The Coordinated Psychosocial and Neurologic Care of Children with Seizures and Their Families

Ziegler, Robert; Erba, Giuseppe; Holden, Lynn; Dennison, Helen

doi:10.1111/j.1528-1157.2000.tb00236.x

Cited by 21 publications

(18 citation statements)

References 73 publications

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“…Although the presence of seizure worry was common across the groups, a high percentage of Remission patients reported seizure-related anxiety in the context of feeling completely ''cured.'' This is not an unexpected finding given the inherently capricious nature of seizures (Ziegler et al, 2000). Unlike those rendered SF following surgery, the more ''natural'' course of their seizure alleviation did not afford them the same level of reassurance that their seizures ''had been taken care of.''…”

Section: Discussionmentioning

confidence: 93%

Psychological outcome profiles in childhood‐onset temporal lobe epilepsy

et al. 2010

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SUMMARYPurpose: To examine the effect of childhood-onset temporal lobe epilepsy (TLE) on long-term psychological function and to identify outcome profiles related to the natural course and treatment of TLE. Methods: Psychological function was studied in a prospective, community-based cohort of childhood-onset TLE, approximately 13 years following seizure onset. Fiftythree patients were assessed using a semi-structured psychosocial interview, supplemented by self-report questionnaires measuring quality-of-life, depression, selfesteem, and anxiety. Results: Common patterns were observed, giving rise to four distinct patient groups and psychological outcomes: (1) patients who experienced spontaneous remission of their seizures fared best; their psychological profile was characterized by heightened worry about the possibility of seizure recurrence; (2) patients who progressed to surgery and were seizure free reported adjustment difficulties associated with learning to become ''well''; (3) patients who progressed to surgery and were not seizure free had the poorest psychological outcomes, with depression featuring prominently; and (4) patients with ongoing intractable epilepsy reported psychological and social features consistent with the effects of their chronic illness. Discussion: Patients with childhood-onset TLE face distinctive long-term psychological challenges. The specific nature of these challenges can be understood in terms of the natural evolution and treatment of their epilepsy.

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Section: Discussionmentioning

confidence: 93%

Psychological outcome profiles in childhood‐onset temporal lobe epilepsy

et al. 2010

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“…Child behavior checklist sebagai alat untuk menilai gangguan perilaku anak, hanya mengandalkan pengamatan orangtua sehingga perlu dilakukan observasi pada anak dan keluarga agar didapatkan hasil yang lebih akurat. 24,25 Kekuatan penelitian ini adalah mencantumkan subjek dengan kecerdasan rata-rata ke atas sebagai kriteria inklusi sehingga mengurangi bias gangguan perilaku yang terjadi pada anak akibat disabilitas intelektual.…”

Section: Pembahasanunclassified

“…Dokter dan tenaga kesehatan mental dapat memberikan konseling pada keluarga secara bersama-sama. [24][25] Sikap anak epilepsi tanpa gangguan perilaku baik, mereka dapat beradaptasi menghadapi penyakitnya, mau minum obat teratur, percaya diri, tidak menarik diri, tidak cemas/depresi, dan mempunyai hubungan baik dengan teman-temannya. Kami menduga adaptasi anak yang baik terjadi karena kejang yang cepat terkontrol sehingga anak tidak merasa khawatir kejang akan timbul kembali saat aktivitas di sekolah maupun di luar sekolah.…”

Section: Pembahasanunclassified

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Faktor-Faktor yang Mempengaruhi Gangguan Perilaku pada Anak Epilepsi

