The correlation between caregiver burden with depression and quality of life among informal caregivers of hemodialysis and thalassemia patients during the COVID-19 pandemic: a cross-sectional study

Mahani, Maryam Askaryzadeh; Ghasemi, Masoomeh; Arab, Mansour; Baniasadi, Zahra; Omidi, Ali; Irani, Parichehr Sabaghzadeh

doi:10.1186/s12912-023-01351-4

Cited by 5 publications

(4 citation statements)

References 51 publications

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“…A similar discovery can be made regarding the consequences of extended care for chronic conditions: caregivers' fatigue and consequent decline in life satisfaction. 29 The upward trend in anxiety levels as individual's age, especially among those over 60, is consistent with the results reported by Maftei et al 30 who established the correlation between the progression of health problems and heightened health-related anxiety among older adults. The correlation between patient depression and caregiver burden is statistically significant, indicating that patient-caregiver dynamics are intertwined.…”

Section: Discussionsupporting

confidence: 89%

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Complications and psychological impact of pressure ulcers on patients and caregivers

Qian,

Yan,

Ting

et al. 2024

International Wound Journal

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Pressure ulcers are persistent skin lesions that have substantial detrimental effects on the physical well‐being of patients. Moreover, their psychological ramifications for both patients and their caregivers are becoming more widely acknowledged. This research was conducted to examine the psychological ramifications of pressure ulcers and ascertain efficacious approaches to mitigate these effects and improve overall well‐being. A cross‐sectional study was conducted from March 2022 to December 2023 across tertiary care centres located in Beijing. The cohort consisted of 431 participants, which included primary caregivers and patients who were diagnosed with pressure ulcers. The data were gathered through the utilization of structured questionnaires and semi‐structured interviews. These methods encompassed demographic details, clinical characteristics and validated scales that assessed psychological parameters, including quality of life, anxiety, stress and depression. The research exposed substantial psychological toll on both individuals receiving care and those providing care, with caregivers enduring diminished quality of life and elevated levels of anxiety, depression and stress (p < 0.05). A significant positive correlation was identified between the degree of psychological distress and severity of pressure ulcers (p < 0.05). Both location of the ulcer and duration of care were substantial contributors to the psychological burden (p < 0.05). In spite of the apparent necessity, a significant proportion of the participants refrained from obtaining psychological counselling. The results underscored the significant psychological ramifications of pressure ulcers for both individuals receiving care and the caregivers. As a result, comprehensive care strategies that incorporate psychological assistance into the prescribed treatment plan are imperative. This research highlighted the criticality of implementing all‐encompassing, interdisciplinary approaches to tackle the complex issues presented by pressure ulcers in an effort to enhance the general welfare of those influences.

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Section: Discussionsupporting

confidence: 89%

“…A similar discovery can be made regarding the consequences of extended care for chronic conditions: caregivers' fatigue and consequent decline in life satisfaction. 29 …”

Section: Discussionmentioning

confidence: 99%

Complications and psychological impact of pressure ulcers on patients and caregivers

Qian,

Yan,

Ting

et al. 2024

International Wound Journal

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“…Spearman correlation analyses were utilized to examine the correlation between caregiver burden and continuous variables (three dimensions of social support, age of patients and informal caregivers, total medical cost, monthly caregiving and annual household income). Based on evidence from previous studies [ 15 , 31 , 32 ], we hypothesized that patients’ age, history of interruption of blood transfusion and iron chelation therapy, and social support, as well as informal caregivers’ age, marital status, monthly caregiving, and taking care of others would be potential predictors of caregiver burden. Therefore, they were included in multiple linear regression.…”

Section: Methodsmentioning

confidence: 99%

“…Given the Chinese tradition, caregivers are mostly family members, especially parents. These family members act as “informal caregivers”, which were defined as unpaid family members, friends or neighbors who provided free care to the patient [ 15 ]. Due to poor quality of life, adult patients with β-thalassemia rely heavily on their informal caregivers, resulting in a severe caregiving burden [ 16 ].…”

Section: Introductionmentioning

confidence: 99%

A cross-sectional study: caregiver burden and related determinants of adult patients with β-thalassemia major in mainland China

