The components of personal passports for people living with dementia in an acute healthcare setting: an integrative review

Abstract

Aim To explore the components of personal passports for people living with dementia in an acute healthcare setting. Background Globally, supporting people with dementia poses a prominent health and social care challenge. Importance for people with dementia in an acute healthcare setting includes social relationships and communication with healthcare staff. A personal passport is an international initiative designed to support the personhood of the person living with dementia. Methods This integrative review is based on the methodology of Whittmore and Knafl (2005). The Preferred Reporting for Systematic Reviews and Meta‐Analyses (PRISMA) guidelines and checklist were adhered to. A database search of PubMed, MEDLINE, CINAHL, Scopus and EBSCO databases was systematically performed. Results This integrative review identified nine research studies on the components of personal passports that met the inclusion and exclusion criteria. A constant comparative method of data analysis identified five key pivotal themes: person‐centredness, communication, family/carer involvement, education and leadership. Conclusion The use of personal passports supports the provision of person‐centred care for people living with dementia through enhancing the well‐being of both the person and their families/caregivers. Relevance to clinical practice Personal passports are an important document and should be determined by the person with dementia, their care needs and the caregiver's role in meeting these needs.

Visual identifier systems for patients with cognitive impairment in healthcare settings: A survey of practice in UK hospitals

“…This need is emphasised in resources used to support some of the national schemes, such as the Butterfly Scheme and Dementia Friendly. There is some evidence that identifiers deployed as part of a wider approach to dementia care, incorporating training and development for staff, can contribute to improvements in some aspects of care quality (Beattie et al, 2021 ; Murray et al, 2019 ). Conversely, a sizeable body of evidence points towards the problems of implementing dementia interventions in isolation, without attention to the wider institutional determinants of care quality, including availability of training (Featherstone et al, 2020 ; Featherstone & Northcott, 2020 ; Gwernan‐Jones et al, 2020 ).…”

Dementia care: Research and clinical innovation

“…The fourth element to emerge from papers within this special issue was continued development of person‐centred care in acute hospitals, care homes and in the community (Beattie et al, 2021; Karacsony & Abela, 2021; Kong et al, 2020; Thoft et al, 2021). Person‐centred care is an essential approach to support individuals with dementia to ensure that they are cared for with respect and dignity and recognised as individuals with a life history.…”

“…Therefore, nurses and other healthcare professionals should aim to understand the needs of family members from minority ethnic groups, so support and services can be provided on their terms, which address their needs. The need also remains The fourth element to emerge from papers within this special issue was continued development of person-centred care in acute hospitals, care homes and in the community (Beattie et al, 2021;Karacsony & Abela, 2021;Kong et al, 2020;Thoft et al, 2021). Person-centred care is an essential approach to support individuals with dementia to ensure that they are cared for with respect and dignity and recognised as individuals with a life history.…”

“…Person‐centred care approaches have been implemented in care home settings in Denmark and Korea, and although supportive, barriers continue to be identified, which included negative attitudes of care home staff, time and insufficient resources (Kong et al, 2020; Thoft et al, 2021). Initiatives to support person‐centred care in the later stages of dementia have been developed and implemented such as documentation to support a person with dementia when they are admitted to an acute hospital, such as “This is me” or “Getting to know me.” As identified by Beattie et al (2021) in this special issue, these documents have been identified to support person‐centred care, improve communication, the involvement of family members and education of staff, although a lack of a uniformed documentation across institutions inhibits the success of this approach. A further barrier to person‐centred care for people with dementia is the information provided in discharge documentation as identified by Parker et al (2021).…”