The chronic kidney disease self-efficacy (CKD-SE) instrument: development and psychometric evaluation

Lin, Chiu‐Chu; Wu, Chia‐Chen; Anderson, Robert M.; Chang, Chih‐Hau; Chang, Shu‐Chen; Hwang, Shang‐Jyh; Chen, Hung‐Chun

doi:10.1093/ndt/gfr788

Cited by 60 publications

(81 citation statements)

References 25 publications

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“…It is characterised by progressive loss in kidney function that gradually causes end-stage renal disease (ESRD) [2], which requires kidney transplantation or dialysis [3,4]. ESRD is the last stage of the National Kidney Foundation Kidney Disease Outcomes Quality [2].…”

Section: Introductionmentioning

confidence: 99%

“…Perceived disease-related self-efficacy (DSE) is essential to self-managing chronic disease successfully [3]. Recent studies discuss how ESRD patients treated with HD carry out selfmanagement activities in their daily life [11][12][13][14][15][16].…”

Section: Introductionmentioning

confidence: 99%

“…Recent studies discuss how ESRD patients treated with HD carry out selfmanagement activities in their daily life [11][12][13][14][15][16]. Patients should follow the treatment recommendations and learn to include them in their life circumstances in order to make CKD progress slowly and to have a stable life [3]. Generally, the concept of self-efficacy involves finding the limit at which the patients can achieve their desired outcomes.…”

Section: Introductionmentioning

confidence: 99%

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Dialysis-related factors affecting self-efficacy and quality of life in patients on haemodialysis: a cross-sectional study from Palestine

et al. 2018

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Background: Chronic kidney disease (CKD) is one of the main public health issues. It increases the morbidity and mortality of patients. Treatment includes multiple aspects such as dialysis and lifestyle modifications. The primary goal of this study was to determine factors associated with self-efficacy and health-related quality of life (HRQoL) among haemodialysis (HD) patients. Methods: A cross-sectional descriptive correlation study was conducted on CKD patients undergoing HD at 12 different dialysis centres in Palestine. Self-efficacy was assessed by the Self-Efficacy for Managing Chronic Disease Six-Item Scale (SEMCD-6), and HRQoL was assessed using the Five-level EuroQol Five-Dimensions (EQ-5D-5L) tool. Multiple linear regression analysis was carried out to assess the association of factors with each of the SEMCD-6 and HRQoL scale scores. Results: A total of 283 HD patients were included in the study. A correlation test revealed moderately positive association between the EQ-5D and SEMCD-6 scores (r = 0.497, p value < 0.001). In multiple linear regression analysis, age, living status, and number of co-morbid diseases were negatively associated with SEMCD-6 scores (β = − 2.66, p = 0.016; β = − 5.71, p = 0.033; β = − 1.84, p = 0.006, respectively). Furthermore, there is a positive association between educational level and SEMCD-6 score with QoL score (β = 0.05, p = 0.017; β = 0.01, p < 0.001, respectively), while there is a negative association between the number of co-morbid diseases and QoL score (β = − 0.07, p = 0.001).Conclusions: This study assessed factors associated with impaired self-efficacy and HRQoL in HD patients. The results show that impaired self-efficacy was associated with the elderly, patients living with family, and patients with a high number of co-morbid diseases. Furthermore, this study found that the worst HRQoL was associated with patients with a low education level, lower levels of self-efficacy, and a high number of co-morbid diseases.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Dialysis-related factors affecting self-efficacy and quality of life in patients on haemodialysis: a cross-sectional study from Palestine

et al. 2018

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“…12 Self-efficacy, 13 the self-belief that one can successfully carry out a specific behavior in a specific situation, has been shown to be predictive of improved health behaviors and outcomes broadly 14–16 and in CKD specifically. 4, 8 In the few studies of self-efficacy in CKD, 17–25 a broad range of scales have been used, ranging from generalized self-efficacy 19, 26 to self-efficacy in restricting dietary sodium. 20 Overall, the literature supports that self-efficacy in CKD is positively associated with medication adherence, quality of life, treatment adherence, education, and self-care behaviors, and negatively associated with depression, with gender and age having been shown to be modifying factors.…”

Section: Introductionmentioning

confidence: 99%

“…One measure, the 25-item chronic kidney disease self-efficacy (CKD-SE) instrument was validated in a population of Taiwanese patients with CKD. 19 It has been used in pilot studies and displays good psychometric qualities. However, the length of the CKD-SE measure limits its utility in clinical settings.…”

