The Cellie Coping Kit for Children with Injury: Initial feasibility, acceptability, and outcomes

Marsac, Meghan L.; Weiss, Danielle; Kohser, Kristen L.; Allen, Jason Van; Seegan, Paige L.; Ostrowski‐Delahanty, Sarah; McGar, Ashley; Winston, Flaura Koplin; Kassam‐Adams, Nancy

doi:10.1111/cch.12565

Cited by 5 publications

(9 citation statements)

References 31 publications

(37 reference statements)

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“…Thus, the intervention can offer a low-cost avenue for medical teams to provide some initial support to children with EoE and their families, while requiring minimal additional time from the medical teams. Also consistent with other Cellie Coping Kit intervention studies (e.g., Marsac et al, 2018;Cole et al, 2017), a few children and caregivers indicated that the materials had too many words or were confusing. It may be that some families would benefit from intervention materials that are less reading focused, are aimed for a lower reading level, or that use more non-verbal techniques such as visual schedules or pictures of challenges and solutions.…”

Section: Discussionsupporting

confidence: 82%

The Cellie Coping Kit for children with Eosinophilic Esophagitis: Feasibility, acceptability, and preliminary outcomes

Benitez

McGar

Kohser

et al. 2022

J Child Health Care

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Children with eosinophilic esophagitis (EoE) are faced with ongoing treatments that can impact their wellbeing. There are no evidence-based resources that families can implement independently to cope with EoE-related stressors. This study aimed to examine acceptability, feasibility, and preliminary outcomes of the newly developed Cellie Coping Kit for Children with EoE intervention. Forty child-caregiver dyads completed a baseline assessment (T1) and initiated the intervention; 30 (75%) child participants and 33 (82.5%) caregivers were retained to follow-up (T2). Of those who completed the T2 assessment, most reported that the intervention was easy to use (>90%) and would recommend the intervention to others (>90%). The intervention was feasible: >70% used the kit, and most indicated they would use it again (>75%). More than half of families reported learning new information and/or coping strategies. No statistically significant changes were identified in comparing T1 and T2 coping and health-related quality of life. These findings suggest that the Cellie Coping Kit for Children with EoE is a promising intervention in that it was well accepted, feasible, and helped many families learn novel strategies on how to manage EoE challenges. Future research should examine how to strengthen the intervention to achieve longer-term targeted outcomes.

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Section: Discussionsupporting

confidence: 82%

The Cellie Coping Kit for children with Eosinophilic Esophagitis: Feasibility, acceptability, and preliminary outcomes

Benitez

McGar

Kohser

et al. 2022

J Child Health Care

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“…Although parents have been involved in early interventions after child trauma, the primary goal of these interventions was to minimise long-term psychological problems in the child (e.g. De Young, Haag, Kenardy, Kimble, & Landolt, 2016;Kramer & Landolt, 2011;Marsac et al, 2018). Extending programs by specifically targeting parents' psychological reactions as well, may enhance positive outcomes in both children and parents.…”

Section: Clinical and Research Implicationsmentioning

confidence: 99%

Parents’ memories and appraisals after paediatric burn injury: a qualitative study

Egberts

Engelhard

Jong

et al. 2019

European Journal of Psychotraumatology

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Background : It is well established that a paediatric burn injury can lead to parental post-traumatic stress symptoms. The content of parents’ memories and appraisals may reveal the traumatic experiences that need attention. Objective : To inform clinical practice, the aim of this study was to qualitatively examine parents’ (intrusive) memories and appraisals, and associated emotions, concerning the injury, the hospitalisation, and its consequences. Method : Approximately three to six months after the burn event, semi-structured interviews were conducted with parents of 18 children (0–16 years old) that had been hospitalised for a burn injury. Thematic analysis was carried out to obtain themes. Results : A central element in parents’ memories and appraisals was a sense of external or internal threat. Intrusive memories were predominantly related to the accident and first aid (i.e. threat of the injury), whereas parents’ memories about the child’s suffering were emotional but not experienced as intrusive. Later appraisals of the burn injury and its consequences included negative appraisals of the child’s increased vulnerability, responsibility of self or other, the child’s prolonged suffering and (risk of) permanent change, as well as appraisals of positive outcome and recovery. Emotions commonly reported in the context of memories and appraisals were fear, sadness, guilt, and relief. Conclusions : This study offers insight into the traumatic nature of paediatric burn injury from the parent’s perspective and provides directions for the delivery of trauma-informed (after)care.

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“…Building on promising findings from pilot studies [25], the current RCT goals represent an important next step in the advancement of the Cellie Coping Intervention for Injury. The strengths and potential positive outcomes of implementing a waitlist control RCT design with multiple informants are numerous.…”

Section: Discussionmentioning

confidence: 99%

“…95% of parents would recommend it to others) and most reported learning new skills (e.g. how to facilitate a conversion about the injury) [25]. The trial described here will provide initial data on the intervention’s impact on proximal and longer-term health outcomes.…”

Section: Cellie Coping Kit For Children With Injury Intervention Descmentioning

confidence: 99%

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A parent-led intervention to promote recovery following pediatric injury: study protocol for a randomized controlled trial

Marsac

Sprang

Guller

et al. 2019

Trials

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Background Injury is one of the most prevalent potentially emotionally traumatic events that children experience and can lead to persistent impaired physical and emotional health. There is a need for interventions that promote full physical and emotional recovery and that can be easily accessed by all injured children. Based on research evidence regarding post-injury recovery, we created the Cellie Coping Kit for Children with Injury intervention to target key mechanisms of action and refined the intervention based on feedback from children, families, and experts in the field. The Cellie Coping Kit intervention is parent-guided and includes a toy (for engagement), coping cards for children, and a book for parents with evidence-based strategies to promote injury recovery. This pilot research trial aims to provide an initial evaluation of the impact of the Cellie Coping Kit for Children with Injury on proximal targets (coping, appraisals) and later child health outcomes (physical recovery, emotional health, health-related quality of life). Method / Design Eighty children (aged 8–12 years) and their parents will complete a baseline assessment (T1) and then will be randomly assigned to an immediate intervention group or waitlist group. The Cellie Coping Kit for Injury Intervention will be introduced to the immediate intervention group after the T1 assessment and to the waitlist group following the T3 assessment. Follow-up assessments of physical and emotional health will be completed at 6 weeks (T2), 12 weeks (T3), and 18 weeks (T4). Discussion This will be one of the first randomized controlled trials to examine an intervention tool intended to promote full recovery after pediatric injury and be primarily implemented by children and parents. Results will provide data on the feasibility of the implementation of the Cellie Coping Intervention for Injury as well as estimations of efficacy. Potential strengths and limitations of this design are discussed. Trial registration Clinicaltrials.gov, NCT03153696 . Registered on 15 May 2017. Electronic supplementary material The online version of this article (10.1186/s13063-019-3207-9) contains supplementary material, which is available to authorized users.

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The Cellie Coping Kit for Children with Injury: Initial feasibility, acceptability, and outcomes

Cited by 5 publications

References 31 publications

The Cellie Coping Kit for children with Eosinophilic Esophagitis: Feasibility, acceptability, and preliminary outcomes

The Cellie Coping Kit for children with Eosinophilic Esophagitis: Feasibility, acceptability, and preliminary outcomes

Parents’ memories and appraisals after paediatric burn injury: a qualitative study

A parent-led intervention to promote recovery following pediatric injury: study protocol for a randomized controlled trial

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