The Community-targeted Self-management of Epilepsy and Mental Illness (C-TIME) initiative: A research, community, and healthcare administration partnership to reduce epilepsy burden

Sajatovic, Martha; Needham, Kelley; Colón-Zimmermann, Kari; Richter, Nicole; Liu, Hongyan; Garrity, John; Ryan, Eleanor R.; Storer, Norma; Harper, Valeria

doi:10.1016/j.yebeh.2018.10.004

Cited by 6 publications

(5 citation statements)

References 11 publications

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“…Targeted Training for Illness Management (TTIM) is an evidence-based, manualized, modular group intervention for the self-management of chronic illness, originally developed for people with severe mental illness. The evidence-based TTIM approach has been successfully adapted for a variety of chronic health conditions including epilepsy, stroke, Parkinson's disease, and diabetes [32][33][34][35][36]. TTIM was selected for this study by our stakeholders because it met the criteria for having both physical and mental health topics and had a version specific to diabetes.…”

Section: Curriculummentioning

confidence: 99%

The Invested in Diabetes Study Protocol: a cluster randomized pragmatic trial comparing standardized and patient-driven diabetes shared medical appointments

Kwan

Dickinson

Glasgow

et al. 2020

Trials

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Background: Shared medical appointments (SMAs) have been shown to be an efficient and effective strategy for providing diabetes self-management education and self-management support. SMA features vary and it is not known which features are most effective for different patients and practice settings. The Invested in Diabetes study tests the comparative effectiveness of SMAs with and without multidisciplinary care teams and patient topic choice for improving patient-centered and clinical outcomes related to diabetes. Methods: This study compares the effectiveness of two SMA approaches using the Targeted Training for Illness Management (TTIM) curriculum. Standardized SMAs are led by a health educator with a set order of TTIM topics. Patient-driven SMAs are delivered collaboratively by a multidisciplinary care team (health educator, medical provider, behavioral health provider, and a peer mentor); patients select the order and emphasis on TTIM topics. Invested in Diabetes is a cluster randomized pragmatic trial involving approximately 1440 adult patients with type 2 diabetes. Twenty primary care practices will be randomly assigned to either standardized or patient-driven SMAs. A mixed-methods evaluation will include quantitative (practice-and patient-level data) and qualitative (practice and patient interviews, observation) components. The primary patient-centered outcome is diabetes distress. Secondary outcomes include autonomy support, self-management behaviors, clinical outcomes, patient reach, and practicelevel value and sustainability. Discussion: Practice and patient stakeholder input guided protocol development for this pragmatic trial comparing SMA approaches. Implementation strategies from the enhanced Replicating Effective Programs framework will help ensure practices maintain fidelity to intervention protocols while tailoring workflows to their settings. Invested in Diabetes will contribute to the literature on chronic illness management and implementation science using the RE-AIM model.

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Section: Curriculummentioning

confidence: 99%

The Invested in Diabetes Study Protocol: a cluster randomized pragmatic trial comparing standardized and patient-driven diabetes shared medical appointments

Kwan

Dickinson

Glasgow

et al. 2020

Trials

Self Cite

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show abstract

“…Participants were recruited directly from community settings, neurology clinics, and by electronic health record identification of adults with epilepsy using follow-up program invitation letters. Similar to the pilot, C-TIME showed reductions in depression severity and high patient satisfaction with the program [46]. Sajatovic et al describe other opportunities for sustainability of this program within the scope of emerging value based care models and other health transformation opportunities [46].…”

Section: Building Community-clinical Linkagesmentioning

confidence: 93%

“…Similar to the pilot, C-TIME showed reductions in depression severity and high patient satisfaction with the program [46]. Sajatovic et al describe other opportunities for sustainability of this program within the scope of emerging value based care models and other health transformation opportunities [46]. In its cooperative agreement with the EF, CDC has provided funding to implement effective MEW Network interventions such as TIME, and other programs that target mood disorders and stress management, in community settings [47].…”

Section: Building Community-clinical Linkagesmentioning

confidence: 98%

“…Another example of a successful community-partnership approach to bridge gaps in mental healthcare for people with epilepsy is the Community-Targeted Self-Management for Epilepsy and Mental Illness (C-TIME) program [46]. Originally developed as a CDC Managing Epilepsy Well Network intervention, Targeted Self-Management for Epilepsy and Mental Illness (TIME), this intervention targets adults with epilepsy and comorbid mental illness, improving their depression outcomes compared with usual care [26].…”

Section: Building Community-clinical Linkagesmentioning

confidence: 99%

“…The ADAMHS board is the lead local public mental health and addiction treatment authority for residents of Cuyahoga County in Cleveland, Ohio. This agency provided modest funding for recruitment, interventionist time, and evaluation [46]. Participants were recruited directly from community settings, neurology clinics, and by electronic health record identification of adults with epilepsy using follow-up program invitation letters.…”

Section: Building Community-clinical Linkagesmentioning

confidence: 99%

See 2 more Smart Citations

Bridging the divide between epilepsy and mental health to drive solutions

Kobau

Owens

LaFrance

et al. 2019

Epilepsy & Behavior

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Since its establishment in 2000, Epilepsy & Behavior has published more than 1000 papers on mental health issues among people with epilepsy, including about 200 reviews. These studies on prevalence, treatment, and guidance for future research are important contributions to the field, and they offer great promise. Yet these papers and the multitude published in other journals over the years have failed to result in systematic, scaled changes in how the epilepsy field in the United States addresses mental health issues. The mental health assessment and management gap is especially notable given decades-old, as well as more recent, recommendations from national initiatives on epilepsy, consensus statements, and other expert appeals to reduce psychiatric burden. Selected or comprehensive elements of emerging models and latest approaches from behavioral health (e.g., peer support) and public health (e.g., community-clinical linkages) highlight current opportunities to engage multiple community partners and sectors to bridge the epilepsy and behavioral health fields to implement solutions for improved mental healthcare for people with epilepsy. In honor of the 20th anniversary of Epilepsy & Behavior and its contribution to the literature and the field, we seek to build public health roadmaps to bridge the epilepsy

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Premature discontinuation among individuals with epilepsy participating in epilepsy self-management research interventions

et al. 2022

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The Community-targeted Self-management of Epilepsy and Mental Illness (C-TIME) initiative: A research, community, and healthcare administration partnership to reduce epilepsy burden

Cited by 6 publications

References 11 publications

The Invested in Diabetes Study Protocol: a cluster randomized pragmatic trial comparing standardized and patient-driven diabetes shared medical appointments

The Invested in Diabetes Study Protocol: a cluster randomized pragmatic trial comparing standardized and patient-driven diabetes shared medical appointments

Bridging the divide between epilepsy and mental health to drive solutions

Premature discontinuation among individuals with epilepsy participating in epilepsy self-management research interventions

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