The Development of a Conceptual Framework and Preliminary Item Bank for Childbirth‐Specific Patient‐Reported Outcome Measures

Korst, Lisa M.; Fridman, Moshe; Saeb, Samia; Greene, Naomi; Fink, Arlène; Gregory, Kimberly D.

doi:10.1111/1475-6773.12856

Cited by 12 publications

(4 citation statements)

References 32 publications

(24 reference statements)

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“…This project involved the implementation of the Childbirth Experience Survey (CBEX) in 16 childbirth hospitals in California from 2018 to 2021. CBEX was developed and implemented by the Childbirth Patient-Reported Outcomes Partnership and includes 18 domains relevant to the childbirth experience (Gregory et al, 2019;Korst et al, 2018). In CBEX part 1, administered in the last month of pregnancy, patients reported the aspects of the childbirth experience that they felt were important (V&P).…”

Section: Project Descriptionmentioning

confidence: 99%

Capacity-Building for Collecting Patient-Reported Outcomes and Experiences (PRO) Data Across Hospitals

Saeb

Korst²,

Fridman³

et al. 2023

Matern Child Health J

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Purpose Patient-reported outcomes and experiences (PRO) data are an integral component of health care quality measurement and PROs are now being collected by many healthcare systems. However, hospital organizational capacity-building for the collection and sharing of PROs is a complex process. We sought to identify the factors that facilitated capacity-building for PRO data collection in a nascent quality improvement learning collaborative of 16 hospitals that has the goal of improving the childbirth experience. Description We used standard qualitative case study methodologies based on a conceptual framework that hypothesizes that adequate organizational incentives and capacities allow successful achievement of project milestones in a collaborative setting. The 4 project milestones considered in this study were: (1) Agreements; (2) System Design; (3) System Development and Operations; and (4) Implementation. To evaluate the success of reaching each milestone, critical incidents were logged and tracked to determine the capacities and incentives needed to resolve them. Assessment The pace of the implementation of PRO data collection through the 4 milestones was uneven across hospitals and largely dependent on limited hospital capacities in the following 8 dimensions: (1) Incentives; (2) Leadership; (3) Policies; (4) Operating systems; (5) Information technology; (6) Legal aspects; (7) Cross-hospital collaboration; and (8) Patient engagement. From this case study, a trajectory for capacity-building in each dimension is discussed. Conclusion The implementation of PRO data collection in a quality improvement learning collaborative was dependent on multiple organizational capacities for the achievement of project milestones.

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Section: Project Descriptionmentioning

confidence: 99%

Capacity-Building for Collecting Patient-Reported Outcomes and Experiences (PRO) Data Across Hospitals

Saeb

Korst²,

Fridman³

et al. 2023

Matern Child Health J

Self Cite

View full text Add to dashboard Cite

show abstract

“…To overcome this challenge, it is recommended that the diagnosis be made through a professional interview to ensure accuracy and depth of understanding of the psychological condition being faced. 2 , 3 2) This study implemented a cross-sectional research design, which has limitations in establishing cause-and-effect relationships between variables and does not reflect changes in mental health literacy (MHL) and mental health (MH) over time. To overcome this challenge, it is recommended that future research adopt a longitudinal design.…”

Section: Dear Editormentioning

confidence: 99%

The Relationship Between Mental Health Literacy, Overall Adaptation and Mental Health of University Freshers [Letter]

Lameky

2023

PRBM

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“…The ideal PROM should have validity, reliability and be able to measure change over time 3 . Recent systematic reviews ascertained there are no PROM currently suitable for a maternity system, but many previously validated tools could be considered when designing a specific PROM for pregnancy and childbirth 2 , 7 , 8 . The development of a maternity PROM that covers antenatal, intra-partum, postpartum and neonatal care is challenging.…”

Section: Introductionmentioning

confidence: 99%

Patient reported outcome measures in childbirth and postpartum maternal quality of life: a protocol for systematic review of measurement properties.

et al. 2023

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Background: Patient centred healthcare is the corner stone to many healthcare strategies. Patient specific health needs should be at the fore of healthcare improvements and quality measurements. Patient reported outcome measures (PROM) that support real world clinical effectiveness assessments are increasingly being used to highlight domains where there is the greatest scope for change. Objectives: This systematic review aims to identify and evaluate existing patient reported assessment measures/tool(s) that can be used in developing a PROM for postpartum women. We will assess and evaluate their measurement properties in a transparent and structured way in accordance with the COSMIN guidelines. Methods: Methodological guidelines for systematic reviews of PROMs have been developed by the COSMIN initiative and will be followed for this systematic review. A systematic literature review will be performed using PubMed, CINAHL and EMBASE from inception to the present day. Two reviewers independently will judge eligibility, conduct data extraction and assess the methodological quality of each study as per COSMIN guidelines. Inclusion criteria: studies should concern PROM with an aim to evaluate measurement properties in the development or the evaluation of a PROM of interest. Included PROM will focus upon postpartum women assessing morbidity and quality of care. All peer reviewed studies with an assessment tool designed for patient completion will be considered. Exclusion criteria; abstract, letters and non-peer reviewed publications. Studies will be graded on measurement properties and quality of evidence as laid out by COSMIN. All studies and characteristics eligible for inclusion will be summarised and a recommendation to the most suitable measurement tool(s) will be given. Discussion: We will provide a comprehensive description of all available patient reported assessment tools available for childbirth and postpartum quality of life and recommend based on COSMIN guidelines the most suitable instrument(s) available for use.

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The Development of a Conceptual Framework and Preliminary Item Bank for Childbirth‐Specific Patient‐Reported Outcome Measures

Abstract: The conceptual framework and preliminary (PROMIS ) item bank presented here provide a foundation for the development of childbirth-specific V&P/PROs.

Cited by 12 publications

References 32 publications

Capacity-Building for Collecting Patient-Reported Outcomes and Experiences (PRO) Data Across Hospitals

Capacity-Building for Collecting Patient-Reported Outcomes and Experiences (PRO) Data Across Hospitals

The Relationship Between Mental Health Literacy, Overall Adaptation and Mental Health of University Freshers [Letter]

Patient reported outcome measures in childbirth and postpartum maternal quality of life: a protocol for systematic review of measurement properties.

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