The Basic VRS-Effect Study: Clinical Trial Outcomes and Cost-Effectiveness of Low Vision Rehabilitation in Portugal

Hernández-Moreno, Laura; Senra, Hugo; Marques, Ana Patrícia; Perdomo, Natacha Moreno; Macedo, António Filipe

doi:10.1007/s40123-022-00600-0

Cited by 4 publications

(5 citation statements)

References 67 publications

(96 reference statements)

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“…The effect of optical rehabilitation on vision-related quality of life has not previously been evaluated in patients with albinism but studies on patients with low vision due to agerelated macular degeneration and diabetes have shown a positive effect on health-related quality of life [26]. Others have found moderate improvements in health-related quality of life after physical rehabilitation of patients with physical disabilities or chronic disease.…”

Section: Discussionmentioning

confidence: 99%

Vision-Related Quality of Life in Danish Patients with Albinism and the Impact of an Updated Optical Rehabilitation

Lisbjerg,

Jordana,

Brandt

et al. 2023

JCM

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(1) Background: Albinism is characterized by a lack of pigment in eyes, hair, and skin and developmental changes in the eye such as foveal hypoplasia. Patients require optical rehabilitation due to low vision, refractive errors, and photosensitivity. We aimed to assess vision-related quality of life in patients with albinism and to evaluate how this was affected by optical rehabilitation. (2) Methods: Patients with ocular or oculocutaneous albinism were invited for the study. Free-of-charge optical rehabilitation was provided as needed, including filters, glasses for near or distance, contact lenses, magnifiers or binoculars. Vision-related quality of life was assessed prior to and after optical rehabilitation using the visual function questionnaire (VFQ39) and the effect of optical rehabilitation was evaluated after accounting for age, gender, and visual acuity. (3) Results: Seventy-eight patients filled out the VFQ39 at the initial visit. Fifty patients (64.1%) returned the questionnaire 3–6 months after optical rehabilitation. The mean age of included patients was 35.9 years (standard deviation 16.6), and their best corrected distance visual acuity was 56 ETDRS letters (range 3–81). The VFQ39 composite score improved significantly from a median of 62.5 (range 14.2–77.0) to 76.5 (20.6–99.6). Significant improvements were seen for ocular pain, social functioning, mental health, role difficulties, and dependency, whereas self-assessed distance or near visual functions did not change. (4) Conclusions: Optical rehabilitation improved the self-reported vision-related quality of life in Danish patients with albinism on a number of parameters related to leading an independent and worry-free life, whereas visual improvement for distance and near tasks was likely limited by the nature of the disease and by the fact that most patients already had access to some optical aids prior to the study.

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Section: Discussionmentioning

confidence: 99%

Vision-Related Quality of Life in Danish Patients with Albinism and the Impact of an Updated Optical Rehabilitation

Lisbjerg,

Jordana,

Brandt

et al. 2023

JCM

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“…The reading time and number of misread words were recorded on a score sheet by the experimenter (LHM) who has extensive experience in performing the test. 4 , 7 , 12 Children had a practice run to get familiar with the task using one of the 2 versions of the charts available, the chart version for the training was randomly selected, the alternative version was used for measuring the reading parameters reported here. Measurements were performed during the normal school hours, typically any time between 8:30 and 15:30.…”

Section: Methodsmentioning

confidence: 99%

“… 3 Assessment of reading performance can provide guidance for prescription of reading aids in low vision patients. 4 Therefore, it is important that there are normative values available for various age groups for commonly used tests according to the language. The MNREAD acuity chart is a reading test that has been extensively used to determine reading performance in both children and adults with normal or with impaired vision.…”

Section: Introductionmentioning

confidence: 99%

Reading performance in Portuguese children from second to tenth grade with the MNREAD reading acuity test

Baskaran

Calabrèse

Hernández-Moreno

et al. 2023

Journal of Optometry

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“…Visual impairment is common in Portugal and many people are still struggling to cope with the condition [ 8 ]. These individuals frequently used informal care [ 9 ].…”

Section: Introductionmentioning

confidence: 99%

The socioeconomic epidemiology of inherited retinal diseases in Portugal

Marta,

Marques,

Santos

et al. 2024

Orphanet J Rare Dis

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Background Inherited retinal diseases (IRDs) are a group of rare degenerative disorders of the retina that can lead to blindness from birth to late middle age. Knowing the target population and its resources is essential to better plan support measures. The aim of this study was to evaluate the socioeconomic characteristics of regions in Portugal where IRD patients reside to inform the planning of vision aid and rehabilitation intervention measures. Results This study included 1082 patients from 973 families, aged 3 to 92 years, with a mean age of 44.8 ± 18.1 years. Patients living with an IRD were identified in 190 of the 308 municipalities. According to this study, the estimated IRD prevalence in Portugal was 10.4 per 100,000 inhabitants, and by municipalities, it ranged from 0 to 131.2 per 100,000 inhabitants. Overall, regions with a higher prevalence of IRD have a lower population density (r=-0.371, p < 0.001), a higher illiteracy rate (r = 0.404, p < 0.001) and an overall older population (r = 0.475, p < 0.001). Additionally, there is a lower proportion of doctor per capita (r = 0.350, p < 0.001), higher social security pensions beneficiaries (r = 0.439, p < 0.001), worse water quality for human consumption (r=-0.194, p = 0.008), fewer audiences at the cinema (r=-0.315, p < 0.001) and lower proportion of foreign guests in tourist accommodations (r=-0.287, p < 0.001). Conclusion The number of identified patients with IRD varied between regions. Using data from national statistics (PORDATA), we observed differences in socioeconomic characteristics between regions. Multiple targeted aid strategies can be developed to ensure that all IRD patients are granted full clinical and socioeconomic support.

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The Basic VRS-Effect Study: Clinical Trial Outcomes and Cost-Effectiveness of Low Vision Rehabilitation in Portugal

Cited by 4 publications

References 67 publications

Vision-Related Quality of Life in Danish Patients with Albinism and the Impact of an Updated Optical Rehabilitation

Vision-Related Quality of Life in Danish Patients with Albinism and the Impact of an Updated Optical Rehabilitation

Reading performance in Portuguese children from second to tenth grade with the MNREAD reading acuity test

The socioeconomic epidemiology of inherited retinal diseases in Portugal

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