The development and evaluation of the paediatric index of emotional distress (PI-ED)

O’Connor, Suzy; Ferguson, Eamonn; Carney, Terri; House, Emma; O’Connor, Rory C.

doi:10.1007/s00127-015-1134-y

Cited by 34 publications

(29 citation statements)

References 39 publications

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“…Both questionnaires have 14 items, each scored up to three points, for a maximum score of 42. The HADS scale allocates 21 points for both anxiety and depression, with scores of 7 and below for each, considered normal, whilst a total score of 20 or below are considered normal PI‐ED scores …”

Section: Methodssupporting

confidence: 91%

“…The HADS scale allocates 21 points for both anxiety and depression, with scores of 7 and below for each, considered normal, 28 whilst a total score of 20 or below are considered normal PI-ED scores. 30 Lung function (forced expiratory volume in one second (FEV1)) was measured by spirometry to determine disease severity in the study population and classified according to published categories in the Cystic Fibrosis Data Registry report: normal (90% of predicted FEV1 and above), mild impairment (below 90% but not below 70%), moderate impairment (below 70% but not below 40%) and severe impairment (below 40%). 31 The study received ethical approval from both The University of Notre Dame and Princess Margaret Hospital for Children and Telethon Kids Institute Ethics Committees.…”

Section: Methodsmentioning

confidence: 99%

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Investigating self‐efficacy, disease knowledge and adherence to treatment in adolescents with cystic fibrosis

Faint

Staton

Stick

et al. 2017

J Paediatrics Child Health

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Aim Patient adherence is integral to the effectiveness of prescribed treatment, and is associated with beneficial disease outcomes, yet in adolescents with cystic fibrosis, adherence is often sub‐optimal. Multiple factors may contribute to treatment adherence, including disease knowledge and self‐efficacy. In adolescents with cystic fibrosis: (i) to compare the disease knowledge of adolescents and their parents before transition to adult care; (ii) to determine the relationship between disease knowledge (adolescent, parent) and adherence; and (iii) to evaluate self‐efficacy and its association with disease knowledge and adherence. Methods Adolescents with cystic fibrosis and their parents were recruited from a tertiary children's hospital. Disease knowledge and self‐efficacy was assessed using the Knowledge of Disease Management‐CF and General Self‐Efficacy Scales respectively. Using pharmacy records, medication possession ratio was calculated to measure treatment adherence in the preceding year. Results Thirty‐nine adolescent (aged 12–17 (median 14) years) and parent pairs were recruited. Adherence to hypertonic saline, but not other medications, was significantly associated with disease knowledge in adolescents (r 2 = 0.40, P = 0.029). Mean (SD) adolescent self‐efficacy was 30.8 (4.0), and not associated with disease knowledge or adherence. Mean (SD) disease knowledge was less in adolescents than parents (55 (16)% and 72 (14)% respectively, P < 0.001). Conclusion Disease knowledge is sub‐optimal in adolescents with cystic fibrosis, even in the 2 years immediately before transition to adult care. Given that adherence with some treatments has been associated with disease knowledge our results suggest the need for educational interventions in adolescents with cystic fibrosis to optimise self‐management and health outcomes.

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Section: Methodssupporting

confidence: 91%

Section: Methodsmentioning

confidence: 99%

Investigating self‐efficacy, disease knowledge and adherence to treatment in adolescents with cystic fibrosis

Faint

Staton

Stick

et al. 2017

J Paediatrics Child Health

View full text Add to dashboard Cite

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“…Of the five respondents who reported the use of adult questionnaires, two reported that use was limited to older children. Paediatric questionnaires used were the Revised Children's Anxiety and Depression Scale (RCADS) [32], the Paediatric Index of Emotional Distress Questionnaire (PI-ED) [33], the Strengths and Difficulties Questionnaire (SDQ) [34], and questionnaires for educational assessment. It is unknown if parent and/or child versions of the RCADS or SDQ were used.…”

Section: Resultsmentioning

confidence: 99%

An evaluation of paediatric tinnitus services in UK National Health Service audiology departments

