The ‘compliant’, the ‘pacified’ and the ‘rebel’: experiences with Swiss disability insurance

Piecek, Monika; Tabin, Jean-Pierre; Perrin, Céline; Probst, Isabelle

doi:10.1080/09687599.2018.1545115

Cited by 9 publications

(7 citation statements)

References 34 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…This stands in stark contrast to how DI benefactors are often portrayed in media and social discourse [44]. While recognized in qualitative research [32,45], such negative accounts of patients' lived experience with DI are largely absent from public discourse. Clearly, CCS who entirely depend on DI bene ts are more likely to enroll or to be enrolled by their parents and caregivers [46,47].…”

Section: Adequate Information and Collaboration To Combat Informationmentioning

confidence: 91%

“…This is con rmed by studies showing that many survivors, when categorized as 'cured' from cancer, wish to live everyday life without being reminded of their past and marked with a stigma [15]. Therefore, CCS' hesitancy to apply for DI might be related to defense mechanisms to reduce anxiety arising from psychologically harmful reminiscences [32]. Most importantly, such attitudes may be strongly intertwined with questions of personal identity, in particular to the self-perception of the CSS and their transition from a patient-based to a survivor-based perspective.…”

Section: Adequate Information and Collaboration To Combat Informationmentioning

confidence: 99%

“…It is known that applying for sick-related bene ts is often connected to feelings of stigma, insecurity, due to the strong desire to be nancially self-su cient [42]. In addition, studies have shown that making insurance claims involves extensive workload and psychological stress [32,43], which might hinder CCS from making such claims. This stands in stark contrast to how DI benefactors are often portrayed in media and social discourse [44].…”

Section: Adequate Information and Collaboration To Combat Informationmentioning

confidence: 99%

“…In Switzerland, for example, every resident must be a liated to and is covered by basic health insurance [27][28][29]. Furthermore, compulsory disability insurance (DI) aims to guarantee the basic needs of persons who have become disabled, by paying disability bene ts and/or by providing rehabilitation measures [30][31][32]. In addition to basic health insurance and DI, there are optional private insurance schemes such as supplementary health insurance (which may for instance encompass alternative medicine or psychotherapy) and primary private insurance (e.g.…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

The long shadow of childhood cancer: A qualitative study on insurance hardship among survivors of childhood cancer

Hendriks

Harju

Roser

et al. 2020

Preprint

View full text Add to dashboard Cite

Background The long-term consequences of childhood cancer have received increasing attention due to the growing number of survivors over the past decades. However, insurance hardships of survivors and their families are mostly unknown. This study explored qualitatively, in a sample of childhood cancer survivors (CCS), (i) the experiences and needs of CCS living in Switzerland with a special focus on hardships related to insurance; and (ii) the views of insurance and law experts with experience on childhood cancer. Methods Semi-structured interviews were conducted with 28 childhood cancer survivors and 3 experts (one legal expert, two insurance experts). Data was analysed using qualitative content analysis. Results Three key themes emerged from the interviews with the CCS: 1) experiences with insurance, 2) perception of discrimination, and 3) needs and barriers for support. The interviewed experts provided further detailed clarification of CCS’ concerns. Our findings indicated that some CCS can move past their cancer history, while others continue to face hardships. CCS reported confusion about the opportunities and services within the social security system and most relied on their personal contacts for guidance. Finally, CCS expressed a strong need for socio-economic and legal support for social insurance questions, especially related to disability insurance. Conclusions With the growing population of CCS, it is essential to further assess the interplay between medical and psychosocial health and socio-economic hardship. Supportive psychosocial services should aim to ameliorate insurance hardships. Better understanding of the relationship between childhood cancer and insurance hardships during survivorship will inform efforts to improve long-term financial security and health outcomes for survivors. We call for the public, lawmakers, researchers, insurers, and patient organizations to come together and discuss future perspectives to avoid the risk of discrimination for cancer survivors.

show abstract

Section: Adequate Information and Collaboration To Combat Informationmentioning

confidence: 91%

Section: Adequate Information and Collaboration To Combat Informationmentioning

confidence: 99%

Section: Adequate Information and Collaboration To Combat Informationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The long shadow of childhood cancer: A qualitative study on insurance hardship among survivors of childhood cancer

Hendriks

Harju

Roser

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…76-79). Furthermore, the recent discourse constructs disablement as a motivational problem justifying the introduction of tighter control mechanisms, which reinforce societal hierarchies based on assumed capabilities (Piecek, Tabin, Perrin, & Probst, 2019). Therefore, recent developments for adults have increased the legal sanctioning of those individuals who cannot or will not, for whatever reason, work.…”

Section: Switzerlandmentioning

confidence: 99%

Competing Institutional Logics and Paradoxical Universalism: School-to-Work Transitions of Disabled Youth in Switzerland and the United States

Tschanz

Powell

2020

View full text Add to dashboard Cite

<p class="Default">Disablement is a complex social phenomenon in contemporary societies, reflected in disability policies oriented towards contrasting paradigms. Fraught with ambivalence, disability raises dilemmas of classification and targeted supports. Paradoxical universalism emphasizes that to achieve universality requires recognizing individual dis/abilities and particular contextual conditions and barriers that disable. Myriad aspects of educational and disability policies challenge both conceptualization and realization of universal policies, such as compulsory schooling, with widespread exclusion or segregation prevalent. Resulting tensions between providing support and ubiquitous stigmatization and separation are endemic, and particularly evident during life course transitions that imply shifting memberships in institutions and organizations. Particularly visible among disabled youth, school-to-work transitions are fundamentally challenged by contrasting policies, institutional logics, and institutionalized organizations. Analyzing institutional logics facilitates understanding of the lack of coordination that hinders successful transitions. Examining such challenges in the United States and Switzerland, we compare their labor markets and federal governance structures and contrasting education, welfare, and employment systems. Whereas lacking inter-institutional coordination negatively impacts disabled young adults in the United States, Switzerland’s robust vocational education and training system, while not a panacea, does provide more coordinated support during school-to-work transitions. These two countries provide relevant cases to examine ambivalence and contestation around the human right to inclusive education as well as the universality of the right (not) to work.</p>

show abstract

Health and Employment: Convention Theory’s Perspective on Work Incapacity

Nadai

Gonon

2022

Handbook of Economics and Sociology of Conventions

View full text Add to dashboard Cite

The ‘compliant’, the ‘pacified’ and the ‘rebel’: experiences with Swiss disability insurance

Abstract: View related articles View Crossmark data Citing articles: 3 View citing articles The 'compliant', the 'pacified' and the 'rebel': experiences with Swiss disability insurance

Cited by 9 publications

References 34 publications

The long shadow of childhood cancer: A qualitative study on insurance hardship among survivors of childhood cancer

The long shadow of childhood cancer: A qualitative study on insurance hardship among survivors of childhood cancer

Competing Institutional Logics and Paradoxical Universalism: School-to-Work Transitions of Disabled Youth in Switzerland and the United States

Health and Employment: Convention Theory’s Perspective on Work Incapacity

Contact Info

Product

Resources

About