The dermatological aspects of hEDS in women

Edimo, Cynthia O.; Wajsberg, Julia R.; Wong, Sammi; Nahmias, Zachary P.; Riley, Bernadette

doi:10.1016/j.ijwd.2021.01.020

Cited by 6 publications

(3 citation statements)

References 27 publications

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“…All subjects wore the tape through the 48 h re-assessment. Skin fragility is a common finding in patients with EDS ( 25 ), and in 5/58 (5.2%) shoulders, minor adverse skin reactions occurred. These subjects were contacted via phone 4 days post-tape removal, and all adverse skin reactions had resolved.…”

Section: Resultsmentioning

confidence: 99%

Evaluating the effects of two different kinesiology taping techniques on shoulder range of motion and proprioception in patients with hypermobile Ehlers–Danlos syndrome: a randomized controlled trial

Tudini,

Jordon,

Levine

et al. 2024

Front. Rehabil. Sci.

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BackgroundEhlers–Danlos syndrome (EDS) is a common group of inherited connective tissue disorders with a prevalence as high as 0.75%–2% of the population. Physical manifestations include pain and decreased proprioception, especially in more mobile joints, such as the shoulder. The kinesiology tape (K-Tape) is often used to treat patients with shoulder dysfunction. The effectiveness of the K-Tape is uncertain, and there is a lack of studies specifically studying the K-Tape in an EDS population.PurposeThe purpose of this study was to compare the short-term effects of two different K-Tape procedures on shoulder active joint reposition (AJR) and active range of motion (AROM) in patients with hypermobile EDS (hEDS) and shoulder pain.MethodsAll participants were recruited from the EDS support groups and presented with shoulder pain. Baseline demographic information was obtained for each participant, after which AROM and AJR were assessed. The participants were randomized to receive one of two K-Tape procedures. Testing was repeated immediately post-taping and 48 h post-taping.ResultsSignificant improvements in shoulder external (F = 10.917, p < 0.001) and internal (F = 11.736, p < 0.001) rotations were seen from baseline to immediately post-taping and baseline to 48 h post-taping in the experimental K-Tape group. There were no significant differences in the shoulder rotation in the control K-Tape group and no significant differences in either group for shoulder flexion or AJR at any time point (p > 0.05).ConclusionK-Tape may offer short-term improvements in shoulder rotation AROM in patients with hEDS and shoulder pain.

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Section: Resultsmentioning

confidence: 99%

Evaluating the effects of two different kinesiology taping techniques on shoulder range of motion and proprioception in patients with hypermobile Ehlers–Danlos syndrome: a randomized controlled trial

Tudini,

Jordon,

Levine

et al. 2024

Front. Rehabil. Sci.

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“…However, as with any intervention, the reward must outweigh the risk. Skin fragility is a common finding in patients with EDS ( 43 ) and 5.2% of the taped shoulders demonstrated adverse skin reactions to the tape adhesive at the 48-hour follow up. The skin reactions in this study were minor and resolved within 4 days after removal.…”

Section: Discussionmentioning

confidence: 99%

Evaluating the effects of two different kinesiology taping techniques on shoulder pain and function in patients with hypermobile Ehlers-Danlos syndrome

et al. 2023

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BackgroundEhlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders which predominantly affects women and has a prevalence as high as 1 in 5,000 individuals. Hypermobile EDS (hEDS) is the most common subtype of EDS and is characterized by multi-joint pain, particularly in large joints such as the shoulder. Physical therapy is often utilized to address the pain, physical impairments, and functional loss in patients with EDS. Kinesiology Tape (KT) is an intervention commonly used by physical therapists for treating shoulder pain and dysfunction. Studies related to the effectiveness of KT in patients with shoulder pain is equivocal and there are a lack of studies specifically studying the effects of KT in an EDS population.PurposeThe purpose of this study was to assess the efficacy and short-term effects of two different KT techniques on shoulder pain and function in individuals with hEDS and shoulder pain.MethodsParticipants were recruited from EDS support groups in the New England area of the United States; were diagnosed with hEDS by their physician; and had shoulder pain. Baseline demographic information was obtained for each participant followed by completion of 4 patient reported outcome (PRO) measures: the Upper Extremity Functional Index, QuickDASH (Disabilities of the Arm, Shoulder, & Hand), Shoulder Pain and Disability Index, and the Western Ontario Shoulder Instability Index. Current pain level, average pain over the past 24 h, and worst pain over the past 24 h were recorded using the numeric pain rating scale (NPRS). Subjects were randomly assigned to receive either an experimental shoulder KT procedure or a control shoulder taping. Immediately after taping, the NPRS was reassessed. Subjects then returned 48 h later to repeat the NPRS and PRO measures.ResultsThere was no significant difference between the experimental and control tape groups for any outcome measure. There was a significant improvement from pre-taping to 48-hours post taping for each of the 4 PRO measures with large effect sizes (p < 0.001; ƞp2 = .517–.719). Likewise, average, and worst pain over the last 24 h significantly improved with large effect sizes over the same period (p = 0.005; ƞp2 = .225 and p < 0.001; ƞp2 = .382, respectively). Current NPRS levels significantly improved from pre-tape to immediately post-tape (p = .023, ƞp2 = .131) and was maintained through the 48-hour follow up, although no further improvement was seen.ConclusionKT is an inexpensive and relatively safe intervention that is easy to apply and can offer temporary improvements in pain and function for patients with EDS and shoulder pain.

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“…Hypermobile Ehlers-Danlos syndrome (hEDS, previously known as EDS type III) is a genetic connective tissue disorder typically presenting with joint hypermobility, musculoskeletal manifestations, and impaired wound healing leading to abnormal, typically atrophic, scars. 1 Given the poor wound healing in hEDS, any form of skin trauma, including use of ablative lasers, could, theoretically, be risky. Waibel et al, 2 found using topical vitamin C, E, and ferulic acid postoperatively after ablative laser therapy to the face promoted improved wound healing.…”

Section: Introductionmentioning

confidence: 99%

Untitled

2022

JDC

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Background: Hypermobile Ehlers-Danlos Syndrome (hEDS) is a connective tissue disorder with cutaneous manifestations including poor wound healing and atrophic scar formation. There is evidence supporting the use of topical vitamin C and laser for scar revisions, but limited reports of using topical vitamin C in scar revisions in patients with hEDS.Objective: To present a case where topical vitamin C applied post-laser treatment resulted in improved healing and aesthetic outcomes in a patient with a connective tissue disorder. Methods:We present a case of treatment of atrophic and hypertrophic scars in a patient with hEDS with ablative fractional laser, pulsed dye laser, and post-procedural topical vitamin C. We discuss the patient's treatments, outcomes, and previous literature on the matter.Results: This patient had markedly improved wound healing after topical application of vitamin C post-laser treatment with no complications. Additionally, the patient had improved aesthetic outcomes with topical vitamin C and laser treatment just after one session. Conclusion:This case suggests that hEDS scars may be safely treated with lasers when combined with post-procedural topical vitamin C.

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The dermatological aspects of hEDS in women

Cited by 6 publications

References 27 publications

Evaluating the effects of two different kinesiology taping techniques on shoulder range of motion and proprioception in patients with hypermobile Ehlers–Danlos syndrome: a randomized controlled trial

Evaluating the effects of two different kinesiology taping techniques on shoulder range of motion and proprioception in patients with hypermobile Ehlers–Danlos syndrome: a randomized controlled trial

Evaluating the effects of two different kinesiology taping techniques on shoulder pain and function in patients with hypermobile Ehlers-Danlos syndrome

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