The death of patients with terminal cancer: the distress experienced by their children and medical professionals who provide the children with support care

Otani, Hiroyuki; Ozawa, Miwa; Morita, Tatsuya; Kawami, Ayako; Sharma, Sahana; Shiraishi, Kouya; Oshima, Akira

doi:10.1136/bmjspcare-2014-000811

Cited by 5 publications

(16 citation statements)

References 10 publications

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“…, Delihn & Reg , Otani et al . ) and expert opinion. The items focused on the behaviour of adolescents who had experienced the cancer or death of a parent/grandparent.…”

Section: The Studymentioning

confidence: 99%

“…There are no scales measuring normal grief reactions in adolescents available in Japan. Therefore, we developed grief reaction items for this study based on previous qualitative research (Berman et al 1988, Christ 2000, Beale et al 2004, Delihn & Reg 2009, Otani et al 2016) and expert opinion. The items focused on the behaviour of adolescents who had experienced the cancer or death of a parent/grandparent.…”

Section: Grief Reactionsmentioning

confidence: 99%

“…, Delihn & Reg , Otani et al . ). Few studies have examined grief reactions by relationship with the deceased.…”

Section: Introductionmentioning

confidence: 97%

“…Most available research used qualitative methods to explore adolescents' grief reactions (Berman et al 1988, Christ 2000, Beale et al 2004, Delihn & Reg 2009, Otani et al 2016. Few studies have examined grief reactions by relationship with the deceased.…”

Section: Introductionmentioning

confidence: 99%

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Differences in posttraumatic growth and grief reactions among adolescents by relationship with the deceased

Hirooka

Fukahori

Ozawa

et al. 2016

Journal of Advanced Nursing

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“…, Delihn & Reg , Otani et al . ) and expert opinion. The items focused on the behaviour of adolescents who had experienced the cancer or death of a parent/grandparent.…”

Section: The Studymentioning

confidence: 99%

Section: Grief Reactionsmentioning

confidence: 99%

“…, Delihn & Reg , Otani et al . ). Few studies have examined grief reactions by relationship with the deceased.…”

Section: Introductionmentioning

confidence: 97%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Differences in posttraumatic growth and grief reactions among adolescents by relationship with the deceased

Hirooka

Fukahori

Ozawa

et al. 2016

Journal of Advanced Nursing

Self Cite

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“…8,10,11 These children are known to harbor fears about their parent getting worse 7,12,13 or dying from the disease, leaving the child alone or raised by someone else. 7,12,14 These fears likely crescendo in the days before a parent dies, as a child anticipates the coming loss. 9,[15][16][17] Moreover, several studies of cancer-bereaved youth have shown significant long-term consequences on the child, including twice the risk of self-injury compared with nonbereaved peers and higher levels of post-traumatic stress symptoms compared with pediatric cancer survivors.…”

Section: Introductionmentioning

confidence: 99%

Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program

Lewis

Loggers

Phillips

et al. 2020

Journal of Palliative Medicine

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Background: In 2018, >75,000 children were newly affected by the diagnosis of advanced cancer in a parent. Unfortunately, few programs exist to help parents and their children manage the impact of advanced disease together as a family. The Enhancing Connections-Palliative Care (EC-PC) parenting program was developed in response to this gap. Objective: (1) Assess the feasibility of the EC-PC parenting program (recruitment, enrollment, and retention);(2) test the short-term impact of the program on changes in parent and child outcomes; and (3) explore the relationship between parents' physical and psychological symptoms with program outcomes. Design: Quasi-experimental two-group design employing both within-and between-subjects analyses to examine change over time and change relative to historical controls. Parents participated in five telephonedelivered and fully manualized behavioral intervention sessions at two-week intervals, delivered by trained nurses. Behavioral assessments were obtained at baseline and at three months on parents' depressed mood, anxiety, parenting skills, parenting self-efficacy, and symptom distress as well as children's behavioralemotional adjustment (internalizing, externalizing, and anxiety/depression). Subjects: Parents diagnosed with advanced or metastatic cancer and receiving noncurative treatment were eligible for the trial provided they had one or more children aged 5-17 living at home, were able to read, write, and speak English, and were not enrolled in a hospice program. Results: Of those enrolled, 62% completed all intervention sessions and post-intervention assessments. Withingroup analyses showed significant improvements in parents' self-efficacy in helping their children manage pressures from the parent's cancer; parents' skills to elicit children's cancer-related concerns; and parents' skills to help their children cope with the cancer. Between-group analyses revealed comparable improvements with historical controls on parents' anxiety, depressed mood, self-efficacy, parenting skills, and children's behavioral-emotional adjustment. Conclusion:The EC-PC parenting program shows promise in significantly improving parents' skills and confidence in supporting their child about the cancer. Further testing of the program is warranted.

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Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature

2022

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Background: Few studies of health impacts of parental death focus on the developmental stage of adolescence and young adulthood and in particular, expected parental death from terminal illness. Aim: To systematically review the health impact of expected parental death on adolescent and young adult children aged 15–25 years and provide a basis for further research and clinical practice. Design: Systematic review registered on PROSPERO (CRD42017080282). Data sources: Pubmed, PsycINFO, CINAHL, MEDLINE and Cochrane databases were searched with no restrictions on publication date with the last search in March 2021. Eligible articles included studies of adolescent and young adult children (defined by age range of 15–25 years) exposed to parental death due to terminal illness, and with reported health outcomes (physical, psychological or social). Articles were reviewed using the QualSyst tool. Results: Ten articles met the inclusion criteria. Adolescent and young adult children reported poor family cohesion and communication with associated negative psychological outcomes. They reported distrust in the health care provided to their terminally ill parent, increased psychological distress and risk of unresolved grief, anxiety and self-harm. Some experience was positive with posttraumatic growth identified. Conclusions: This review specifically analysed the health impact of expected parental death on adolescent and young adult children. It highlights their need for age-appropriate psychosocial support and clear information during parental illness, death and bereavement.

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The death of patients with terminal cancer: the distress experienced by their children and medical professionals who provide the children with support care

Cited by 5 publications

References 10 publications

Differences in posttraumatic growth and grief reactions among adolescents by relationship with the deceased

Differences in posttraumatic growth and grief reactions among adolescents by relationship with the deceased

Enhancing Connections-Palliative Care: A Quasi-Experimental Pilot Feasibility Study of a Cancer Parenting Program

Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature

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