The delivery of healthy lifestyle interventions for people with disability living in supported accommodation: a scoping review of intervention efficacy and consumer involvement

Hatzikiriakidis, Kostas; Ayton, Darshini; O’Connor, Amanda; Carmody, Sarah; Patitsas, Luke; Skouteris, Helen; Green, Rachael

doi:10.1016/j.dhjo.2023.101444

Cited by 5 publications

(10 citation statements)

References 110 publications

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“…Additionally, Drum et al (2009) highlighted the importance of supporting personal choice and making sure programmes were affordable, backing recommendations outlined in the overarching programme theory. Hatzikiriakidis et al (2023) also stressed the importance of organisational influences, social support and involvement of support staff, which corroborate the findings outlined in this study that paid support staff facilitate active engagement.…”

Section: Discussionsupporting

confidence: 89%

“…Hatzikiriakidis et al . (2023) also stressed the importance of organisational influences, social support and involvement of support staff, which corroborate the findings outlined in this study that paid support staff facilitate active engagement.…”

Section: Discussionsupporting

confidence: 87%

“…2009) and recommendations for lifestyle interventions for people with disabilities living in supported accommodation (Hatzikiriakidis et al . 2023). The recommendations were not developed for people with intellectual disabilities; however, there was consistent focus on the importance of having disability appropriate measures for intervention outcomes, having family caregivers and people with disabilities involved in the development and evaluation processes and ensuring the accessibility of programmes (Drum et al .…”

Section: Discussionmentioning

confidence: 99%

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Supporting active engagement of adults with intellectual disabilities in lifestyle modification interventions: a realist evidence synthesis of what works, for whom, in what context and why

Westrop,

Rana,

Jaiswal

et al. 2024

J intellect Disabil Res

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BackgroundLifestyle modification interventions for adults with intellectual disabilities have had, to date, mixed effectiveness. This study aimed to understand how lifestyle modification interventions for adults with intellectual disabilities work, for whom they work and in what circumstances.MethodsA realist evidence synthesis was conducted that incorporated input from adults with intellectual disabilities and expert researchers. Following the development of an initial programme theory based on key literature and input from people with lived experience and academics working in this field, five major databases (MEDLINE, EMBASE, CINAHL, PsycINFO and ASSIA) and clinical trial repositories were systematically searched. Data from 79 studies were synthesised to develop context, mechanism and outcome configurations (CMOCs).ResultsThe contexts and mechanisms identified related to the ability of adults with intellectual disabilities to actively take part in the intervention, which in turn contributes to what works, for whom and in what circumstances. The included CMOCs related to support involvement, negotiating the balance between autonomy and behaviour change, fostering social connectedness and fun, accessibility and suitability of intervention strategies and delivery and broader behavioural pathways to lifestyle change. It is also essential to work with people with lived experiences when developing and evaluating interventions.ConclusionsFuture lifestyle interventions research should be participatory in nature, and accessible data collection methods should also be explored as a way of including people with severe and profound intellectual disabilities in research. More emphasis should be given to the broader benefits of lifestyle change, such as opportunities for social interaction and connectedness.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionsupporting

confidence: 87%

Section: Discussionmentioning

confidence: 99%

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Supporting active engagement of adults with intellectual disabilities in lifestyle modification interventions: a realist evidence synthesis of what works, for whom, in what context and why

Westrop,

Rana,

Jaiswal

et al. 2024

J intellect Disabil Res

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“…Te placement or separation itself can also create experiences of trauma and feelings of grief and loss due to being removed from family and community [29]. Te prevalence of trauma was identifed in another study by Hatzikiriakidis et al [2], who found that children with disabilities in OOHC are twice as likely to have experienced violence, maltreatment, abuse, and neglect, which also put them at higher risk of multiple relinquishments/disruptions in OOHC and child welfare placements. Due to the compounding nature of these traumatic experiences and the lack of evidence of traumainformed care models being used in home-based care, children and young people with various disabilities are more likely to be placed in temporary nonrelative foster care or in residential care and less likely to fnd permanent placements, return home, or be adopted.…”

Section: Teme 1: Compounding Trauma: Pathways To Care Andmentioning

confidence: 99%

“…Until recently, however, Australia had not adequately collected data on the prevalence of disability for children and young people in out-of-home care (OOHC) or the prevalence of subgroups based on gender, age, race, ethnicity, or type of disability or circumstance. In 2018, approximately 33,000 children aged 0-12 resided in out-of-home care [1], with some preliminary data suggesting that 12.1% of the children and young people living in out-of-home care (OOHC) in Australia have a form of disability [2].…”

Section: Introductionmentioning

confidence: 99%

Experiences of Children and Young People with a Disability in Out-of-Home Care in Australia: A Scoping Review

Gatwiri,

McPherson,

James

2024

Health & Social Care in the Community

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Children with disabilities in out-of-home care (OOHC) are an overrepresented group in Australia, yet little is known about their circumstances, needs, and experiences within OOHC. Utilising a systematic scoping review methodology, we explored the state of knowledge about the experiences of children and young people with a disability in out-of-home care in Australia. Findings in this review speak to the unmet needs and challanges that children with disabilities face in child welfare systems and how systemic failures can lead to institutional pipelines of further maltreatment, adversity, and marginalisation. The review discusses the key themes in the literature, including (i) compounding trauma and placement failures, (ii) concerns of safety, stability, and neglect, (iii) limited control and choice, and (iv) disability and multisystem involvement.

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Does Arterial Stiffness Predict Cardiovascular Disease in Older Adults With an Intellectual Disability?

O'Brien,

McCallion,

Ryan

et al. 2023

J Cardiovasc Nurs

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The delivery of healthy lifestyle interventions for people with disability living in supported accommodation: a scoping review of intervention efficacy and consumer involvement

Cited by 5 publications

References 110 publications

Supporting active engagement of adults with intellectual disabilities in lifestyle modification interventions: a realist evidence synthesis of what works, for whom, in what context and why

Supporting active engagement of adults with intellectual disabilities in lifestyle modification interventions: a realist evidence synthesis of what works, for whom, in what context and why

Experiences of Children and Young People with a Disability in Out-of-Home Care in Australia: A Scoping Review

Does Arterial Stiffness Predict Cardiovascular Disease in Older Adults With an Intellectual Disability?

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