Section: Introductionmentioning

confidence: 99%

The Perceived Medical Condition Self-Management Scale can be applied to patients with chronic kidney disease

Wild

Wallston

Green

et al. 2017

Kidney International

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Chronic Kidney Disease (CKD) is a major burden on patients and the healthcare system. Treatment of CKD requires dedicated involvement from both caretakers and patients. Self-efficacy, also known as perceived competence, contributes to successful maintenance of patient’s CKD self-management behaviors such as medication adherence and dietary regulations. Despite a clear association between self-efficacy and improved CKD outcomes, there remains a lack of validated self-report measures of CKD self-efficacy. To address this gap, the Perceived Kidney/Dialysis Self-Management Scale (PKDSMS) was adapted from the previously validated Perceived Medical Condition Self-Management Scale. We then sought to validate this using data from two separate cohorts: a cross-sectional investigation of 146 patients with end-stage renal disease receiving maintenance hemodialysis and a longitudinal study of 237 patients with CKD not receiving dialysis. The PKDSMS was found to be positively and significantly correlated with self-management behaviors and medication adherence in both patient cohorts. The PKDSMS had acceptable reliability, was internally consistent, and exhibited predictive validity between baseline PKDSMS scores and self-management behaviors across multiple time points. Thus, the PKDSMS is a valid and reliable measure of CKD patient self-efficacy and supports the development of interventions enhancing perceived competence to improve CKD self-management.

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Data and knowledge standards for learning health: A population management example using chronic kidney disease

Cameron

Douthit

Richesson

2018

Learning Health Systems

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The widespread creation of learning health care systems (LHSs) will depend upon the use of standards for data and knowledge representation. Standards can facilitate the reuse of approaches for the identification of patient cohorts and the implementation of interventions. Standards also support rapid evaluation and dissemination across organizations. Building upon widely-used models for process improvement, we identify specific LHS activities that will require data and knowledge standards. Using chronic kidney disease (CKD) as an example, we highlight the specific data and knowledge requirements for a disease-specific LHS cycle, and subsequently identify areas where standards specifications, clarification, and tools are needed. The current data standards for CKD population management recommendations were found to be partially ambiguous, leading to barriers in phenotyping, risk identification, patient-centered clinical decision support, patient education needs, and care planning.Robust tools are needed to effectively identify patient health care needs and preferences and to measure outcomes that accurately depict the multiple facets of CKD. This example presents an approach for defining the specific data and knowledge representation standards required to implement condition-specific population health management programs. These standards specifications can be promoted by disease advocacy and professional societies to enable the widespread design, implementation, and evaluation of evidence-based health interventions, and the subsequent dissemination of experience in different settings and populations. arising from overwhelming system complexity, suboptimal data quality and analytical tools, and misaligned health care policies. [2][3][4][5][6] In particular, health care organizations struggle to leverage data stored within proprietary electronic health record (EHR) systems to gainThis is an open access article under the terms of the Creative Commons Attribution-NonCommercial-NoDerivs License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non-commercial and no modifications or adaptations are made. In this paper, we use existing models for evidence-based medicine (EBM), learning health, and process improvement to identify datadependent activities, which by definition will benefit from the use of standards. We identify relevant data domains for each datadependent activity, and look at national standards to evaluate the clarity and specificity of those current data standards in the context of a population management program for CKD. | DATA-DEPENDENT ACTIVITIES AND STANDARDS FOR LEARNING HEALTH SYSTEMSIn an early roundtable on learning health, the Institute of Medicine set a goal that "by the year 2020, ninety percent of clinical decisions will be supported by accurate, timely, and up-to-date information, and will reflect the best available evidence. The data-dependent LHS activities (design, implement, evaluate, and adjust) are presented above with a n...

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The chronic kidney disease self-efficacy (CKD-SE) instrument: development and psychometric evaluation

Abstract: This promising 25-item CKD-SE instrument can be used for the early identification of patients with low DSE, thus allowing the development of interventions to help these patients attain an appropriate level of DSE.

Cited by 60 publications

References 25 publications

Dialysis-related factors affecting self-efficacy and quality of life in patients on haemodialysis: a cross-sectional study from Palestine

Dialysis-related factors affecting self-efficacy and quality of life in patients on haemodialysis: a cross-sectional study from Palestine

The Perceived Medical Condition Self-Management Scale can be applied to patients with chronic kidney disease

Data and knowledge standards for learning health: A population management example using chronic kidney disease

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