The burden of caregiving in families with a mental illness: a review of 2002

Ohaeri, Jude U.

doi:10.1097/01.yco.0000079212.36371.c0

Cited by 145 publications

(155 citation statements)

References 89 publications

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“…The importance of family in the care of people with severe mental illness has grown due to the deinstitutionalization of psychiatric patients [39]. However, providing care to a family member with a severe mental disorder is an overwhelming experience for the caregiver.…”

Section: Severe Mental Disordersmentioning

confidence: 99%

Psychopathological Symptoms in Caregivers of Demented and Nondemented Patients

Vázquez¹,

Otero²,

Blanco³

et al. 2018

Caregiving and Home Care

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Currently, more than 1 in 10 adults living in the Organization for Economic Co-operation and Development is involved in nonprofessional care of a dependent family member. The main causes of dependence are dementia, followed by other conditions such as cerebrovascular accidents, limb impairment, depression, and vision impairment. Although care provided by the caregiver is crucial to the well-being of the cared person, it can also have negative consequences on the caregiver's emotional state. This chapter aims to describe the psychopathological symptoms experienced by caregivers based on the condition of the person cared for. A bibliographic search was conducted to examine the efects of care on the emotional state of caregivers, distinguishing patients with dementia from those with other conditions. Depressive and anxiety symptoms were the most frequent psychopathological symptoms, both in caregivers of demented and nondemented patients, experienced by caregivers of patients with dementia, cerebrovascular accidents, traumatic brain injury, schizophrenia, cancer, amyotrophic lateral sclerosis, and autism spectrum disorder. In caregivers of patients with bipolar disorder and vision impairment, depressive symptoms were most prominent, whereas anxiety symptoms were common in caregivers of patients with spinal cord injuries. Sleep disturbances were found among caregivers of dementia and schizophrenia patients. Strategies for preventing psychopathological symptoms were provided and the importance of professional support when they occur was pointed out.

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Section: Severe Mental Disordersmentioning

confidence: 99%

Psychopathological Symptoms in Caregivers of Demented and Nondemented Patients

Vázquez¹,

Otero²,

Blanco³

et al. 2018

Caregiving and Home Care

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“…The adverse consequences of mental disease in a family member, for families has been systematically documented and points towards the fact that all the areas of family functioning are affected by the presence of mental disease (5)(6)(7) . It is important to note that burden related to care in mental health is an easily perceivable phenomenon, and that it persists even when the patient responds positively to innovative and effective treatments.…”

Section: Introductionmentioning

confidence: 99%

“…From this angle, the mentally ill person's lack of autonomy is seen as a negative aspect that generates stress and worry, affecting the family member emotionally. Subjective burden is related to feels of lack of support, sadness and guilt (6,8,9) .…”

Section: Introductionmentioning

confidence: 99%

O cuidador e a sobrecarga do cuidado à saúde de pacientes egressos de internação psiquiátrica

Cardoso

Galera

Vieira³

2012

Acta paul. enferm.

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Objective: To identify the sociodemographic characteristics and the level of burden on family caregivers of patients discharged from psychiatric hospitalization. Methods: A quantitative exploratory study, performed in an outpatient mental health setting, using a questionnaire and the Burden Assessment Scale for Families. The sample was composed of 21 caregivers of patients discharged from psychiatric hospitalization. Results: All caregivers had a family relationship, the mean age was 46 years, of whom the majority were women. Mothers were the primary caregivers in 38% of the cases. All presented a level of burden, with the objective lens predominantly higher. The highest mean scores were related to concerns about physical security and the future of the patient. Conclusion: Considerable family burden was identified among caregivers, which highlights the importance of a collaborative relationship between mental health services, patients, their caregivers and their families for better maintenance of psychiatric treatments. Keywords: Psychiatric nursing; Burden; Caregiver; Family; Mental health RESUMO Objetivo: Identificar as características sóciodemográficas e o grau de sobrecarga dos familiares cuidadores de pacientes egressos de internação psiquiátrica. Métodos: Estudo quantitativo exploratório realizado em um ambulatório de saúde mental utilizando um questionário e a Escala de Avaliação da Sobrecarga dos Familiares. A amostra compôs se de 21 cuidadores de pacientes egressos de internação psiquiátrica. Resultados: Todos os cuidadores tinham vínculo familiar, média de idade de 46 anos, sendo a maioria mulheres. As mães foram as principais cuidadoras em 38% dos casos. Todos apresentaram grau de sobrecarga, sendo a objetiva predominantemente maior. Os maiores escores médios relacionaram se às preocupações com a segurança física e futuro do paciente. Conclusão: foi identificada considerável sobrecarga familiar entre os cuidadores o que evidencia a importância de uma relação colaborativa entre os serviços de saúde mental, pacientes, seus cuidadores e suas famílias para melhor manutenção dos tratamentos psiquiátricos. Descritores: Enfermagem psiquiátrica; Sobrecarga; Cuidador; Família; Saúde mental RESUMEM Objetivo: Identificar las características sociodemográficas y el grado de sobrecarga de los familiares cuidadores de pacientes egresados de internamiento psiquiátrico. Métodos: Estudio cuantitativo exploratorio realizado en un consultorio externo de salud mental utilizando un cuestionario y la Escala de Evaluación de la Sobrecarga de los Familiares. La muestra estuvo compuesta por 21 cuidadores de pacientes egresados de internamiento psiquiátrico. Resultados: Todos los cuidadores tenían vínculo familiar, con promedio de edad de 46 años, siendo la mayoría mujeres. Las madres fueron las principales cuidadoras en el 38% de los casos. Todos presentaron grado de sobrecarga, siendo la objetiva predominantemente mayor. Los mayores escores promedio se relacionaron a las preocupaciones con la seguridad física y el fut...

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“…Although caregiving can bring some benefits, many have difficulties managing the demands associated with it (Ohaeri, 2002;van der Voort et al, 2007). Over six million people in the UK currently provide unpaid care, and around 13% of these care for someone with a mental health problem (Buckner & Yeandle, 2015;NHS Information Centre, 2010).…”

Section: Introductionmentioning

confidence: 99%