Abstract:Introduction. Autosomal recessive cerebellar ataxias (ARCAs) are inherited neurological disorders that can affect both thecentral and peripheral nervous systems. To assess the effects of interventions according to the perception of people affected, patient-reported outcome measures (PROMs) must be available.Objective. This paper presents the development process of the Person-Reported Ataxia Impact Scale (PRAIS), a new PROM in recessive ataxias, and the documentation of its content validity, interpretability, a… Show more
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