The burden of headache in Russia: validation of the diagnostic questionnaire in a population-based sample

Ayzenberg, Ilya; Katsarava, Zaza; Mathalikov, R; Chernysh, Mikhail F.; Осипова, В. В.; Tabeeva, G. R.; Steiner, Timothy J.

doi:10.1111/j.1468-1331.2010.03177.x

Cited by 47 publications

(67 citation statements)

References 16 publications

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“…ML and TJS brought expertise in headache disorders, AR and AH in psychiatry and KM in epidemiology. TJS contributed experience from similar nationwide studies in other countries [27-30], which had led to the development of methodological guidelines [20]. …”

Section: Methodsmentioning

confidence: 99%

Estimating prevalence and burden of major disorders of the brain in Nepal: cultural, geographic, logistic and philosophical issues of methodology

et al. 2014

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BackgroundHeadache, anxiety and depression are major disorders of the brain in terms of their prevalence and the burdens and costs they impose on society. Nationwide population-based studies of these disorders are necessary to inform health policy but, in research-naïve and resource-poor countries such as Nepal, a host of methodological problems are encountered: cultural, geographic, logistic and philosophical.MethodsExpert consensus was sought among researchers from different professional and cultural backgrounds in planning and conceptualizing an epidemiological study and adapting established methods to the special situation and circumstances of Nepal.ResultsThe methodological problems were sorted into different themes: study design; climate; geography, access and transport; sociocultural issues; safety of interviewers. Each of these was dealt with separately, and their inter-relationships explored, in finding solutions that were sometimes pragmatic. A cross-sectional questionnaire-based study, with teams of interviewers visiting households across the three physiographic divisions (with extremes in altitude) in each of the five development regions of the country, would enable national sampling with sociocultural representativeness. However, the study instruments and interviews would be in Nepali only. Transport and access challenges were considerable, and their solutions combined travel by air, bus, river and foot, with allowances for rain-damaged roads, collapsed bridges and cancelled scheduled flights. The monsoon would render many routes impassable, and therefore set an absolute time limitation. Engaging participants willingly in the enquiry would be the key to success, and several tactics would be employed to enhance the success of this, most importantly enlisting the support of local community volunteers in each study site.ConclusionAnticipating problems in advance of investing substantial resources in a large nationwide epidemiological study in Nepal was a sensible precaution. The difficulties could be resolved or circumvented without expected compromise in scientific quality. Expert consensus was an effective means of achieving this outcome.

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Section: Methodsmentioning

confidence: 99%

Estimating prevalence and burden of major disorders of the brain in Nepal: cultural, geographic, logistic and philosophical issues of methodology

et al. 2014

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“…It is not known how reliable recall is for such matters, but at best it is likely to be variable and at worst highly misleading [10]. Recent studies initiated by the Global Campaign against Headache [5] in Russia [11], China [12,13], India [14], Pakistan [15] and Zambia (unpublished) introduced enquiry into “headache yesterday”, and Eurolight followed this lead. In such an enquiry, numbers responding positively are obviously reduced: the prevalence of headache yesterday is substantially lower than the 1-year prevalence, given that headache-affected days vary in frequency between individuals with headache from one to 365 per year.…”

Section: Introductionmentioning

confidence: 99%

Headache yesterday in Europe

et al. 2014

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BackgroundSurveys enquiring about burden of headache over a prior period of time (eg, 3 months) are subject to recall bias. To eliminate this as far as possible, we focused on presence and impact of headache on the preceding day (“headache yesterday”).MethodsAdults (18-65 years) were surveyed from the general populations of Germany, Italy, Lithuania, Luxembourg and the Netherlands, from a work-force population in Spain and from mostly non-headache patient populations of Austria, France and UK. A study of non-responders in some countries allowed detection of potential participation bias where initial participation rates were low.ResultsParticipation rates varied between 11% and 59% (mean 27%). Non-responder studies suggested that, because of participation bias, headache prevalence might be overestimated in initial responders by up to 2% (absolute). Across all countries, 1,422 of 8,271 participants (15-17%, depending on correction for participation bias) had headache yesterday lasting on average for 6 hours. It was bad or very bad in 56% of cases and caused absence from work or school in 6%. Among those who worked despite headache, 20% reported productivity reduced by >50%. Social activities were lost by 24%. Women (21%) were more likely than men (12%) to have headache yesterday, but impact was similar in the two genders.ConclusionsWith recall biases avoided, our findings indicate that headache costs at least 0.7% of working capacity in Europe. This calculation takes into account that most of those who missed work could make up for this later, which, however, means that leisure and social activities are even more influenced by headache.

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“…In a Pakistani study,26 researchers validated an interviewer-administered headache questionnaire developed by Lifting The Burden that had an overall κ value of 0.77 but was relatively insensitive for TTH (0.6). Ayzenberg et al27 tested the same questionnaire and reported the TTH as 64%. Relatively few other questionnaires for the diagnosis of TTH have been developed, but Rasmussen et al28 reported a sensitivity of only 43% (albeit with 96% specificity).…”

Section: Discussionmentioning

confidence: 99%

Development and validation of an Arabic-language headache questionnaire for population-based surveys

El-Sherbiny¹,

Shehata²,

Amer³

et al. 2017

JPR

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BackgroundThe reported prevalence of headache disorders in Arab regions varies considerably between countries. This may be due to a lack of standardized survey instruments that capture the prevalence.Purpose of the studyOur goal was to construct and validate a structured headache questionnaire for Arabic-speaking headache patients to be used as an epidemiological survey instrument.MethodsWe developed a culturally adapted interviewer-administered questionnaire in Arabic language comprising two sets of questions. The first set included personal and sociodemographic data together with a screening question regarding the presence of headaches over the last year. The second set was designed to define the type and pattern of headaches according to the International Classification of Headache Disorders criteria (for subjects with “yes” answers on the screening question). Validation process took place in two phases through probability random sampling selected from 1,221 headache subjects collected in an epidemiological survey 3 (n=70) and 6 months (n=232) later. A detailed assessment of patients’ headaches was performed by neurologists (blinded from the questionnaire diagnosis) who clinically assessed the patients’ headache.ResultsThe validity of the questionnaire was tested in 232 subjects with a mean age of 41.2±10.9 years, 72.8% of whom were females. The mean time to complete the questionnaire was 8.4±1.7 minutes. The intraclass correlation coefficient was 0.903 (95% confidence interval: 0.875–0.925), the Cronbach κ coefficient was 0.775 (95% confidence interval: 0.682–0.837), and the percentage of agreement was 84.5%.ConclusionOur results support the use of this comprehensive questionnaire as a valid tool for headache assessment among Arabic-speaking patients.

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The burden of headache in Russia: validation of the diagnostic questionnaire in a population-based sample

Abstract: We concluded that the questionnaire can be utilized in a population-based countrywide survey of the burden attributable to primary headache disorders in Russia.

Cited by 47 publications

References 16 publications

Estimating prevalence and burden of major disorders of the brain in Nepal: cultural, geographic, logistic and philosophical issues of methodology

Estimating prevalence and burden of major disorders of the brain in Nepal: cultural, geographic, logistic and philosophical issues of methodology

Headache yesterday in Europe

Development and validation of an Arabic-language headache questionnaire for population-based surveys

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