“The dearest of our possessions”: Applying Floridi's information privacy concept in models of information behavior and information literacy

Bawden, David; Robinson, Lyn

doi:10.1002/asi.24367

Cited by 15 publications

(13 citation statements)

References 64 publications

(73 reference statements)

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“…This can be extended by adding the following privacy interests and concerns for biobanks and repositories: physical privacy (example may include gathering and storing biospecimen and testing them without consent), informational privacy (such as possible misuse of information), decisional privacy (e.g., control or influence over what is done with brain data and biospecimens), and proprietary privacy (e.g., ownership of biospecimens, datasets from brain repositories and the control of identity). Floridi [ 124 , 125 ] offers a similar typology but argues that informational privacy is central. This shows that there are different perceptions of privacy which can influence privacy practices in relation to managing brain data.…”

Section: Discussionmentioning

confidence: 99%

The ethical and legal landscape of brain data governance

2022

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Neuroscience research is producing big brain data which informs both advancements in neuroscience research and drives the development of advanced datasets to provide advanced medical solutions. These brain data are produced under different jurisdictions in different formats and are governed under different regulations. The governance of data has become essential and critical resulting in the development of various governance structures to ensure that the quality, availability, findability, accessibility, usability, and utility of data is maintained. Furthermore, data governance is influenced by various ethical and legal principles. However, it is still not clear what ethical and legal principles should be used as a standard or baseline when managing brain data due to varying practices and evolving concepts. Therefore, this study asks what ethical and legal principles shape the current brain data governance landscape? A systematic scoping review and thematic analysis of articles focused on biomedical, neuro and brain data governance was carried out to identify the ethical and legal principles which shape the current brain data governance landscape. The results revealed that there is currently a large variation of how the principles are presented and discussions around the terms are very multidimensional. Some of the principles are still at their infancy and are barely visible. A range of principles emerged during the thematic analysis providing a potential list of principles which can provide a more comprehensive framework for brain data governance and a conceptual expansion of neuroethics.

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Section: Discussionmentioning

confidence: 99%

The ethical and legal landscape of brain data governance

2022

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“…Floridi's work (e.g. Floridi, 2014;Mittelstadt et al, 2016) has received great recognition and acclaim among information science researchers, including Fyffe (2015), Wang (2018), and Bawden and Robinson (2020). Among the many important ideas lent by Floridi to information science is an ethical philosophy of data and artificial intelligence.…”

Section: Perspectives On Data Science Bias and Ethics Within Informat...mentioning

confidence: 99%

What Does Information Science Offer for Data Science Research?: A Review of Data and Information Ethics Literature

Lund

Wang

2022

Journal of Data and Information Science

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This paper reviews literature pertaining to the development of data science as a discipline, current issues with data bias and ethics, and the role that the discipline of information science may play in addressing these concerns. Information science research and researchers have much to offer for data science, owing to their background as transdisciplinary scholars who apply human-centered and social-behavioral perspectives to issues within natural science disciplines. Information science researchers have already contributed to a humanistic approach to data ethics within the literature and an emphasis on data science within information schools all but ensures that this literature will continue to grow in coming decades. This review article serves as a reference for the history, current progress, and potential future directions of data ethics research within the corpus of information science literature.

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“…With regard to ethical aspects in information literacy, Bawden and Robinson (2020) examine the possible incorporation of the concept of privacy as proposed by Floridi into information literacy. In reviewing existing information literacy frameworks, they indicate that more recent frameworks increasingly deal with ethical aspects of information literacy.…”

Section: Information Literacy Implicationsmentioning

confidence: 99%

“…In metaliteracy, privacy is listed as one of the elements that people should be aware of when interacting with information. These literacy frameworks may not yet treat privacy of groups but there is a potential for incorporation (Bawden & Robinson 2020, pp. 1039-1040.…”

Section: Information Literacy Implicationsmentioning

confidence: 99%

When Accurate Information Harms People

Kamada¹

2021

CCS Journal

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The COVID-19 pandemic has triggered the generation of a large amount of information not just directly about the virus but also about its various societal impacts. This paper describes the atmosphere that the pandemic has created in the Japanese society and examines the information spread about infection clusters. Besides misinformation and disinformation, the paper highlights another problem in information dissemination during this pandemic. Regardless of the legitimate intention of reporting this type of information, people reacted by blaming or discriminating against those who were associated with clusters. The information on infection clusters has brought to the surface the privacy issues and has brought attention to emerging issues that concern information and media literacy. Understanding how people interact with information in a particular social or cultural setting, not just from an objective but also from an emotional perspective, becomes more important for enhancing people’s information literacy.

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“The dearest of our possessions”: Applying Floridi's information privacy concept in models of information behavior and information literacy

Cited by 15 publications

References 64 publications

The ethical and legal landscape of brain data governance

The ethical and legal landscape of brain data governance

What Does Information Science Offer for Data Science Research?: A Review of Data and Information Ethics Literature

When Accurate Information Harms People

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