The Consequences of Type 1 Diabetes Onset On Family Life. An Integrative Review

Fornasini, Silvia; Miele, Francesco; Piras, Enrico Maria

doi:10.1007/s10826-019-01544-z

Cited by 20 publications

(26 citation statements)

References 60 publications

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“…Importantly, diabetes may affect mothers more deeply than fathers. 50 Furthermore, mothers may be more likely to attend clinic appointments and take responsibility for completion of diabetes related care tasks, including during transfer and transition. 50,51 There is also the possibility of recall bias in the post-transfer group due to time lapse between their transfer and focus groups, and it would have been ideal to include member checking (ie, returning transcripts to participants).…”

Section: Discussionmentioning

confidence: 99%

Youth with diabetes and their parents' perspectives on transition care from pediatric to adult diabetes care services: A qualitative study

Butalia

McGuire

Dyjur³

et al. 2020

Health Science Reports

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Background and Aims When youth with diabetes transition from pediatric to adult diabetes care, they are at high risk for loss to follow up and worsening glucose control. We aimed to gain insight on how to improve the transition of youth with type 1 diabetes from pediatric to adult diabetes care from the patients' and parents' perspective. Methods We conducted focus groups in youth with type 1 diabetes in transition from pediatric to adult diabetes care and their parents, in Calgary, Alberta, between June and August 2014. Eligibility criteria included: (a) type 1 diabetes; (b) aged 15 to 25 years; (c) have or had received care at the pediatric hospital; and, (d) either pre or post‐transfer; or, (e) parents of recently transferred youth. Purposive sampling was used, and the theoretical framework used was the Integrated Behaviour Model. Participants were asked about positive, negative, or challenging experiences related to diabetes and transition, solutions to challenges, and tools and strategies to improve and better support transition. Thematic analysis was conducted after focus groups were recorded and transcribed. Results Three focus groups were conducted: pre‐transfer youth with diabetes (4 females and 3 males; median age 17.5 years, IQR 1.3 years); post‐transfer young adults with diabetes (2 females and 2 males; median age 23.5 years, IQR 1.2 years); and parents of recently transferred young adults with diabetes (n = 3). Main themes were: (a) communication technology; (b) the need for more transition and diabetes education and preparation during transition; and, (c) the importance and need for social and peer support. Conclusion This study describes specific areas that may improve diabetes transfer and transition from pediatric to adult diabetes care. This information can help inform clinical care delivery for transition and the development of programs, strategies, and interventions to improve transition care.

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Section: Discussionmentioning

confidence: 99%

Youth with diabetes and their parents' perspectives on transition care from pediatric to adult diabetes care services: A qualitative study

Butalia

McGuire

Dyjur³

et al. 2020

Health Science Reports

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“…However, a later re-evaluation found these studies contributing important cultural and sociodemographic dimensions to the overall analysis, which warranted their inclusion. We excluded papers if they reported: (1) non-primary research; (2) only quantitative research; (3) data that focused exclusively on: parent/caregiver views and/or experiences regarding their child being diagnosed or immediately after diagnosis (which have been reviewed elsewhere [ 20 ]); parents of children older than 8 years with type 1 diabetes; and, adults with type 1 diabetes reporting their own experiences of living with type 1 diabetes.…”

Section: Methodsmentioning

confidence: 99%

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

et al. 2021

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Aims To synthesise the qualitative evidence on parents’ experiences of caring for a child aged ≤8 years with type 1 diabetes to identify: the challenges they encounter; their views about support received; ways in which support could be improved; and, directions for future research. Methods We searched Medline, EMBASE, CINAHL, PsycINFO and Web of Science databases to identify qualitative studies reporting parents’ views and experiences of caring for a child with type 1 diabetes aged ≤8 years. Key analytical themes were identified using thematic synthesis. Results Fourteen studies were included. The synthesis resulted in the generation of two overarching themes. Monopolisation of life describes the all-encompassing impact diabetes could have on parents due to the constant worry they experienced and the perceived need for vigilance. It describes how parents’ caring responsibilities could affect their wellbeing, relationships and finances, and how a lack of trusted sources of childcare and a desire to enable a ‘normal’ childhood constrained personal choices and activities. However, use of diabetes technologies could lessen some of these burdens. Experiences of professional and informal support describes how encounters with healthcare professionals, while generally perceived as helpful, could lead to frustration and anxiety, and how connecting with other parents caring for a child with type 1 diabetes provided valued emotional and practical support. Conclusions This synthesis outlines the challenges parents encounter, their views about support received and ways in which support might be improved. It also highlights significant limitations in the current literature and points to important areas for future research, including how sociodemographic factors and use of newer diabetes technologies influence parents’ diabetes management practices and experiences. PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019128710

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“…Therefore, parents’ perception of their self-efficacy seems to play a significant role and impact on their psychological well-being, which could, in turn, influence the management of their children chronic disease. Up until now, little has been reviewed regarding parental psychological symptoms related to the management of paediatric T1DM, especially regarding the role of parental self-efficacy [ 17 ]. Thus, the purpose of the present literature review is to define a comprehensive outline of the past literature, especially focusing on anxiety, depression and stress symptoms related to parental self-efficacy and referred to the management of children and adolescents’ T1DM, with self-efficacy conceived as a protective factor towards the whole family well-being.…”

Section: Introductionmentioning

confidence: 99%

Parental Stress, Anxiety and Depression Symptoms Associated with Self-Efficacy in Paediatric Type 1 Diabetes: A Literature Review

Bassi

Mancinelli

Riso

et al. 2020

IJERPH

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Background: Parents play a significant role in the management and monitoring of their children’s Type 1 diabetes mellitus (T1DM), being considered a family disease. The current review intends to investigate parental stress, depression and anxiety symptoms associated with self-efficacy referred to paediatric diabetes management. Method: A literature review was carried out using PsycINFO, Web of Science and PubMed where the following terms were considered: diabetes mellitus, paediatric, parent-child relationship, self-efficacy, parenting stress, perceived stress, stress, depression, anxiety. Standing a defined list of inclusion and exclusion criteria, a total of 33 papers were finally included. Results: Findings have shown that parents experience relatively high levels of anxiety, depression and stress symptoms related to managing a child with T1DM and are associated with parental self-efficacy. Parental stress predicts a worsening in the control of HbA1c levels, while parental diabetes-specific distress predicts an increase in children depression symptoms. High parental self-efficacy associates with better monitoring, allowing better adherence and more balanced HbA1c levels in the children. Conclusions: Interventions aimed at fostering social support, improving diabetes management, and decreasing perceived stress, might alleviate parents’ psychological symptoms by focusing on increasing their self-efficacy. Digital interventions might also represent valuable solutions to support parents in the management of paediatric diabetes not presented and substantiated in the main text and should not exaggerate the main conclusions.

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The Consequences of Type 1 Diabetes Onset On Family Life. An Integrative Review

Cited by 20 publications

References 60 publications

Youth with diabetes and their parents' perspectives on transition care from pediatric to adult diabetes care services: A qualitative study

Youth with diabetes and their parents' perspectives on transition care from pediatric to adult diabetes care services: A qualitative study

Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

Parental Stress, Anxiety and Depression Symptoms Associated with Self-Efficacy in Paediatric Type 1 Diabetes: A Literature Review

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