Smith

Fackrell

Kennedy

et al. 2020

BMC Health Serv Res

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Background: Whilst evidence indicates many children experience troublesome tinnitus, specialist services for children are far less established than those available for adults. To date, there is limited understanding of how paediatric tinnitus is managed in the UK, and to what extent current practice reflects what is recommended. This service evaluation aimed to 1) profile how tinnitus in children is managed in UK clinical practice, and assess to what extent care provided by services reflects advice included in the British Society of Audiology (BSA) Tinnitus in Children Practice Guidance, 2) collate clinician opinions on how services may be optimised, and 3) identify common problems experienced by children who present with bothersome tinnitus in clinic. Methods: As part of a larger survey, eight questions regarding services for paediatric tinnitus were distributed to UK NHS audiology services via email and social media. Representatives from eighty-seven services responded between July and September 2017. Results: Fifty-three percent of respondents reported that their department provided a paediatric tinnitus service. Among these services, there was widespread use of most BSA recommended assessments and treatments. Less widely used practices were the assessment of mental health (42%), and the use of psychological treatment approaches; cognitive behavioural therapy (CBT) (28%), mindfulness (28%), and narrative therapy (14%). There was varied use of measurement tools to assess tinnitus in children, and a minority of respondents reported using adult tinnitus questionnaires with children. Frequently reported tinnitus-related problems presented by children were sleep difficulties, concentration difficulties at school, situation-specific concentration difficulties, and emotional distress. Conclusions: Approaches used to manage children with troublesome tinnitus in UK NHS services are largely consistent and reflective of the current practice guidance. However, findings from this study indicate specialist staff training, access to child-specific tools, and the treatment and referral of children with tinnitus-related psychological problems represent key areas in need of optimisation.

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“…The PI-ED has a clinical cut-off score of 20 [35], therefore all participants in this sample were classified as being in the 'non clinical' range, with their scores remaining stable post intervention and at 3-month follow-up. BDI-Y and BAI-Y scores from the screening data were compared to normative scores in the manual [22].…”

Section: Recruitment and Characteristics Of The Samplementioning

confidence: 99%

A randomized controlled trial of a manual-based psychosocial group intervention for young people with epilepsy [PIE]

Dorris

Broome

Wilson

et al. 2017

Epilepsy & Behavior

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We conducted an exploratory RCT to examine feasibility and preliminary efficacy for a manual-based psychosocial group intervention aimed at improving epilepsy knowledge, self-management skills, and quality of life in young people with epilepsy. Method: Eighty-three participants (33:50 m/f; age range 12-17 years) were randomized to either the treatment or control group in seven tertiary paediatric neuroscience centres in the UK, using a wait-list control design. Participants were excluded if they reported suicidal ideation and/or scored above the cut off on mental health screening measures, or if they had a learning disability or other neurological disorder. The intervention consisted of six weekly 2-hour sessions using guided discussion, group exercises and role-plays facilitated by an epilepsy nurse and a clinical psychologist. Results: At three month follow up the treatment group (n = 40) was compared with a wait-list control group (n = 43) on a range of standardized measures. There was a significant increase in epilepsy knowledge in the treatment group (p = 0.02). Participants receiving the intervention were also significantly more confident in speaking to others about their epilepsy (p = 0.04). Quality of life measures did not show significant change. Participants reported the greatest value of attending the group was: Learning about their epilepsy (46%); Learning to cope with difficult feelings (29%); and Meeting others with epilepsy (22%). Caregiver and facilitator feedback was positive, and 92% of participants would recommend the group to others. Conclusion: This brief psychosocial group intervention was effective in increasing participants' knowledge of epilepsy and improved confidence in discussing their epilepsy with others. We discuss the qualitative feedback, feasibility, strengths and limitations of the PIE trial.

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The development and evaluation of the paediatric index of emotional distress (PI-ED)

Cited by 34 publications

References 39 publications

Investigating self‐efficacy, disease knowledge and adherence to treatment in adolescents with cystic fibrosis

Investigating self‐efficacy, disease knowledge and adherence to treatment in adolescents with cystic fibrosis

An evaluation of paediatric tinnitus services in UK National Health Service audiology departments

A randomized controlled trial of a manual-based psychosocial group intervention for young people with epilepsy [PIE]

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