The behaviour and perception of illness: modulating variables of adherence in patients with haemophilia

Torres-Ortuño, Ana; Cuesta‐Barriuso, Rubén; Nieto-Munuera, Joaquín; Galindo-Piñana, Pilar; López‐Pina, José Antonio

doi:10.1111/vox.12669

Cited by 7 publications

(5 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Level of adherence to prophylaxis in haemophilia has also not been examined so far in Eastern European countries. Data for the adherence level from USA, Canada, Australia and Western European countries have been found to vary from 44% to 87% 5‐10 . Our data indicated that 83% of the sample was adherent.…”

Section: Discussionmentioning

confidence: 57%

“…Data for the adherence level from USA, Canada, Australia and Western European countries have been found to vary from 44% to 87%. [5][6][7][8][9][10] Our data indicated that 83% of the sample was adherent. In line with previous findings that depression is an important factor for adherence in many chronic diseases including haemophilia, 9,[11][12][13][14][15][16][17][18][19][20][21][22]…”

Section: Discussionmentioning

confidence: 62%

“…Although there is a huge advancement in haemophilia treatment, health outcomes will not improve if patients do not take prophylactic therapy regularly. Reported levels of adherence to prophylaxis in haemophilia have been found to vary from 44% to 87% in USA, Canada, Australia and Western European countries 5‐10 . As far as we know, there are no available data for the adherence level in Eastern European countries.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Depressive symptoms and adherence to prophylaxis in patients with haemophilia from Croatia and Slovenia

et al. 2020

View full text Add to dashboard Cite

Haemophilia is a rare chronic disease that affects a small number of patients, but the costs of treatment are high in European countries, as shown by the CHESS study. 1 The vast majority of the cost burden (up to 99%) was the cost of the factor replacement therapy. 1 Nonadherence to medication regimens is a real public health problem. 2 Therefore, it is of great importance to examine and understand the factors contributing to adherence rate to prophylaxis in haemophilia. Prophylaxis diminishes frequency of bleeding; therefore, it may slow progression of joint disease and improve quality of life. 3 Patients with haemophilia (PWH)

show abstract

Section: Discussionmentioning

confidence: 57%

Section: Discussionmentioning

confidence: 62%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Depressive symptoms and adherence to prophylaxis in patients with haemophilia from Croatia and Slovenia

et al. 2020

View full text Add to dashboard Cite

show abstract

“…In addition, a rapidly growing body of studies has shown that illness perceptions have been associated with coping strategies and behaviors adopted by patients in order to manage their disease (Leventhal et al, 1980;Hagger & Orbell, 2003;French et al, 2006;Kucukarslan, 2012;Richardson et al, 2017b). Although the scope of this review is not to investigate interesting associations between illness perceptions and coping, some studies have provided evidence about the important role of the former in medication adherence among patients with hematologic disorders, such as hemophilia (Llewellyn et al, 2003;Lamiani et al, 2015;Torres-Ortuño et al, 2018) and sickle cell anemia (Atorkey et al, 2017;Badawy et al, 2017;Oudin-Doglioni et al, 2019). This review is not without limitations.…”

Section: Discussionmentioning

confidence: 99%

Illness Perceptions and Illness Outcomes in Patients with Hematologic Diseases: A Narrative Review

Lekarakou,

Koulierakis,

Pontikoglou

2024

PSYCH

View full text Add to dashboard Cite

Background: Patients diagnosed with chronic illnesses form personalized perceptions of their conditions, which guide their coping strategies and illness outcomes. Leventhal's Common-Sense Model outlines these beliefs, including illness identity, consequences, timeline, causes and controllability. Aims: This narrative review aims to synthesize existing literature examining the association between illness perceptions and illness outcomes in patients with hematologic disorders. Method: An extensive search was conducted in Pubmed, APA PsycInfo and Web of Science databases up to December 2023. Inclusion criteria encompassed adult patients with hematologic disorders, peer-reviewed studies utilizing the Illness Perception Questionnaire (IPQ), the Revised IPQ or the Brief-IPQ in English and primary studies measuring relationships between illness perceptions and outcome variables. Eight articles met these criteria. Results: Among adults with hematologic diseases, including hemophilia, leukemia and cutaneous lymphoma, patients' perceptions of their disease have shown interesting associations with outcomes, like anxiety and depression levels, fatigue, psychological well-being and cancer-specific distress. In some reports, negative perceptions have been associated with poorer outcomes. Limitations: Published articles not indexed in the above-mentioned databases or those in the grey literature were not included. Non-English language studies were excluded, while some of the studies did not explore the relationships between illness perceptions and outcomes over time. Conclusions: This review highlights the relationship between illness perceptions and illness outcomes across various hematologic patient populations.

show abstract

“…Furthermore, the quality of life of patients with haemophilia can be affected by the uncertainty of the chronic disease, the lack of adherence to medical and pharmacological prescriptions and the incidence of haemorrhagic episodes 5. Prophylactic approaches have demonstrated to reduce in 53% the incidence of haemorrhagic complications of patients with haemophilia, and if these appear, early interventions can reduce their adverse effects on the patient’s general health and quality of life 5–7…”

Section: Introductionmentioning

confidence: 99%

Infected tooth extraction, bone grafting, immediate implant placement and immediate temporary crown insertion in a patient with severe type-B hemophilia

2019

View full text Add to dashboard Cite

Haemorrhagic disorders combined with soft tissue inflammation and infection may lead to severe bleeding complications before, during or after dental treatment. In selected cases, a combined therapeutic approach involving clinical therapies and systemic and local medication could improve the treatment outcomes and the patient’s quality of life. This clinical case report, presents for the first time a successful combined approach, completed in a 38-year-old male patient with severe type-B haemophilia in which an infected tooth was extracted, an immediate implant was inserted, bone grafting was performed and early implant loading was successfully applied. In addition to the clinical therapy, medication was provided orally, systemically and locally, thus preventing the haemorrhagic complications and improving the patient’s quality of life.

show abstract

The behaviour and perception of illness: modulating variables of adherence in patients with haemophilia

Abstract: Adherence in haemophilia requires a more experiential approach and individualized education. It is important that professionals take into account the patient's perception, behaviour and attitude towards the disease to achieve a better adaptation of their coping resources.

Cited by 7 publications

References 17 publications

Depressive symptoms and adherence to prophylaxis in patients with haemophilia from Croatia and Slovenia

Depressive symptoms and adherence to prophylaxis in patients with haemophilia from Croatia and Slovenia

Illness Perceptions and Illness Outcomes in Patients with Hematologic Diseases: A Narrative Review

Infected tooth extraction, bone grafting, immediate implant placement and immediate temporary crown insertion in a patient with severe type-B hemophilia

Contact Info

Product

Resources

About