The association of illness perceptions with depressive symptoms and general psychological distress in parents of an offspring with autism spectrum disorder

Gatzoyia, Dimitra; Kotsis, Konstantinos; Koullourou, Iouliani; Goulia, Panagiota; Carvalho, André F.; Soulis, Spyros; Hyphantis, Thomas

doi:10.1016/j.dhjo.2013.10.008

Cited by 43 publications

(28 citation statements)

References 45 publications

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“…Literature suggests that the child's challenging behavior, the dependence in daily life activities, and the continuous demands, together with the need for economic, social, and psychological restructuring, present a potential character for the presence of high levels of stress in mothers who are caretakers (Benson & Karloff, 2009;Gray, 2002;Martin & Leon, 2008;Montes & Halterman, 2008;Schmidt, Dell'Aglio & Bosa, 2007). Sanini, Brum and Bosa (2010) and Gatzoyia et al (2013) confirm that the constant and permanent care provided by the mother can be characterized as a potent stressor, with the possible implication of depression. In addition, the severity of ASD in children was associated with high levels of depressive symptoms in mothers (Benson, 2006), as well as with high level of stress in parents and teachers (Lecavalier & Wiltz, 2006).…”

Section: Introductionmentioning

confidence: 99%

“…On the one hand, there are studies in Turkey (Firat, Diler, Avic, & Seydaoglu, 2002), in the United States (Lounds, Seltzer, Greenberg, & Shattuck, 2007) and Australia (Gray, 2002) indicating an improvement in well-being over time. On the other, there are studies where age did not present relevance, or the passage of time revealed negative impacts, such as in those conducted in the United States (Barker et al, 2011;Smith, Seltzer, Tager-Flusberg, Greenberg, & Carter, 2008 ), the UK (Cadman et al, 2012), and Greece (Gatzoyia et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

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Quality of Life and Depressive Symptomatology in Mothers of Individuals with Autism

Piovesan

Scortegagna

2015

Psico-USF

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This study aimed to investigate the Quality of Life (QOL) and the presence of the depressive symptoms in mothers of individuals with Autism Spectrum Disorder (ASD). Participants included 40 women, between 28 and 72 years old, married, with medium-low income and education levels, and with children between 10 and 40 years old. The instruments used were a social demographic and health characterization questionnaire, the World Health Organization Quality of Life (WHOQOL-Bref) questionnaire, the Beck Depression Inventory and Beck Hopelessness Scale (BDI-II and BHS), and the Baptista Depression Scale Adult Version (EBADEP A). The quality of life and the presence of depressive symptoms in mothers did not show significant correlation with the child's age. However, there was high and negative correlation between the quality of life and high levels of depressive symptoms and moderate correlation between environment and income. It concludes the necessity of preventive and therapeutic interventions for these mothers.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Quality of Life and Depressive Symptomatology in Mothers of Individuals with Autism

Piovesan

Scortegagna

2015

Psico-USF

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“…Whereas the findings of our study show a decreasing trend of couple satisfaction, family resilience and dyadic coping as well as a concomitant increase of couple congruence, the data do not contradict the previous studies, because couple congruence is analyzed from the perspective of illness perception in the case of children with autism. At the same time, Gatzoyia et al (2014) shows that a strong perception of the child's illness causes psychological distress. Under such circumstances, it is easy to explain the findings of our study, which show that a couple's congruence concerning the strong perception of the child's ASD augments psychological distress and reduces couple satisfaction, family resilience and dyadic coping.…”

Section: Discussionmentioning

confidence: 99%

“…Illness -that motivates perception and beliefs -develops outside the dyad because the child is the one impaired. In general, previous studies have reported that a strong parental perception and intense concerns for the child's ASD -for all dimensions involved (symptoms, causes, consequence, controllability, time-line) -are associated with increased psychological distress, lower wellbeing and the emergence of marital trouble (Gatzoyia et al, 2014). Especially when both partners have a complex perception of the child's ASD, there is a negative impact characterized by a decrease in couple satisfaction, in family resilience, in dyadic coping and by an increase in parental stress.…”

