The Concept of Quality of Life in Organ Transplantation

Burra, Patrizia; Bona, Manuela De; Germani, Giacomo; Canova, Daniele; Masier, A; Tomat, S.; Senzolo, Marco

doi:10.1016/j.transproceed.2007.06.013

Cited by 36 publications

(23 citation statements)

References 20 publications

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“…This result most likely demonstrates the important nature of the games as emphasizing inclusion and participation for all, as well as being games that instill self-confidence and promote a healthy lifestyle among many of the participants. Moreover, the results are easily translated to the concept of quality of life, which in many studies is associated with organ transplantation and improvement in the recipients overall psychological wellbeing [13] . In addition the results indicate that transplant recipients can return to a normal life, and, despite some additional risks, can participate in sporting activity, and exercise with considerable safety [11].…”

Section: Analysis Of the Descriptive And Inferential Resultsmentioning

confidence: 99%

“…One major result that goes across all presented research is that organ transplant recipients have the potential to achieve levels of health-related well-being similar of those of the general population [11,12] and in some instances, a significant improvement in the recipients' overall quality of life [13]. Thus, the purpose of this study is to analyze and critically discuss the results of data collected by English-speaking participants at the 2011 WTG in Gothenburg, Sweden in relation to psychological well-being factors.…”

Section: Introductionmentioning

confidence: 99%

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Transplant Recipients' Experience of Participation at the World Transplant Games in Gothenburg 2011: A Study of Psychological Well-being

Johnson¹,

Hinic²,

Billström

et al. 2013

TOTRANSJ

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Abstract:The World Transplant Games (WTG) is a biennial worldwide sporting event. Most published research relating to WTG has focused on medical issues. However, few studies have examined factors such as psychological wellbeing in sport for this group. The purpose of this study is to provide a description of the English-speaking participants at the WTG and analyze five research questions linked to how (1) health, (2), satisfaction with sports participation (3), perceived competence, (4) health as a benefit of sport participation (5), and impaired health as a cost of sports participation, are related to psychological factors in sports. There were a total of 253 participants with a mean age of 43.6 years, originating from seven English-speaking nations. Four validated psychological questionnaires were used, as well as a screening of background data of the group. The main characteristics of the English-speaking population were university educated middle age men with kidney transplants, who had participated in athletics at a rather high competitive level before the transplant. The main statistical findings particularly showed that satisfaction with sport participation, perceived health and health as a benefit were the dependent variables that explained most of the variance in the analysis. In conclusion, perceived competence, enjoyment and health seem to be critical psychological factors that essentially act as prime motivating factors behind participation in games such as WTG, and ultimately lead to a sense of psychological well-being among the participants. Finally, there is a discussion of future research, as well as the practical value of the results.

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Section: Analysis Of the Descriptive And Inferential Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Transplant Recipients' Experience of Participation at the World Transplant Games in Gothenburg 2011: A Study of Psychological Well-being

Johnson¹,

Hinic²,

Billström

et al. 2013

TOTRANSJ

View full text Add to dashboard Cite

show abstract

“…Thus, HRQoL evaluations appear to be central to followups of LT candidates and recipients, as they give a clear understanding of the patient's perspective [5]. Moreover, considering the huge effort it takes to retain patients for long-term follow-ups and the stabilization of HRQoL within the first six months post-LT, it could be useful to focus on identifying HRQoL in these first few months after LT to determine which patients will require greater attention in terms of their functional capacity and wellbeing in subsequent follow-ups.…”

Section: Discussionmentioning

confidence: 99%

“…In fact, the ultimate aim of the surgical procedure is not only to increase survival but also to improve quality of life [5,6].…”

Section: Introductionmentioning

confidence: 99%

Changes in quality of life and functional capacity after lung transplantation: A single-center experience

Ricotti

Martinelli

Caspani

et al. 2017

Monaldi Arch Chest Dis

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Lung transplantation (LT) increases the life expectancy of patients affected by end stage pulmonary disease; specifically, its ultimate aims are to improve survival and health related quality of life (HRQoL). The aim of the present longitudinal study was to determine the HRQoL trajectory and changes in functional capacity from time of entry in the waiting list for LT to 2 year after LT. The study included sixty-nine outpatients enrolled in a single medical center when they entered the waiting list for LT and who subsequently received it. They were then followed up over 2 years after LT. HRQoL was assessed by the physical and mental component summary (PCS and MCS) scores of the 36-item Short Form Health Survey (SF-36) and Saint George's Respiratory Questionnaire (SGRQ). Psychological distress was evaluated with the General Health Questionnaire (GHQ), and functional capacity was investigated using the six-minute walk test (6MWT) and forced expiratory volume (FEV1). Patients showed low SF-36 PCS (30.5±7.8) and SGRQ total (61.8±17.5) scores at entry in the waiting list, but exhibited significant changes over time after LT (p<0.001). Furthermore, patients who showed an increase of at least 50% in SF36 PCS and SGRQ scores at 6 months survived longer. Both FEV1 and 6MWT distance as well as GHQ scores significantly changed over time, with improvements occurring in the first 6 months after LT but no major changes thereafter. Out of the 69 patients enrolled, 32 died over a median follow-up of 51 months. Although mortality tended to be slightly higher for patients with lower HRQoL at the baseline assessment, this difference was not statistically significant. HRQoL evaluations appear critical in the follow-up of LT candidates, in particularly SGRQ, because of its specificity in targeting respiratory symptoms and functional wellbeing.

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“…Health-related QoL (HRQoL) assessments after LTx are predominantly dependent on dyspnoea symptoms, exercise tolerance, medication burden and comorbidities which are only partly captured by lung function numbers and blood test results [348][349][350][351]. Although HRQoL is largely a function of an individual's sense of satisfaction and happiness related to their physical and psychological health, QoL can be more broadly defined as a complex interaction between a person's physical health, psychological state and personal beliefs, level of independence, social relationships and their relationship to their specific environment [352].…”

Section: Measuring Qolmentioning

confidence: 99%