The Burden of Care and Burnout in Individuals Caring for Patients with Alzheimer’s Disease

Yıldızhan, Eren; Ören, N.; Erdoğan, Ayten; Bal, Fatih

doi:10.1007/s10597-018-0276-2

Cited by 17 publications

(17 citation statements)

References 26 publications

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“…Burnout Syndrome is characterized by a psychosocial syndrome that arises in response to chronic and interpersonal stressors in the workplace. However, it is important to note that this concept is not only related to caregiving load, but also to critical aspects of relationships that the person establishes with his/her occupation 19. This syndrome is characterized by three dimensions: emotional exhaustion (lack of energy and enthusiasm, as well as no emotional resources), depersonalization (adoption of an indifferent, impersonal and even cynical attitude between caregiver and patient), and reduction of personal fulfillment (perceiving care as negative or ineffective) 19…”

mentioning

confidence: 99%

Burnout syndrome in informal caregivers of older adults with dementia: A systematic review

Alves

Monteiro

Bento

et al. 2019

Dement. neuropsychol.

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Dementia is a constant concern for the public health system. Also, it impacts family members who provide informal care, often culminating in overload due to the emotional stress and physical distress of caregivers. Objective: This systematic review aimed to identify the consequences of Burnout Syndrome in informal caregivers of older adults with dementia. Methods: The search was performed spanning the last 10 years, in English, Portuguese or Spanish. The databases used were PubMed, SciELO, Web of Science and LILACS. The descriptors were obtained from MeSH and DeCS, which were, “caregivers”, “burnout”, “aged”, “psychological stress” and “dementia”. The selected articles included studies conducted with informal caregivers of community-dwelling older adults diagnosed with any type of dementia. The excluded articles had the following characteristics: the participants were not informal caregivers, the older adults were not diagnosed with dementia, or the main theme was not related to the Burnout Syndrome. Results: Initially, 1,208 articles were found. One hundred and forty-six were eliminated because they were duplicates. A further 1,033 were excluded because they did not meet the inclusion criteria. Twenty-nine studies were selected for full reading and 22 were excluded, giving 7 studies for inclusion in this review. Conclusion: The results showed that the Burnout Syndrome negatively affected caregivers’ quality of life and was associated with patient depressive and anxious symptoms and abusive behavior by caregiver. There is a need for studies with interventions addressing this issue.

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confidence: 99%

Burnout syndrome in informal caregivers of older adults with dementia: A systematic review

Alves

Monteiro

Bento

et al. 2019

Dement. neuropsychol.

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“…Moreover, caregivers whose children had lower education indicated higher levels of DP. Yildizhan et al also reported significant connections between caregiver's educational level and perceived EE and DP (Yıldızhan et al 2019). It seems that more educated subjects usually encounter better social interactions, better job opportunities, and income, better problem solving and stress management skills, and greater self-confidence.…”

Section: Discussionmentioning

confidence: 96%

Burnout in the Primary Caregivers of Children With Chronic Conditions and its Related Factors

Ahmadi

Sabery

Adib-Hajbaghery

2021

JCCNC

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Background: A majority of parents of children with chronic illness encounter physical conditions, as well as some degrees of burnout, anxiety, and depression. This study examined the prevalence of burnout in the primary caregivers of children with chronic conditions and its related factors. Methods: A descriptive cross-sectional study was conducted on 385 family caregivers of children with chronic conditions who were selected by convenience sampling method from 4 healthcare centers in Kashan and Isfahan Provinces, Iran. A demographics questionnaire and the Maslach Burnout Inventory (MBI) were used to gather the required data. The MBI assesses caregiver burnout in 3 domains of emotional exhaustion, depersonalization, and reduced personal accomplishment. The obtained data were analyzed in SPSS using Mann-Whitney U test, Kruskal-Wallis test, Chi-Squared test, Fisher’s Exact test, Analysis of Variance (ANOVA), and linear regression analysis. P<0.05 was considered significant. Results: The Mean±SD age of the examined caregivers and children were 38.2±8.04 and 8.9±4.9 years, respectively. Fifty percent of the research participants were fathers, and 74.3% had a family size of >4 members. The ill children were mostly boys (60%) and afflicted with renal (45.2%) or neurological (18.2%) disorders. The mean scores of the caregivers in the 3 subscales of emotional exhaustion, depersonalization, and personal accomplishment, were 22.21, 6.40, and 13.24, respectively. However, 62.3% and 47.9% of the caregivers experienced high or moderate levels of emotional exhaustion and depersonalization; nearly all of them (99.2%) experienced reduced personal accomplishment. The age of the child, the type of chronic condition, the frequency of medical visits, as well as the caregiver’s age, job, income, and family size, could predict caregiver burnout (r2=0.17). Conclusion: The family caregivers of children with chronic conditions experience moderate burnout. Nurses and other healthcare providers should be aware of the signs of caregiver burnout and its contributing factors; accordingly; appropriate plans should be made for the periodic evaluation of family caregivers.

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“…Anxiety, agitation, disinhibition, aggressive behavior, sleep problems, the carer being female and the patient's spouse, and social isolation are among the factors that contribute most to an increase in the carer's load (Isik et al, 2019). While a study made in care homes found emotional exhaustion in 25% of caregivers (Yıldızhan et al, 2019), this rate increased to 40% when care was provided by a family member (Truzzi et al, 2012). Many adult children in Turkey caring for their parents suffering from AD feel a responsibility towards their parents, do not trust care homes, and prefer providing care themselves (Ar and Karanci, 2019).…”

Section: Discussionmentioning

confidence: 99%

Clinical deterioration of Alzheimer’s disease patients during the Covid-19 pandemic and caregiver burden

Yilmaz¹,

Polat²,

Ermiş³

et al. 2021

JECM

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To investigate a possible deterioration of the symptoms of Alzheimer’s disease (AD) patients during a quarantine period of 60 days, and the impact on caregiver burden. This study consisted of 54 individuals (36 female, 18 male) aged 60 years and over who had been diagnosed with AD. During the quarantine period, caregivers of the patients (child, spouse, relatives) who were confined to their homes were contacted by phone and administered a survey composed of questions for neuropsychiatric symptoms and caregiver burden. Patients’ mean age was 77.18±6.96 years. The most worsening symptom was forgetfulness (35.2%) and agitation (24.1%). Incoherent speech, introversion, sleep disturbance, hallucinations, carry on with hobbies, reduced personal care, changes in appetite, and incontinence were less deteriorated. Of the caregivers, 61.1% thought that something terrible would happen to the patient, and 38.9% felt they could not find time for themselves. Drug rejection increased the burden twofold. Telemedicine methods, providing opportunities for the caregiver and the patient to walk outside, and giving medication that dissolves in the mouth or epidermal patches may be useful to prevent disease progression during the lockdown.

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The Burden of Care and Burnout in Individuals Caring for Patients with Alzheimer’s Disease

Cited by 17 publications

References 26 publications

Burnout syndrome in informal caregivers of older adults with dementia: A systematic review

Burnout syndrome in informal caregivers of older adults with dementia: A systematic review

Burnout in the Primary Caregivers of Children With Chronic Conditions and its Related Factors

Clinical deterioration of Alzheimer’s disease patients during the Covid-19 pandemic and caregiver burden

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