The Complexity of Living with Hepatitis C

J, MacNeil

doi:10.1177/0894318412447567

Cited by 4 publications

(10 citation statements)

References 19 publications

(33 reference statements)

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“…Seventeen studies were conducted in Australia [21–23, 25, 30, 32, 33, 38, 39, 51, 53, 56–59, 64, 65], fifteen in the UK [24, 31, 34, 35, 37, 40, 46, 47, 49, 52, 55, 60, 61, 63, 66], eight in the United States [26, 27, 36, 41, 43, 48, 54, 62], four in Canada [28, 29, 45, 50], and one each from Pakistan [42] and France [44]. The studies were published between 1999 [39] and 2014 [40, 48].…”

Section: Resultsmentioning

confidence: 99%

“…The studies were published between 1999 [39] and 2014 [40, 48]. Data in these studies were analyzed using a variety of methods, including thematic and content analysis [21–23, 27, 45, 48, 56, 60, 64], inductive approach [28, 54, 57, 59], grounded theory [30, 32, 35, 46, 63], framework approach [61], phenomenological approach [31, 37, 40, 43, 51, 52, 66], interpretive approach [33, 39], and constant comparative analysis [41, 50]. Various software programs were used by these studies: NVivo [28, 29, 47, 48, 55, 62], atlas.ti [21–23, 26], and QSR ∗ NUDIST [41].…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Dowsett

Coward

Lorenzetti

et al. 2017

Canadian Journal of Gastroenterology and Hepatology

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Background and Aims. The lived experience of HCV has not been well documented in the literature. The aim of this systematic review was to understand the experiences of living with Hepatitis C Virus (HCV). Methods. Five databases were searched from inception until January 19, 2015. Studies were included if they focused on adults diagnosed with HCV; reported experience living with HCV; and described original research. Results. 46 studies were included. Studies found that participants had reduced quality of life due to physical symptoms. Due to physical symptoms and discrimination, many participants switched to part-time work or quit their jobs. Many individuals reported negative experiences with the healthcare system; themes of feeling unsupported, not having adequate information, and not feeling involved in decisions were reported. Stigma significantly impacted those living with HCV. Conclusions. Published literature indicates that those with HCV often feel stigmatized and unsupported in their care, relationships, and work environments, while simultaneously coping with physical and psychological symptoms. This synthesis points to areas where greater education, compassion, and patient-centered healthcare could improve the experience of people living with HCV.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Dowsett

Coward

Lorenzetti

et al. 2017

Canadian Journal of Gastroenterology and Hepatology

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“…The informational pattern informed nurses of the need for interviews beyond the number that was initially anticipated and/or beyond the expected length (Endo, et al, 2005;Falkenstern, et al, 2009;Kiser-Larson, 2002). Some Newman scholars looking across their participants used the relationship to illuminate the nature of participants' insights (Endo, et al, 2005;Kiser-Larson, 2002;Lamendola & Newman, 1994;Litchfield, 1999;Rosa, 2006) and turning points (MacNeil, 2012;Neill, 2005;Rosa, 2006). Yet found that when "families started to recall past meaningful events with their special needs child, they did not want to stop until they felt they were finished" prolonging some meetings to two and half hours (Falkenstern, et al, 2009, p. 269).…”

Section: Consciousnessmentioning

confidence: 99%

“…It was the moving beyond that represents humanness and resilience, and for that, each participant is thanked" (MacNeil, 2012). It was the moving beyond that represents humanness and resilience, and for that, each participant is thanked" (MacNeil, 2012).…”

Section: Consciousnessmentioning

confidence: 99%

Integrative Review on the Use of Newman Praxis Relationship in Chronic Illness

Rosa

2016

Nurs Sci Q

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Over the past 20 years, many Newman scholars across the globe have investigated health as expanding consciousness with persons living with chronic illness. This integrative review examines the use of the concept, relationship, and its seven dimensions-health, caring, consciousness, mutual process, patterning, presence, and meaning with persons with chronic illness when engaged in health as expanding consciousness praxis. A regular and sustained pattern of publication of studies that included the seven dimensions was found. Relationships among the dimensions of a Newman praxis relationship, chronic illness, and health as expanding consciousness are discussed.

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“…The scientific evidence for the relevance or acceptance by the nursing community is mainly provided by studies that make use of the theory in different parts of the research process. The most frequent use of the theory is that it has a function as a theoretical framework for the study [7,9,10] . This type of scientific evidence is estimated to confirm the relevance of nursing practice but it is most important not to claim incorrectly that the theory has been empirically evaluated per se.…”

Section: Introductionmentioning

confidence: 99%

Conceptions of an implemented nursing philosophy: A phenomenographic study

Traav

Gabrielsson

Cronqvist

2014

Clinical Nursing Studies

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Aim: The aim of this study was to describe how nurses conceive their work on a ward where a nursing philosophy has been systematically implemented. Introduction: There is no international consensus today in relation to the organizing of nursing on the basis of an established nursing theory. Design and method: This study has a phenomenographic methodology, with an epistemological base in life-world perspective. Data were collected through thematized interviews with nurses on a ward where a nursing philosophy has been implemented for several years. Result: The conceptions of working with a nursing philosophy is described in an overarching statement formulated as a movement From implicit to explicit-where openness and freedom to speak are essential based on five categories of description (conceptions): Making it happen-the manager´s significance for implementation, Integrating the philosophy within me-creating a collective platform, "Welcome to us"-a caring atmosphere, The patient's sense of being confirmed-establishing quality of care, "Us and them"-being inside or outside. Conclusion: Working with an implemented nursing philosophy seemed to provide support to the nurse in day-today work and thereby contributes to shared values. On the basis of the results we are not able to state that the specific nursing philosophy used can be the only contribution to the experienced support.

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The Complexity of Living with Hepatitis C

Cited by 4 publications

References 19 publications

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Living with Hepatitis C Virus: A Systematic Review and Narrative Synthesis of Qualitative Literature

Integrative Review on the Use of Newman Praxis Relationship in Chronic Illness

Conceptions of an implemented nursing philosophy: A phenomenographic study

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