The Correlation Between Quality of Life and Acceptability of Disability in Patients With Facial Burn Scars

Zhang, Xiuni; Liu, Yuan; Deng, Xiaohong; Deng, Chengsong; Pan, Yunfeng; Hu, Ailing

doi:10.3389/fbioe.2019.00329

Cited by 20 publications

(20 citation statements)

References 21 publications

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“…Acceptance of disability, a signi cant element in psychosocial adaptation, refers to through shifts of value system, an individual perceives that the losses caused by disability do not impair the existing normal abilities and meaning of existence [8]. Former studies showed a signi cant correlation between acceptance of disability and quality of life among patients with different chronic diseases [9,10].…”

Section: Introductionmentioning

confidence: 99%

Acceptance of disability, coping style, perceived social support and quality of life among patients with chronic lymphedema: a cross-sectional study

Huang

2022

Support Care Cancer

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Objective: To examine acceptance of disability, coping style, perceived social support, and quality of life and to explore the relationships between acceptance of disability, coping style, perceived social support and quality of life among Chinese patients with chronic lymphedema. Methods: Chronic lymphedema patients were recruited from ve tertiary hospitals between May and July 2020 in China. Recruited patients were assessed for quality of life (QOL), acceptance of disability (AOD), coping styles, perceived social support (PSS), and sociodemographic and disease-related factors. Multivariate linear regression models were conducted to examine the multivariate effect of AOD, coping style, PSS, and sociodemographic and disease-related factors on QOL.Results: A total of 163 chronic lymphedema patients were recruited. The mean score of QOL was 2.23 (SD=0.68). AOD, number of symptoms, acceptance-resignation, avoidance, degree of pain, PSS, and educational level were found to be signi cant predictors of QOL.Conclusion: Chinese patients with chronic lymphedema had moderate levels of QOL. The QOL and speci c domains of patients were affected by different factors. Special attention and targeted interventions should be given to improve patients' QOL.

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Section: Introductionmentioning

confidence: 99%

Acceptance of disability, coping style, perceived social support and quality of life among patients with chronic lymphedema: a cross-sectional study

Huang

2022

Support Care Cancer

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“…There is a growing interest in the long term psychosocial effects of burn injury research that focuses on the quality of life (1)(2)(3)(4). Similar interest is also observed in the head and neck burn research where new reports relating to the quality of life of facial are published in recent years (5)(6)(7).…”

Section: Introductionmentioning

confidence: 83%

Oral health-related quality of life and related factors among facial burn injury patients in Pakistan.

Chaudhary¹,

Ahmad²,

Bashir³

et al. 2020

Preprint

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Background: There is a limited understanding of the long-term effect of facial burn injury on oral health. This study was aimed to describe the oral health-related quality of life of patients with facial burn injury and determine the associated risk factors.Methods: Patients with facial burn who attended the Burn Care Center in Islamabad, Pakistan were systematically and randomly selected and invited to participate in this cross-sectional study. They underwent extra- and intra-oral examinations and, completed self-administered questionnaires. The severity of disfigurement and, caries (DMFT), periodontal (CPI) and oral hygiene (OHI-S) statuses were assessed. Validated Urdu language instruments were used to collect information on sociodemographic background, oral health behaviours, oral health-related quality of life (OHIP-14) and satisfaction with appearance (SWAP). Information relating to the time of burn injury event and, cause and severity (type, TBSA) of burn were obtained from medical records. The OHIP- 14 severity (add-score) and prevalence of impact measures were derived and analysed using simple and multiple linear regression.Results: A total of 271 patients had participated in the study. The OHIP-14 prevalence of impact was 94% mean the mean add-score 37 = unit (sd = 8.5). The domains with the greatest impact prevalence were the physical pain (87%), psychological disability (87%), social disability (85%) and physical discomfort (83%). Poor clinical oral health status – particularly dental caries, oral health behaviours, severe burn injury, psychological distress and time of burn event, were associated with poor oral health-related quality of life (p< 0.05).Conclusion: Poor oral conditions, particularly caries, and severity of burn injury are the main factors that affect the oral health-related quality of life in facial burn patients. Addressing issues related to oral health behaviours, especially dental visit, may reduce the impact.

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“…Similarly, a study from Poland also found that disease acceptance significantly affected QoL ( 28 ). Higher AOD level was also found to contribute significantly to higher overall QoL in patients with colostomy ( 38 ), facial burn scar ( 39 ), epilepsy ( 40 ), and stroke ( 41 ). First, emotionally, improvement in AOD level changes the cognition of PD patients, promotes their control over their own emotions, allows them to perceive more positive psychological emotions, and thus their attitude toward life.…”

Section: Discussionmentioning

confidence: 99%

Current Status of Acceptance of Disability and the Correlation With the Life Quality in Parkinson's Disease in Southwest China

Liang

Chen

et al. 2022

Front. Med.

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BackgroundAcceptance of disability (AOD) is a process that a patient must undergo to cope with altered abilities, but its effect in Parkinson's disease (PD) remains unclear. The present study aimed to determine the level of AOD, examine the influence of sociodemographic variables and disease characteristics on the AOD level, and evaluate the relation between AOD level and quality of life in a cohort of PD patients from Southwest of China.MethodsA total of 336 PD patients were consecutively recruited from November 2018 to October 2020. At enrollment, demographic and clinical data were obtained using a questionnaire, and the Acceptance of Disability Scale-Revised (AODS-R) scale was used to measure the AOD level.ResultsThe mean total score of AOD is 87.28, indicating a moderate level of disability acceptance in PD patients. Statistical analysis showed that understanding of PD, family support, and UPDRS-II score were major factors affecting AOD level, and patients with low AOD levels were more likely to have poorer quality of life.ConclusionAOD is a serious problem in PD patients in Southwest China, especially among individuals with insufficient family support and a lack of recognition of the disease. AOD was also associated with motor function and daily living ability, thus suggesting that evaluation of the AOD and promotion of the awareness may be helpful to improve the quality of life in patients with PD.

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The Correlation Between Quality of Life and Acceptability of Disability in Patients With Facial Burn Scars

Cited by 20 publications

References 21 publications

Acceptance of disability, coping style, perceived social support and quality of life among patients with chronic lymphedema: a cross-sectional study

Acceptance of disability, coping style, perceived social support and quality of life among patients with chronic lymphedema: a cross-sectional study

Oral health-related quality of life and related factors among facial burn injury patients in Pakistan.

Current Status of Acceptance of Disability and the Correlation With the Life Quality in Parkinson's Disease in Southwest China

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