The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies

Charron, Philippe; Elliott, Perry; Gimeno, Juan R.; Caforio, Alida L.P.; Kaski, Juan Pablo; Tavazzi, Luigi; Tendera, Michał; Maupain, Carole; Laroche, Cécile; Rubiś, Paweł; Jurcuţ, Ruxandra; Calò, Leonardo; Heliö, Tiina; Sinagra, Gianfranco; Zdravković, Marija; Kavoliūnienė, Aušra; Felix, Stephan B.; Grzybowski, Jacek; Losi, Maria Angela; Asselbergs, Folkert W.; García‐Pinilla, José Manuel; Salazar-Mendiguchía, Joel; Mizia-Stec, Katarzyna; Maggioni, Aldo P.; Investigators, Eorp Cardiomyopathy Registry

doi:10.1093/eurheartj/ehx819

Cited by 104 publications

(120 citation statements)

References 22 publications

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“…Comparable to the genetic background discussed for DoCM, genetic reasons are also assumed to be prominent in human DCM (44). A familial disease history was found in 25% of the human DCM patients (45) detected by a highly diverse genetic background with several gene mutations that, nevertheless, produces a relatively unique DCM phenotype (2).…”

Section: Discussionmentioning

confidence: 99%

Doberman pinschers present autoimmunity associated with functional autoantibodies: a model to study the autoimmune background of human dilated cardiomyopathy

Schimke

Wess

Wallukat

et al. 2019

Preprint

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Section: Discussionmentioning

confidence: 99%

Doberman pinschers present autoimmunity associated with functional autoantibodies: a model to study the autoimmune background of human dilated cardiomyopathy

Schimke

Wess

Wallukat

et al. 2019

Preprint

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“…Many patients are asymptomatic and diagnosed incidentally on investigation 9. Observational studies indicate that more than two thirds of those with HCM are asymptomatic 1011.…”

Section: How Do Patients Present?mentioning

confidence: 99%

Inherited cardiomyopathies

Miles

Fanton

Tomé

et al. 2019

BMJ

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“…Previous studies observed a prevalence of 1/500 for HCM [11] and~1/2500 for DCM [12] in the general population, but these could be underestimates [13]. A European prospective registry was recently conducted on the various cardiomyopathies [16], but this EURObservational Research Programme (EORP) project was restricted to selected centers and was thus unable to estimate population prevalence.…”

Section: Introductionmentioning

confidence: 99%

The Public Health Burden of Cardiomyopathies: Insights from a Nationwide Inpatient Study

Lannou

Mansencal

Couchoud

et al. 2020

JCM

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Cardiomyopathies are responsible for heart failure and sudden cardiac death, but epidemiological data are scarce and the public health burden may be underestimated. We studied aggregating data from all public or private hospitals in France. Patients were categorized from relevant ICD-10 codes into dilated, hypertrophic, restrictive, or other cardiomyopathies (DCM, HCM, RCM, or OCM, respectively). Between 2008 and 2015, a total of 326,461 distinct patients had cardiomyopathy-related hospitalizations. The hospital-based prevalence of cardiomyopathy was 809 per million inhabitants (PMI) per year, including 428 PMI for DCM, 101 PMI for HCM, 26 PMI for RCM, and 253 PMI for OCM. Patients with cardiomyopathies accounted for 51% of all heart transplants, 33% of defibrillator implantations, 38% of mechanical circulatory supports, and 11.3% of hospitalizations for heart failure. In patients less than 40 years of age, these figures were 71%, 51%, 63%, and 23%, respectively. Over 2008–2015 and considering all cardiomyopathies, there was a significant increase for heart transplant (average annual percentage change, AAPC: +3.86%, p = 0.0015) and for defibrillator implantation (AAPC: +6.98%, p < 0.0001), and a significant decrease of in-hospital mortality (AAPC: −4.7%, p = 0.0002). This nationwide study shows that cardiomyopathies constitute an important cause of hospitalization, with increasing invasive therapeutic procedures and decreasing mortality.

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The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies

Cited by 104 publications

References 22 publications

Doberman pinschers present autoimmunity associated with functional autoantibodies: a model to study the autoimmune background of human dilated cardiomyopathy

Doberman pinschers present autoimmunity associated with functional autoantibodies: a model to study the autoimmune background of human dilated cardiomyopathy

Inherited cardiomyopathies

The Public Health Burden of Cardiomyopathies: Insights from a Nationwide Inpatient Study

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