The Awareness of Primary Physicians of the Psychosocial Adjustment of Children with a Chronic Illness

Mj, Merkens; Ec, Perrin; Jm, Perrin; Ps, Gerrity

doi:10.1097/00004703-198902000-00001

Cited by 20 publications

(10 citation statements)

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“…In a study performed on children with chronic disease, it was reported that there was an important effect of the relationship between the families of hospitalized children and the nurses conducting the care of the sick children. However, the physicians were not well informed about the problems regarding psychosocial adjustment (21,22). Meeting the psychosocial and educational requirements, as well as the medical requirements, of the population affected by chronic disease will increase the childrens' and families' quality of life in both the acute and follow-up periods.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of Turner Syndrome Knowledge among Physicians and Parents

Filibeli

Havare

Yılmaz

et al. 2020

Jcrpe

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Turner syndrome (TS) is one of the most common chromosomal abnormalities and an important cause of short stature and infertility due to ovarian failure in females. The aim was to evaluate the knowledge of TS among physicians and parents of children with TS and to enhance awareness about this subject. Methods: One hundred and forty physicians were included in the study. The study population comprised 37 pediatricians (26.4%), 15 gynecologists (10.7%), 88 family physicians (62.9%) and 30 parents who had daughters with a diagnosis of TS. Two separate questionnaires were administered to evaluate TS knowledge of physicians and parents. Results: According to the self-reports of physicians, 49% had insufficient knowledge of TS, while 15.7% indicated that they had no knowledge of TS. The mean percentage of correct answers was 50.71±16.17% for all physicians. When the entire group of physicians was considered, 67.1% of them did not know the approximate incidence of TS, while 14.3% of them incorrectly indicated that TS was a condition that was seen in boys. The mean percentage of correct answers among parents was 68±15%, and there was no difference between the mothers' and fathers' correct answer rates (p=0.063). The majority of parents was not aware of TS-associated diseases and increased malignancy risk in TS. Conclusion: Physician knowledge of TS was poor and that there is a need for continued education about TS at the medical faculty and postgraduate levels.

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Section: Discussionmentioning

confidence: 99%

Evaluation of Turner Syndrome Knowledge among Physicians and Parents

Filibeli

Havare

Yılmaz

et al. 2020

Jcrpe

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“…Although researchers do agree that QoL can be described only by the individual, an appropriate, disease-specific QoL assessment instrument for the pediatric cancer population does not exist (Drotar, 1998;Merkens, Perrin, & Perrin, 1989). Research by Feeney, Juniper, Ferrie, and Griffith (1998) found that children as young as 7 years of age are able to provide information regarding their QoL that was not available from other sources.…”

Section: Literature Reviewmentioning

confidence: 99%

Quality of Life among Childhood Leukemia Patients

Hicks

Bartholomew

Ward-Smith

et al. 2003

J Pediatr Oncol Nurs

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The purpose of this qualitative descriptive study was to allow childhood leukemia patients to describe their quality of life (QoL) in their own words. These personal accounts provide an opportunity for health care personnel to understand the impact that leukemia has on these children. A total of 13 children in three focus group interviews participated. They ranged in age from 5 to 9 years and were either off therapy or had completed at least 6 months of treatment. Four semistructured interview questions were used to guide the interviews. Each question related to a domain identified in previous research as having an effect on QoL. Thus, the areas explored in this study were (a) physical well-being and symptoms, (b) psychological well-being, (c) social well-being, and (d) spiritual well-being. Five themes were identified: (a) fatigue, (b) the effect on activities, (c) medication and treatment effects, (d) relationship changes, and (e) hair loss.

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“…Previous studies have certainly recognized that physicians and patients have discordant views of both health status" and psychosocial adjustment. 26 The differing ways in which patient's and their physicians view the severity of illness has been discussed by Stein eta/." Their categories of illness severity (physiological, biological, functional and burden of illness) are central to this study.…”

Section: Discussionmentioning

confidence: 99%