The Caregiver’s Tale: Loss and Renewal in Memoirs of Family Life ‐ Edited by Ann Burack‐Weiss

Graves, Nicole A.

doi:10.1111/j.1741-3737.2006.00359.x

Cited by 1 publication

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“…In the past few decades, research on patients with chronic diseases who need long‐term care has focused on the exploration and discussion of patients or caregivers as independent individuals, and there is a lack of research on families as a whole. In 2003, Ann Burack pointed out the huge gap between biomedical education and families and caregivers, as well as the oft‐neglected importance of family resilience (Graves, 2007). Many researchers have applied the theory of family resilience to long‐term care families to explore the influencing factors on family resilience (Wang et al, 2015), understand how families use their strength to cope with stress and difficulties (Geard et al, 2020), and preliminarily construct family resilience intervention programmes (Gauvin‐Lepage et al, 2015).…”

Section: Introductionmentioning

confidence: 99%

Family resilience of patients requiring long‐term care: A meta‐synthesis of qualitative studies

Kuang

Wang

et al. 2022

Journal of Clinical Nursing

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Background: Long-term care of patients with chronic illnesses is an important global public health issue, compromising the well-being of family members and the family functioning. Previous studies have examined the interactive experiences and processes of various systems in the families coping with long-term care stress; however, these studies have not been systematically reviewed and integrated.Aims: This review aimed to synthesise the existing qualitative evidence on the experiences and processes of family resilience operate in families providing long-term care for patients with chronic illnesses and to provide suggestions for the development of interventions in future studies. Materials & Methods:We searched databases including PubMed, CINAHL, EMBASE, Web of Science, ProQuest and CNKI from their inception to March 2022. We used the JBI Critical Appraisal Tool for qualitative studies to evaluate the quality of the included studies was evaluated according to. We followed The Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) statement. The results were integrated using the thematic and content analysis method. Results: Fourteen studies from eight countries covering 11 diseases reported on the experiences and coping processes of long-term care families. Based on McCubbin's Resiliency Model of Family Stress, Adjustment and Adaptation (FAAR), five analytical themes were synthesised: stressors (risk factors), family belief system, internal family coping strategies, external support and resilient adaptation indicators; the relationships between themes and subthemes were illustrated. Discussion: This review synthesized qualitative evidence on the experiences and processes of family resilience operate in families providing long-term care. The results of this study found that the cognition and belief of family members regarding dilemmas have a two-way effect and act on the adaptation process of family members. In family adaptation, spirituality, hope, internal and external support are extremely important.

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Section: Introductionmentioning

confidence: 99%