Lavina

Widodo

Nurdadi

et al. 2016

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Latar belakang. Anak epilepsi memiliki prevalensi gangguan perilaku yang tinggi dan dapat menyebabkandampak psikososial. Sejauh ini, di Indonesia, belum ditemukan studi yang meneliti gangguan perilaku padaanak epilepsi serta faktor-faktor yang berhubungan.Tujuan. Mengetahui proporsi dan jenis gangguan perilaku anak epilepsi berdasarkan child behavior checklist(CBCL) dan hubungan antara usia awitan kejang, frekuensi kejang, durasi epilepsi, obat anti epilepsi, tingkatsosial ekonomi, dan pendidikan orangtua, dengan gangguan perilaku pada anak epilepsi, serta adaptasikeluarga dalam menghadapi anak epilepsi.Metode. Penelitian potong lintang di Klinik Neurologi Anak FKUI RSCM. Skrining gangguan perilakudengan kuesioner CBCL dilakukan pada 30 anak epilepsi tanpa defisit neurologis dan disabilitas intelektual.Studi kualitatif untuk menilai adaptasi keluarga dalam menghadapi anak epilepsi.Hasil. Terdapat 3 dari 30 anak epilepsi yang mengalami gangguan perilaku dengan jenis gangguan perilakueksternalisasi (perilaku melanggar aturan dan agresif), masalah sosial, dan gangguan pemusatan perhatian.Faktor usia awitan kejang (p=0,280), frekuensi kejang (p=0,007; RP 0,036; IK95% 0,005-0,245), durasiepilepsi (p=1,000), obat anti epilepsi (p=0,020; RP 0,019; IK95% 0,001-0,437), tingkat sosial ekonomi(p=0,251), dan pendidikan orangtua (p=1,000), tidak berisiko meningkatkan gangguan perilaku. Terdapatsikap dan reaksi, serta persepsi dan stigma orangtua yang negatif dalam menghadapi anak epilepsi yangmengalami gangguan perilaku. Terdapat masalah keluarga sejak anak mengalami epilepsi dan gangguanperilaku. Orangtua tidak dapat menerapkan pola asuh displin dan kemandirian pada anak dengan gangguanperilaku.Kesimpulan. Proporsi gangguan perilaku pada anak epilepsi tanpa defisit neurologis dan disabilitas intelektualtidak tinggi. Tidak terdapat faktor yang memengaruhi gangguan perilaku. Adaptasi keluarga baik dalammenghadapi anak epilepsi tanpa gangguan perilaku, dibandingkan dengan keluarga anak epilepsi yangmengalami gangguan perilaku

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“…Parents attach great value to advice and suggestions from their family practitioner, who should therefore form a key component of the family's support system throughout. Parental anxiety may interfere with their ability to comprehend and recall information and instructions about treatment (Ziegler et al, 2000).…”

Section: Introductionmentioning

confidence: 99%

Controlled Study of Distress in Parents of Children with Epilepsy

Abdelnaem

Hassan

Hafeez

2020

Preprint

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BackgroundChildhood epilepsy can have a significant impact on family functioning with high rates of patent anxiety and depression being reported.ObjectivesTo demonstrate the frequency of depression, anxiety and distress among the parents of epileptic children.Patients and MethodsA cross sectional study design was carried out on 100 children and their parents attending the outpatient clinics in Minia University Hospital, arranged in two groups, Group (A) consisted of 50 epileptic children and their caregivers. On the other hand, Group (B) consisted of 50 age- and sex matched controls. Comprehensive Assessment was carried out. A well-prepared sheet had been used for the evaluation of subjects of the study. Twenty-one item Depression Anxiety Stress Scale (DASS-21), Hamilton Anxiety Scale (HAM - A) and Hamilton Rating Scale for Depression (HRSD) were used for interviewing the parents of the epileptic children to screen for depression, anxiety, stress in those parents. This process preceded by full explanation of all the previous tools.There was statistically significant difference between the parents of the epileptic group and the control group regarding DASS score, and HAM-A score. There was no statistically significance between the 2 groups regarding the HRSD. The parents group of generalized fits shows to have a higher score of DASS (9.5±4.7), HDRS (5.1±3.3). In contrast to the focal fits group. On the other hand, the parents of group of generalized fits shows to have lower score of HAM-A (6.7±4) in contrast to the focal fits group but not statistically significant.Compliant group shows to have higher score of HAM-A, HDRS score in contrast to non-compliant group. These correlations were not statistically significant.ConclusionsParents of the epileptic children had more anxiety, depression and stress than the control. Lower parental education was associated with more distress and anxiety.Ploy-therapy increased parent anxiety and depression. Compliance on treatment decreased parent distress but increased parent anxiety and depression.

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The Coordinated Psychosocial and Neurologic Care of Children with Seizures and Their Families

Cited by 21 publications

References 73 publications

Psychological outcome profiles in childhood‐onset temporal lobe epilepsy

Psychological outcome profiles in childhood‐onset temporal lobe epilepsy

Faktor-Faktor yang Mempengaruhi Gangguan Perilaku pada Anak Epilepsi

Controlled Study of Distress in Parents of Children with Epilepsy

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