The Cost of Serving Infants and Toddlers Under Part C

Johnson, Jean L.; Brown, Susan; Chang, Chuan; Nelson, Dawna; Mrazek, Susan

doi:10.1097/iyc.0b013e3182014c97

Cited by 15 publications

(26 citation statements)

References 5 publications

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“…Recent guidelines from the American Heart Association (AHA) and the American Academy of Pediatrics (AAP) [25] recommend routine developmental screening of these patients. Such screening and follow-up programs are likely to become increasingly important because the availability of services through early intervention programs has declined over the years due to budget cuts [18]. In addition, the need for long-term ND follow-up evaluation is important because some deficits such as learning disabilities or other emotional problems related to self-esteem, body image, and the like may not present until later childhood and adolescence.…”

Section: Discussionmentioning

confidence: 99%

Neurodevelopmental Outcomes for Children With Hypoplastic Left Heart Syndrome at the Age of 5 Years

et al. 2013

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This study aimed to determine the neurodevelopmental (ND) outcome for children with hypoplastic left heart syndrome (HLHS) at early school age. English-speaking patients who underwent the Norwood procedure between 2000 and 2005 were eligible at 4–6 years of age for ND testing. Of the 72 eligible patients, 44 (61 %) agreed to participate, and 37 completed ND testing before the close of the study. Three subjects were excluded from analyses due to late stroke. The ND testing included intelligence, visual motor integration, memory and motor and language skills. Parents and teachers completed measures of behavior and attention problems. Subjects’ scores and parent/teacher ratings were converted to z-scores and compared with test norms. Higher scores on child measures represent better outcomes, whereas higher scores on parent and teacher rating scales indicate more problems. The average ND performance of the tested cohort fell within one standard deviation of the test norms for all measures. However, the subjects performed significantly lower than the test norms on measures of visual-motor integration, fine motor skills, memory, and word structure (z = −0.42 to −0.54; p < 0.005). On the parent and teacher completed measures, the subjects scored higher than the test norms on attention problems (z = 0.40–0.62; p < 0.005). Although the overall ND performance of the cohort was normal, the subjects showed relative weakness in visual motor and attention skills. Ongoing developmental monitoring of these children is recommended to guide interventions that may improve individual outcomes and to assess the impact of changes in clinical management strategies on functional outcomes.

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Section: Discussionmentioning

confidence: 99%

Neurodevelopmental Outcomes for Children With Hypoplastic Left Heart Syndrome at the Age of 5 Years

et al. 2013

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“…direct interventions with the child and/or parent training) difficult and even impractical. Several of these challenges are related to the distance EI service providers must travel to reach families (Johnson, Brown, Chang, Nelson, & Mrazek, 2011;Kelso, Fiechtl, Olsen, & Rule, 2009). Other challenges include scheduling difficulties, lack of trained EI service providers, safety issues, family cultural preferences and comfort with the EI service provider, and a possible distracting presence of the EI service provider.…”

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confidence: 99%

“…Johnson et al (2011) conducted a cost analysis for providing services to parents of toddlers in the home. They combined the costs of direct service delivery (i.e.…”

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confidence: 99%

Internet-based intervention training for parents of young children with disabilities: a promising service-delivery model

Meadan

Daczewitz

2014

Early Child Development and Care

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Efficient early intervention (EI) services are required to serve the needs of young children with disabilities and the needs of their families. Effective EI includes family-centred practices, evidence-based interventions, parent involvement/ training, and delivery in children's natural environments. Due to the challenges of providing home-based EI for children with disabilities, there is a need to identify alternative service models. One possible alternative service-delivery model is training and coaching parents from a distance, via Internet technologies. The purposes of this paper are to (a) describe the challenges related to homebased EI services, (b) discuss the potential advantages of using Internet-based interventions as a supplemental service model, and (c) describe current Internetbased interventions by reviewing the literature related to training parents of young children with autism, from a distance via the Internet. Efficient early intervention (EI) services are required to serve the needs of young children with disabilities and the needs of their families. Effective EI includes family-centred practices, evidence-based interventions, parent involvement/training, and delivery in children's natural environments. Due to the challenges of providing home-based EI for young children with disabilities (i.e. clinician-implemented intervention in the home), there is a need to identify alternative service models. Parent training and parent-implemented interventions could be an effective way to enhance services for young children with disabilities. Brookman-Frazee (2004) reported that collaboration between parents and professionals is associated with positive outcomes for both children and their families. Parents can learn new teaching strategies and skills and implement them accurately with their children (Dunlap, Ester, Langhans,

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“…Consequently, many children served in EI who will later be diagnosed with ASD do not carry the diagnosis at the time of service receipt. For example, in Hawaii 3.0% of the children receiving EI services, which represents just 0.2% of the population under age three, had a documented ASD diagnosis [10], significantly lower than the population prevalence of 1%. Under identification can have significant implications for EI service provision since research indicates that children with ASD have specific service needs [5] [11] [12].…”

Section: Introductionmentioning

confidence: 99%

An evaluation of identification of suspected autism spectrum disorder (ASD) cases in early intervention (EI) records

Liu

et al. 2013

2013 IEEE International Conference on Bioinformatics and Biomedicine

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The rising prevalence of Autism Spectrum Disorder (ASD) in the United States points to an increased need for services across the life span. Specialized services beginning at the earliest age possible are critical to maximizing long-term outcomes for children with ASD and their families. Many children later diagnosed with ASD will begin to receive services through the federally funded Early Intervention (EI) system that serves infants and toddlers from birth to age three. However, without formal recognition, services may not fully address the constellation of ASD symptoms. While ASD training in EI is becoming more widespread, there is still a need for better detection of ASD symptoms at younger ages. We hypothesized that initial EI assessment records which document the strengths and needs of children in EI, could be an important source for detecting ASD warning signs and aid state EI systems in earlier identification. In this research, we used EI records to evaluate classification techniques to identify suspected ASD cases. We improved the performance of machine learning techniques by developing and applying a unified ASD ontology to identify the most relevant features from EI records. The results indicate that using Support Vector Machine (SVM) with ontology-based unigrams as features yields the best performance. Our study shows that developing automatic approaches for quickly and effectively detecting suspected cases of ASD from nonstandardized EI records earlier than most ASD cases are typically detected is promising.

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The Cost of Serving Infants and Toddlers Under Part C

Cited by 15 publications

References 5 publications

Neurodevelopmental Outcomes for Children With Hypoplastic Left Heart Syndrome at the Age of 5 Years

Neurodevelopmental Outcomes for Children With Hypoplastic Left Heart Syndrome at the Age of 5 Years

Internet-based intervention training for parents of young children with disabilities: a promising service-delivery model

An evaluation of identification of suspected autism spectrum disorder (ASD) cases in early intervention (EI) records

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