Section: Discussionmentioning

confidence: 99%

“…A few studies have focused on the investigation of parental perception of the child's Autism Spectrum Disorder (ASD) (Al Anbar, Dardennes, Prado-Netto, Kaye & Contejean, 2010;Gatzoyia et al, 2014;Hagger & Orbell, 2003;Baines & Wittkowski, 2013;Baker, Blacher & Olsson, 2005). Learning that your own child has a disability or a chronic disease is a trauma for any parent; through the information and experiences related to his/her own child, each parent changes his/her system of beliefs, expectations and perceptions (Pianta & Harbers, 1996).…”

Section: Introductionmentioning

confidence: 99%

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The couple’s congruence of child’s illness perception and the quality of marital relationship

Turliuc

Duca

Hendres

2017

PROSOC

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This study aims to test whether a couple's congruence regarding the perception of their child's illness has an influence on the quality of a marital relationship. This research involved 106 parents of children with autism. The results show a significant effect of the couple's congruence of the perception of their child's illness on couple satisfaction F (2.103) = 3.61, p = .03, parental stress F (2.103) = 17.89, p <.001, dyadic coping F (2.103) = 9.23, p <.001 and family resilience, F (2.103) = 10.43, p <.001. The findings indicate a decreasing trend of couple satisfaction, family resilience and dyadic coping as well as an increasing trend of parental stress when the couple's congruence of illness perception increases.

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Adaptation and validation of the Genetic Counseling Outcome Scale for autism spectrum disorders and related conditions

Yusuf

Peltekova

Savion‐Lemieux

et al. 2020

Journal of Genetic Counseling

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The genetics care pathway experienced by families affected by autism spectrum disorder (ASD) around the time of diagnosis is currently uncharacterized and potentially variable across contexts. The lack of consensus on outcome measures to capture the impact of genetic services for these families shows a gap in understanding and optimizing this genetics care pathway. The Genetic Counseling Outcome Scale (GCOS‐24) is a validated outcome measure of clinical genetics services. The current study aims to adapt and validate the GCOS‐24 as an outcome measure in the context routine genetic testing in ASD and related conditions. Families seen for their child’s developmental evaluation for ASD and related conditions were invited to participate in a genomics cohort between 2016 and 2018. Families (n = 111) completed the mGCOS‐24 (modified GCOS‐24), adapted from the original GCOS‐24 by clinicians working in the target population’s routine care pathway. The mGCOS‐24 has acceptable internal consistency (Cronbach’s α = 0.84) and high test–retest reliability (ICC = 0.88). It also inversely correlates with stress as measured by Perceived Stress Scale (PSS‐10) and distress, as measured by the Distress Thermometer, rs ≥ 0.39, ps < 0.001. The mGCOS‐24 had adequate readability, as supported by cognitive interviews completed by a sub‐sample of five mothers of a child with ASD. Together, our findings show that the mGCOS‐24 has good validity for the target population. Preliminary characterization of the genetics care pathway in this population revealed remarkable variability in pre‐test counseling and limited post‐test counseling. The use of the mGCOS‐24 as an outcome measure is useful in filling some of these gaps by offering a way to assess, and in the future, optimize the genetics care pathway for families affected by autism and related neurodevelopmental conditions.

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The association of illness perceptions with depressive symptoms and general psychological distress in parents of an offspring with autism spectrum disorder

Cited by 43 publications

References 45 publications

Quality of Life and Depressive Symptomatology in Mothers of Individuals with Autism

Quality of Life and Depressive Symptomatology in Mothers of Individuals with Autism

The couple’s congruence of child’s illness perception and the quality of marital relationship

Adaptation and validation of the Genetic Counseling Outcome Scale for autism spectrum disorders and related conditions

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