

confidence: 99%

The development of a web‐based resource to provide information and psychosocial support to informal cancer carers in hospitals in Vietnam

Abstract: , H. (2020). The development of a webbased resource to provide information and psychosocial support to informal cancer carers in hospital in Vietnam. Psycho-oncology, 29(5), 920-926.

Cited by 17 publications

References 17 publications

Cross-Sectional Study on Health Literacy and Internet Accessibility Among Patients With DM in Gansu, China

Cross-Sectional Study on Health Literacy and Internet Accessibility Among Patients With DM in Gansu, China

Codesigning a supportive online resource for Australian cancer carers: a thematic analysis of informal carers’ and healthcare professionals’ perspectives about carers’ responsibilities and content needs

Digital support for caregivers of patients with non-communicable diseases during COVID-19: Lessons from a cancer case study in Vietnam

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