The Burden of Childhood Psoriasis

Jager, M.E.A. de; Jong, E.M.G.J. de; Evers, Andrea W M; Kerkhof, Peter C M van de; Seyger, M.M.B.

doi:10.1111/j.1525-1470.2011.01489.x

Cited by 74 publications

(69 citation statements)

References 5 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Adolescents with psoriasis have even more pronounced effects on self-esteem, sexual intimacy, stigmatization and bullying, family and social relationships compared to their disease-free peers [13][14][15][16] . In particular, psoriasis negatively impacts physical activities [13] .…”

Section: Hrql In Adolescents With Chronic Illness and Psoriasismentioning

confidence: 99%

“…In the aforementioned online focus group by Fox, one participant expressed that they felt others viewed them as 'dirty' due to the lesions [16] . De Jager et al [14] interviewed 15 pediatric psoriasis patients (mean age 12.8 ± 4.25 years), 65% of whom felt stigmatized due to bullying or name calling. The stigmatization and bullying lead to a decreased perception of social connectivity that impacts family and social relationships [18] .…”

Section: Hrql In Adolescents With Chronic Illness and Psoriasismentioning

confidence: 99%

“…Unfortunately, there has been little research on its relationship to skin disease, and there are no validated bullying or victimization scales in this population. Most of the data is based on either qualitative studies, such as those from Fox et al [16] and de Jager et al [14] , or extracted from one question on the validated CDLQI [15,17] . In the aforementioned online focus group by Fox, one participant expressed that they felt others viewed them as 'dirty' due to the lesions [16] .…”

Section: Hrql In Adolescents With Chronic Illness and Psoriasismentioning

confidence: 99%

“…The CDLQI has been used in multiple studies that include adolescents with psoriasis [11,14,24,[32][33][34][35][36] . The first prospective observational study, completed by Oostveen et al [37] , used the Child-CAPTURE patient registry to examine 85 patients with mild psoriasis (PASI 7.0 ± 5.8) from 3 to 17 years old who were grouped into 3 treatment clusters.…”

Section: Dermatology-specific Hrql Measurement Toolsmentioning

confidence: 99%

See 3 more Smart Citations

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

et al. 2016

View full text Add to dashboard Cite

Background: Many cases of psoriasis begin in adolescence. The affected adolescents face the combined physical and psychosocial challenges of their disease-free peers with the added complexity of a visible disease. Objective: To review the impact of psoriasis on the health-related quality of life (HRQL) in adolescents as compared to their peers with other chronic diseases and to determine the best tools to measure HRQL in this population. Methods: A systematic literature review was completed using PubMed. Results: 256 publications were screened for inclusion, 37 were relevant to objectives and included in the systematic review. Most studies are pediatric psoriasis studies with an adolescent subgroup, very few are dedicated to solely addressing HRQL in adolescents with psoriasis. Adolescents with psoriasis face both the challenges similar to an adult psoriasis population in addition to the complexities inherent to healthy adolescents. Studies often use a general pediatric HRQL measure, PedsQL 4.0, or a dermatology-specific measure adapted from an adult questionnaire. Only one psoriasis-specific measurement tool exists, and it is specifically for scalp psoriasis. Conclusion: Both dermatologists and primary care physicians should treat the visible cutaneous lesions and disease comorbidities and address the psychosocial impact of psoriasis in their adolescent patients. Use of both a general and dermatology-specific HRQL questionnaire may allow physicians to better identify the impact of the disease and recognize improvement or impairment over time.

show abstract

Section: Hrql In Adolescents With Chronic Illness and Psoriasismentioning

confidence: 99%

Section: Hrql In Adolescents With Chronic Illness and Psoriasismentioning

confidence: 99%

Section: Hrql In Adolescents With Chronic Illness and Psoriasismentioning

confidence: 99%

Section: Dermatology-specific Hrql Measurement Toolsmentioning

confidence: 99%

See 2 more Smart Citations

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

et al. 2016

View full text Add to dashboard Cite

show abstract

“…Children and adolescents who suffer from skin conditions report a lower quality of life compared to peers with other conditions that occur during childhood, such as asthma and diabetes [17]. Apart from complaints of itch and pain this group can also experience emotional and social problems, such as shame, sleep problems, restrictions in hobbies and restrictions in entering into relationships [17,18]. Additionally, chronic skin conditions do not only affect the child but the whole family, so that parents are found to have lower quality of life and higher rates of psychological distress [19].…”

Section: A U T H O R ' S C O P Y N O T F O R S a L E O R D I S T R I mentioning

confidence: 99%

Psychological Treatments for Dermatological Conditions

2016

Skin and Psyche

View full text Add to dashboard Cite

Abstract:The impact of dermatological conditions on a patient's life is frequently underestimated. Patients with skin conditions experience several physical complaints, including itch, pain and fatigue. Furthermore, in comparison to the general population, patients report a decreased psychological well-being, lowered quality of life and feelings of stigmatization and shame. Psychological treatments are widely used in addition to regular dermatological treatments to improve physical and psychological functioning of patients with chronic skin conditions. These treatments are usually aimed at changing the psychosocial factors that can influence the onset and/or course of skin conditions, such as dysfunctional coping behaviors, itch-scratching problems and stress. There are unimodal interventions in which single treatments are used, for example psychoeducation or relaxation exercises, and multimodal treatments in which a variety of different interventions are applied based on cognitive-behavioral therapy and self-management principles. Furthermore, a distinction can be made between interventions that focus primarily on skin-related psychosocial problems, interventions that focus on itch-scratching problems, and interventions that are focused on psychiatric problems in the dermatological practice. This chapter gives an overview on the psychosocial factors relevant for dermatological conditions, relevant diagnostic methods and the content and scientific evidence of specific psychological treatments in these different categories.

show abstract

Pediatric Psoriasis Comorbidity Screening Guidelines

et al. 2017

View full text Add to dashboard Cite

IMPORTANCE-Psoriasis is a complex inflammatory skin condition associated with serious medical comorbidities in adults, including obesity, hypertension, dyslipidemia, type 2 diabetes mellitus, psoriatic arthritis, nonalcoholic fatty liver disease, depression, anxiety, and decreased quality of life. Because psoriasis begins in childhood in almost one-third of patients, early identification of risk may be critical to minimizing effects on future health. OBJECTIVE-To develop the first set of guidelines for comorbidity screening for patients with pediatric psoriasis based on current evidence. EVIDENCE REVIEW-A literature review was performed using PubMed from January 1999 through December 2015. Limiting the search to human studies published in English and removing reviews and editorials produced 153 relevant manuscripts. An expert panel in psoriasis, pediatric dermatology, pediatric rheumatology, pediatric gastroenterology, pediatric endocrinology, and adult and pediatric cardiology used the patient-centered Strength of Recommendation Taxonomy (SORT) method to evaluate and grade the quality of evidence.FINDINGS-Because of the limited number of pediatric studies published on these topics, the strength of the panel's recommendations is classified as SORT level C expert consensus recommendations. The majority of recommendations coincide with those endorsed by the American Academy of Pediatrics for the general pediatric patient but with added attention to signs Osier et al.

show abstract

The Burden of Childhood Psoriasis

Cited by 74 publications

References 5 publications

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

Psychological Treatments for Dermatological Conditions

Pediatric Psoriasis Comorbidity Screening Guidelines

Contact Info

Product

Resources

About