The Canadian minimum dataset for chronic low back pain research: a cross-cultural adaptation of the National Institutes of Health Task Force Research Standards

Lacasse, Anaïs; Roy, Jean-Sébastien; Parent, Alexandre; Noushi, Nioushah; Odenigbo, Chúk; Pagé, M. Gabrielle; Beaudet, Nicolas; Choinière, Manon; Stone, Laura S.; Ware, Mark A.

doi:10.9778/cmajo.20160117

Cited by 23 publications

(21 citation statements)

References 30 publications

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“…In 2014, The US National Institute of Health (NIH) introduced a minimal dataset for chronic low back pain (CLBP) to increase use of standardized definitions and measures and to facilitate comparison in clinical and epidemiological studies. 1–3 This self-report questionnaire has been translated and adapted to Canadian French, 4 Farsi, 5 and Dutch. 6 The NIH minimal dataset includes items related to medical history and self-report measures of physical function, psychosocial functioning, sleep disturbance, pain intensity, and pain interference.…”

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confidence: 99%

The NIH Minimal Dataset for Chronic Low Back Pain

Dutmer

Reneman

Preuper

et al. 2019

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Supplemental Digital Content is available in the textLongitudinal validity of the NIH minimal dataset was tested. Responsiveness was established with areas under the ROC curve of 0.84 for the total outcome score and 0.91 for Impact Stratification. Compared to mean baseline scores, an improvement of 14 points on the total outcome score and 7.5 points on Impact Stratification can be interpreted as clinically important.

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confidence: 99%

The NIH Minimal Dataset for Chronic Low Back Pain

Dutmer

Reneman

Preuper

et al. 2019

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“… 6 Demographic characteristics and clinical scores (eg, pain intensity, physical function) were extracted from the minimum dataset. 10 The study was approved by the IRB of McGill University (Project: #A06-M22-18A), in accordance with the Declaration of Helsinki. Participants provided written informed consent.…”

Section: Methodsmentioning

confidence: 99%

Low back pain definitions: effect on patient inclusion and clinical profiles

Massé‐Alarie

Angarita-Fonseca

Lacasse

et al. 2022

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Introduction: Numerous definitions of acute low back pain (aLBP) exist. The use of different definitions results in variability in reported prevalence or incidence, conflicting data regarding factors associated with the transition to chronic LBP (cLBP), and hampers comparability among studies.Objective: Here, we compare the impact of 3 aLBP definitions on the number of aLBP cases and participants' characteristics and explore the distribution of participants across definitions. Methods: A sample of 1264 participants from the Quebec Low Back Pain Study was included. Three definitions of aLBP were used:(1) not meeting the National Institutes of Health (NIH) cLBP definition ("nonchronic"), (2) pain beginning ,3 months ago ("acute"), and (3) pain beginning ,3 months with a preceding LBP-free period ("new episode"). Results: There were 847, 842, and 489 aLBP cases meeting the criteria for the 3 definitions, respectively. Participants included in the "nonchronic" had lower pain interference, greater physical function scores, and fewer participants reporting .5 years of pain than in the other definitions. Half the participants meeting the "acute" definition and one-third of participants meeting the "new episode" definition were also classified as cLBP based on the NIH definition. Conclusions: Our results highlight the importance of the definition used for aLBP. Different definitions influence the sample size and clinical profiles (group's characteristics). We recommended that cohort studies examining the transition from aLBP to cLBP ensure that the definitions selected are mutually exclusive (ie, participants included [aLBP] differ from the expected outcome [cLBP]).

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“…The COPE Cohort self-reported questionnaire included all indicators identified as a minimum dataset by the Canadian Registry Working Group of the Strategy for Patient-Oriented Research (SPOR) Chronic Pain Network (CPN) ( 37 ). Item selection was also guided by core outcome domains and measures identified by the Initiative on Methods, Measurement and Pain Assessment in Clinical Trials (IMMPACT) ( 38 , 39 ), items of the Canadian minimum dataset for chronic low back pain research ( 40 ), and variables assessed in the Quebec Pain Registry ( 41 ). Self-reported COPE data was also intended to be linked to longitudinal administrative data (medical and prescription claims).…”

Section: Methodsmentioning

confidence: 99%

Gender Differences in Medication Adverse Effects Experienced by People Living With Chronic Pain

et al. 2022

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ObjectivesUnderstanding gender differences in chronic pain (CP) outcome research is essential to optimal treatment delivery. This study explored the associations between gender identity, gender roles, and the number of non-life-threatening pain medication adverse effects reported as severe by people living with CP.MethodsThe analyses were conducted using the COPE Cohort, a dataset generated through a web-based recruitment of adults with CP. Participants were asked how they identified themselves (women, men, unknown, unspecified) and gender roles were measured using the Bem Sex-Role Inventory (subgroups were formed applying the median split method). Pain medication adverse effects were assessed using a standardized checklist (none/mild/moderate/severe). A zero-inflated Poisson model was used to assess gender identity, gender roles and their interaction as potential predictors of the number of pain medication adverse effects.ResultsA total of 1,343 participants reported using pain medications. Adjusting for potential confounders, both gender identity (men vs. women: ß = −0.32, p = 0.0024) and gender roles (androgynous vs. undifferentiated: ß = 0.26, p = 0.0030) were associated with the number of pain medication adverse effects reported as severe, and they interacted with each other. The stratified analysis by gender roles showed that women reported a greater number of severe adverse effects than men among those classified as masculine and androgynous.DiscussionAlthough we are unable to confirm whether the associations can be explained by differences in the experience or in the reporting of effects, gender identity and gender roles should both be explored when studying pain medication adverse effects.

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The Canadian minimum dataset for chronic low back pain research: a cross-cultural adaptation of the National Institutes of Health Task Force Research Standards

Cited by 23 publications

References 30 publications

The NIH Minimal Dataset for Chronic Low Back Pain

The NIH Minimal Dataset for Chronic Low Back Pain

Low back pain definitions: effect on patient inclusion and clinical profiles

Gender Differences in Medication Adverse Effects Experienced by People Living With Chronic Pain

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