The childbearing experience of women with spinal cord injury in Iran: a phenomenological study

Khazaeipour, Zahra; Nasrabadi, Alireza Nikbakht; Mohammadi, Nooredin; Salehi-Nejad, Alireza; Shabany, Maryam

doi:10.1038/s41393-018-0162-3

Cited by 6 publications

(2 citation statements)

References 31 publications

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“…Data on women’s experience of planning and becoming a mother in the presence of a pre-existing condition derive from small sample sizes but revealed to be of enormous importance ( 27–30 ). Iezzoni et al ( 46 ) analyzed peer recommendations for pregnant women with disabilities summarizing five main topics, including the lack of information about the interaction between pregnancy and health condition, access to health care, the feasibility of becoming pregnant and giving birth in the presence of a disability, building support systems, and managing fears.…”

Section: Discussionmentioning

confidence: 99%

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Obstetric Medicine: the protocol for a prospective three-dimensional cohort study to assess maternity care for women with pre-existing conditions (ForMaT)

Jost,

Kosian,

Greiner

et al. 2024

Front. Med.

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BackgroundPregnancies in women with pre-existing medical conditions are on the rise. These pregnancies are characterized by an increased rate of maternal and perinatal complications, which can result in higher health care expenditures and altered pregnancy experiences. The purpose of this study is to integrally analyze maternity care for women with pre-existing conditions in the framework of a risk-adapted, interdisciplinary care by recording three substantial parts of maternity care: (1) maternal and perinatal outcome; (2) hospital costs and reimbursements covering the period from preconception counseling or initial antenatal visit to discharge after birth; and (3) women’s experience of reproductive choice and becoming a mother in the presence of a pre-existing condition.MethodsIn this observational, prospective, longitudinal, and monocentric cohort study, we aim to include a total of 1,500 women over a recruitment period of 15 months. Women registering for care at the Department of Obstetrics and Prenatal Medicine, University Hospital Bonn, Germany, are allocated to three groups based on their health and risk status: women with pre-existing conditions, as well as healthy women with obstetric risk factor and healthy women with a low-risk pregnancy. Participants are observed from time of initial consultation until discharge after birth. Analysis focuses on (1) maternal and perinatal outcome, especially rate of severe maternal and neonatal morbidity; (2) costs and reimbursements; and (3) surveys to capture of women’s experience and health-related quality of life during the time of reproductive choice, pregnancy, and childbirth in the presence of pre-existing medical conditions.DiscussionWith its complex three-dimensional design, the ForMaT-Trial is aiming to provide a comprehensive analysis of pregnancy and childbirth in women with pre-existing conditions. The results may serve as a basis for counseling and care of these women. By analyzing costs of specialized care, data for discussing reimbursement are generated. Lastly, our results may increase awareness for the perception of reproductive choice, pregnancy and motherhood in this continuously rising population.Clinical trial registration: German Clinical Trials Register, DRKS00030061, October 28, 2022.

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Section: Discussionmentioning

confidence: 99%

“…A further aspect related to this topic involves the experience of becoming a mother in the presence of a pre-existing condition. The perception of pursuing pregnancy and becoming a mother has been investigated for specific conditions and in small sample sizes ( 27–30 ).…”

Section: Introductionmentioning

confidence: 99%

Obstetric Medicine: the protocol for a prospective three-dimensional cohort study to assess maternity care for women with pre-existing conditions (ForMaT)

Jost,

Kosian,

Greiner

et al. 2024

Front. Med.

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Lifestyle assessment in individuals with spinal cord injuries caused by accidents and disasters in qualitative studies published from 1990 to 2020: A meta‐synthesis of qualitative study

Nazari,

Moradi,

Danyali

et al. 2023

Health Science Reports

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Background and Aims As a debilitating disorder, spinal cord injuries (SCIs) can bring about a range of physical, psychological, and social consequences in individuals and even have effects on their lifestyle indicators. The present study was thus to reflect on lifestyles among people with SCIs developing from accidents and disasters. Methods Using a meta‐synthesis of qualitative research, all articles recruiting qualitative methods to examine patients with SCIs, published from 1990 to 2020, were retrieved by the researchers, good at the Persian and English languages, from the databases of ScienceDirect, MD Consult, Pedro, ProQuest, PubMed, SID, MedLib, Magiran, Scopus, Google Scholar, Iranmedex, the Cochran Library, CINAHL, and Blackwell, tapping the keywords of “spinal cord injury, SCI, manmade disaster, natural disaster, content analysis, concept analysis, thematic analysis, lifestyle, quality of life, QoL, grounded theory, meta‐synthesis, mixed‐methods research, historical research, ethnography, and phenomenology” in both languages for their inclusion in this study and further analyses. Results With reference to the inclusion criteria, 18 articles were extracted, and after all 10 studies in line with the research topic were reviewed and analyzed. Ultimately, six main themes, namely, compromise, self‐reliance, income‐generating activities, mental status, inability, and issues of sexuality were extracted, demonstrating their importance to individuals suffering from SCIs. Conclusion During the initial stages following SCIs, the abilities to engage in participatory practices and individual's power of decision‐making diminish because of physical, social, psychological, and environmental constraints. It was accordingly recommended to have a holistic perspective and respect all aspects of life in individuals with SCIs.

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Sexual Health Among Individuals with Spinal Cord Injury: A Meta-Synthesis of Qualitative Evidence

Giurleo¹,

McIntyre²,

Harnett³

et al. 2023

Sex Disabil

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The childbearing experience of women with spinal cord injury in Iran: a phenomenological study

Cited by 6 publications

References 31 publications

Obstetric Medicine: the protocol for a prospective three-dimensional cohort study to assess maternity care for women with pre-existing conditions (ForMaT)

Obstetric Medicine: the protocol for a prospective three-dimensional cohort study to assess maternity care for women with pre-existing conditions (ForMaT)

Lifestyle assessment in individuals with spinal cord injuries caused by accidents and disasters in qualitative studies published from 1990 to 2020: A meta‐synthesis of qualitative study

Sexual Health Among Individuals with Spinal Cord Injury: A Meta-Synthesis of Qualitative Evidence

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