Zhang,

Ming

et al. 2024

BMC Nurs

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Background The informal caregivers of adult patients with β-thalassemia major (β-TM) bear not only physical but also emotional and economic pressures of providing care. This study is the first to evaluate the caregiver burden by Zarit Burden Interview (ZBI) of adult patients with β-TM in mainland China and to identify predictors of caregiver burden. Methods In this cross-sectional study, we conducted an online survey with snowball sampling covering seven provinces between September 1, 2021, and January 31, 2022, of patients aged ≥ 18 years with β-TM and their informal caregivers. Caregiver burden was assessed using the ZBI. Data on patient demographics, disease and therapy characteristics, and informal caregivers’ demographic characteristics were collected and analysed using independent t-tests, analysis of variance, Spearman’s correlation and multiple linear regression. Results Of 75 included patients, more than half (50.7%) were male. The mean patient age was 24.69 ± 5.59 years. The mean age of the informal caregivers was 50.60 ± 9.16 years, with women (74.7%) being predominant. The ZBI score was 38.00 ± 17.02. Multiple linear regression analysis showed that patients with interrupted blood transfusion therapy and informal caregivers required to care of others were positively associated with caregiver burden (p < 0.05). Age of informal caregivers were borderline significant positively associated with caregiver burden (p < 0.1). Married informal caregivers were negatively associated with caregiver burden (p < 0.05). Conclusions The informal caregivers of adult patients with β-TM in mainland China experienced a moderate-to-severe level of caregiving burden. The caregiver burden was higher in patients with a history of interrupted blood transfusion therapy or in informal caregivers who were older or needed to care for others. Additionally, married informal caregivers experienced lower burdens compared to non-married informal caregivers. These findings provide a reference to identify informal caregivers with higher burdens among patients with β-TM.

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Role of psychological well-being, quality of life and distress tolerance in caregivers of geriatric population: an Indian exploratory study

Sridhar,

Kuriakose

2024

WWOP

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Purpose This study aims to gain an understanding of how caring for an ageing population affects caregivers’ psychological well-being, quality of life and ability to tolerate distress. This study provides valuable insights into the challenges faced by family caregivers and underscores the critical need for comprehensive support systems. Design/methodology/approach A correlational method and cross-sectional research design was used for the study. For this, a sample of 200 caregivers in the age range of 25–60 years who were taking care of the geriatric population above the age of 70 years for a minimum of one year were chosen. Four questionnaires − Burden Scale for Family Caregivers, Psychological Well-Being Scale, World Health Organization’s Quality of Life Scale-BRIEF version and Distress Tolerance Scale were chosen. Correlation and multivariate regression were calculated using statistical package for social sciences (SPSS) 21 and Jamovi 3.4.1. Findings This study found that there is a negative correlation of caregiver burden with psychological well-being, quality of life and distress tolerance. The sub-domains of self-acceptance, psychological health and tolerance levels were most impacted for the caregivers. Through multivariate regression, it was found that the caregiver burden significantly predicted psychological well-being and quality of life. Research limitations/implications This study focuses on the English-speaking caregivers which may overlook the diverse linguistic and cultural variations within the broader caregiver community in India and the data collection exclusively targeted family caregivers providing support to geriatric population without chronic illnesses. This restriction could potentially limit the generalizability of the findings to the broader caregiving context. Practical implications The implications of this research are that for caregivers, this study underscores the importance of tailored support programmes that address the negative impact of caregiver burden on psychological well-being and quality of life. Health-care professionals can use the findings to incorporate mental health assessments and interventions within caregiving contexts, recognizing the interconnected nature of these variables. Policymakers can use the findings to inform policies related to caregiver support and health-care resource allocation. Originality/value In India, the social norm is that children are expected to take care of their parents when they become old. Taking care of elderly parents can be challenging, even emotionally. As a result, this study will focus on how caregivers’ psychological well-being, quality of life and ability to tolerate distress are affected. Consequently, promoting the creation of community support groups and workplace mental health programmes which could give caregivers a forum to voice their concerns.

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The correlation between caregiver burden with depression and quality of life among informal caregivers of hemodialysis and thalassemia patients during the COVID-19 pandemic: a cross-sectional study

Cited by 5 publications

References 51 publications

Complications and psychological impact of pressure ulcers on patients and caregivers

Complications and psychological impact of pressure ulcers on patients and caregivers

A cross-sectional study: caregiver burden and related determinants of adult patients with β-thalassemia major in mainland China

Role of psychological well-being, quality of life and distress tolerance in caregivers of geriatric population: an Indian exploratory study

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